I’m on 2nd day at NJH

Posted by dispatchpat @dispatchpat, 6 days ago

One of my practitioners today said “you sound like another woman I saw today”. I told her a lot of us in our online support groups trade best practices and we laughed.
So, if you want to share a meal this week it would be super interesting to trade experiences in real time. This is my first visit here, and I am really glad to be here. A lot of overwhelmed, but also a lot of confidence in these professionals in this setting!
I know I will not be able to write contemporaneously online in this group about my experience, I will need to digest and reflect with this group later in the process! And you bet I will! Thanks for being here! Best wishes for good luck To all of us! Pat

Interested in more discussions like this? Go to the MAC & Bronchiectasis Support Group.

bsi15 | @bsi15 | 2 days ago

it's in Denver, so do they offer telehealth ?

coffcoff | @coffcoff | 2 days ago

In reply to @bsi15 "it's in Denver, so do they offer telehealth ?" + (show)

My understanding is they don't/can't do telehealth because doctors need to be licensed in the state where they practice. So unless you live in CO or the NJH doc you're connected with has a license in your state he/she can't prescribe meds or give advice over the phone or computer. That's why it's important too have a local doctor, who, by the way, can and probably should communicate with your team at NJH.

hbcupcake | @hbcupcake | 1 day ago

I'm doing 10 days but I went to the ER last week after they upped my vfend. My sputum was almost all blood and the ID is worried about it so I'm seeing a surgeon tomorrow morning.