I'm new here....

Posted by tallygirl @tallygirl, Mar 2, 2017

I do have a question for all of you pain folks. I’ve had some very excruciating leg pain. When I got up my legs feel like they are going to give way. It takes me a minute to start walking. I still have pain when I do. Then at night it gets worse. I go to bed and I can’t turn on my side without this horrible pain. The pain is in my lower back and my upper thigh. It’s in both legs..I have never had sciatica issues before so I don’t know if this it. I would think sciatica would correct itself within days or weeks.. This has been going on for a few months now but has progressively gotten worse. Maybe it is drug related? If it is I don’t think it would take this long to effect me. Has anyone else experienced this? I appreciate all the help I can get. Thanks…

@amwein

Did you find an answer? I have had terrible back pain, and have found a good chiropractor in Jax, but unsure of sharing that type of info in these forums (new here!) I swore I would never go to one, but after trying PT for years, he helped me in weeks. Another thing that has worked and doesn’t require much effort as far as leaving home, co-pays, appointments is something called the Miracle Ball Method. You can find it online – good and gentle stretching for back, neck, legs. Hope you have found relief!

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As I read your response it reminded me that I swore I would NEVER go to a chiropractor either. I’m going to wait and see what my local MRI shows and see where he suggests me to go. He did mention both PT (which I am not fond of) , a chiropractor, pain management doctor or a neurosurgeon. I did get a call from the doctor yesterday and he did get the results from the radiologist and he said I did have a significant amount of arthritis. I also have some bone spurs. He still wants me to have the MRI to see if there are any bulging discs. Or anything else. He will then send me in the right direction. i hope you continue to feel better….

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@pkindron

Hi – I’m new at this as well – You mentioned you have a lot of pain on your lower back and both of your legs. Have you had a MRI on your back? I’ve had burning pain on both of my legs – it started about a year ago with my left calf with pain especially when I went to bed, having pain down my lower back as well. Then this pain started on both of my legs – right thigh and was going to PT. When I went to PT and it hurt so bad – i decided to go to the doctors to find out exactly what the problem was. The MRI shows I have a bulging disk but that I also have about a 3-4 ml sheath tumor on my nerve root on my spine. I’m in the process of going to see a neurosurgeron – Just a suggestion to go to a doctor who will give you a MRI just to make sure what the actually problem is. I’ve had several x-rays in the past for my back pain but the x-rays never show anything. I’m to go to Mayo Clinic soon because I have polycystic disease as well and have had a liver resection surgery there about 17 years ago – They saved my life!
Hopefully you feel better soon!

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Thanks again for your help. From what you described I am going in the right direction. I do have an MRI scheduled for Monday if my insurance gets their act together. I do not live in Jacksonville but will drive 6 hours to go to Mayo there if I need anything done. I’m already going to Mayo to a neurologist for severe daily headaches. As I said earlier in another post the doctor called me yesterday and told me I have significant arthritis in my lower back. He wants me to have the MRI to see if anything else is going on. Like a bulging disc. He also mentioned to r/o a tumor. I’ll keep you posted and let you know what happens. Thanks for responding to my post and letting me know what is going on with you. I hope you feel better really soon. Tallygirl

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@amwein

Did you find an answer? I have had terrible back pain, and have found a good chiropractor in Jax, but unsure of sharing that type of info in these forums (new here!) I swore I would never go to one, but after trying PT for years, he helped me in weeks. Another thing that has worked and doesn’t require much effort as far as leaving home, co-pays, appointments is something called the Miracle Ball Method. You can find it online – good and gentle stretching for back, neck, legs. Hope you have found relief!

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Thank you! As soon as I find out what actually what the small thing that is on my L5 nerve root. I would live yo start working out again. Just to walk s couple miles without having pain after I’ hope to find out soon.
Patti

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@ladyjoyann52

Something I did several years ago was to ly on the floor with my legs up on a chair, that gets all the pressure your spine. Also ice your back and leg, I hate ice, much prefer heat but the ice really does do the job. Let me know how you make out. Joy

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@pkindron,

You mentioned you were seeing the neurosurgeon on Monday, March 6th. Did you make your appointment? Would you mind telling the rest of the members what you found out?

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@ladyjoyann52

Something I did several years ago was to ly on the floor with my legs up on a chair, that gets all the pressure your spine. Also ice your back and leg, I hate ice, much prefer heat but the ice really does do the job. Let me know how you make out. Joy

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Long Story short I did not have my MRI done last night due to insurance issues. I am scheduled for an MRI on my brain on next Monday because of my headaches. When they called to get my MRI approved they wouldn’t because I already had an MRI scheduled. Even though the MRI’s are on different parts of my body. They both have the same code so that is the problem. I’m not sure what I want to do about getting the MRI done here. It is now scheduled for Friday Morning at 6:30am. Can you believe that? That is the only time they had. So I haven’t heard from Mayo to see if they cancelled my MRI there. I think I’d rather just go to Mayo and have that one done and then come home and have the MRI on my back here. I may take care of this tomorrow. I hate insurance companies!

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@ladyjoyann52

Something I did several years ago was to ly on the floor with my legs up on a chair, that gets all the pressure your spine. Also ice your back and leg, I hate ice, much prefer heat but the ice really does do the job. Let me know how you make out. Joy

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So sorry your getting the run around. Is there anyway you could get them both done at the same time? Keeping you in my prayers. Joy

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@ladyjoyann52

Something I did several years ago was to ly on the floor with my legs up on a chair, that gets all the pressure your spine. Also ice your back and leg, I hate ice, much prefer heat but the ice really does do the job. Let me know how you make out. Joy

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I am so sorry – I have to manage insurance issues frequently and just when you become an expert, something changes. One thing I have learned is that you do need to be persistent. Sometimes they might have old information in the system so they applied it to the wrong insurance, or the codes do not match – and MRIs are only done as ordered. If you had one sceduled for your back, they cannot add on the brain scan unless the Dr. changes the order completely which would require a new approval. All very frustrating for you, I am sure. We have been there too. Make sure you become your own best advocate! Can you talk with your Dr. to see what they advise as far as going to the appts. as scheduled? Keep after the insurance company. Keep track of your bills, statements, etc.

Going at 6:30am is totally believable as is going at 10pm at night! Those machines run around the clock. 😀 Good luck!

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@ladyjoyann52

Keeping you in my prayers, let me know how you make out, Joy

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Wish you luck with your MRI – I know it’s really crazy sometimes to get the insurance company to approve us going out of the state to see other specialist. I had this problem years ago. In fact, I am going to start processing my insurance asking for me to see the doctors at the Mayo Clinic. I’m having a run around with doctors over here as well. One doctors would like to send me to a cancer doctor & would like me to go for a Spinal tap and the other doctor’s opinion is it’s benign and feels the spinal tap would not be good. The one who thinks it’s benign would like me to wait for another 6 months to have a MRI to see if it grows. I don’t want back surgery either – there has to be another easier way to find out about this small tumor on my spine –
Good luck with your MRI – Blessings to you!
Patti

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@ladyjoyann52

Something I did several years ago was to ly on the floor with my legs up on a chair, that gets all the pressure your spine. Also ice your back and leg, I hate ice, much prefer heat but the ice really does do the job. Let me know how you make out. Joy

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Hello @tallygirl. Did your insurance issues get straightened out so you could have your MRI? If you had your MRI, what were you able to learn?

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