Connect
I’m going from 5 to 10 in eight weeks after check with doctor
I’m on Camzyos 5 mg going to 10 in 8 weeks
My doctor said that the side affects I’m getting he had not hear of. Shakes bad sleep and burning round tongue and cannot eat any form meat fish ect. I live in Australia 2026
Like
Helpful
HugInterested in more discussions like this? Go to the Hypertrophic Cardiomyopathy (HCM) Support Group.
Connect
@reeha37 It is possible that you and your doctor may decide that this drug is not a good fit for you. There are those who cannot tolerate it for various reasons. Here is a link to an article about Camzyos: https://www.mayoclinic.org/drugs-supplements/mavacamten-oral-route/description/drg-20534017 Scroll down close to the end to read about side effects. There is a phone number to report your unique (?) effects.
We are walking chemical factories and our individual chemical makeups cause unique reactions. Wishing you a successful fix!