What if others say they're afraid you'll have a seizure?

would like to make a statement kind of off subject. my caregiver has increased her hours so i have her full days, makes it hard to react to notices that catch my eyes and medications, evening ones make me sleepy and not as fresh you might say, so going to try to catch a few in the morning a a few at night along with as many as i can on the weekends. Not sure of my near future yes with the hospital finding the cyst in my brain or what we have to do to fight it , but fight i will just be patient with me and i will respond as soon as able. thank you all so much for the likes and hugs an helpful. it means a lot .

another thing i have learned from the seizures both myself and daughter get is we both have different triggers. hers are usually because of too much going on in the brain and getting overheated. hers didn't start till she had her two kids. mine was from a tumor and too many head traumas .with bringing family on board was tough, but every obstacle i improved on regardless if i considered it a win or not. it was to them. i knew i was being watched 24/7 but they learned with me that i would let them know the minuet i was not feeling right. mad a big difference after a while, only one condition, had to have my phone with me always. what set mine off was too much input to the brain at a time. made me think to hard, i taught them patience and it paid off for all of us. now i think of what i want to say before i say it, makes good practice for speaking to anyone.

@randallshields56 Correct, Dan, Randy. You'll know who your true friends are. I learned I had only 3 friends, out of about 15 with whom I routinely associated. I now know them as past casual acquaintances.

@randallshields56 Correct, Dan, Randy. You'll know who your true friends are. I learned I had only 3 friends, out of about 15 with whom I routinely associated. I now know them as past casual acquaintances.

welcome to the group, telling someone you haven't seen in years can have many outcomes , my friends would ask if thy needed to do anything if while with me and i would let them know just as i would let a family or close friend know. right up front. that's how my friends know me and wouldn't want less. if you are really worried about it have it out as soon as able to stave off future issues or more. course that is my opinion, i just don't like others being shocked unnecessarily if i can help it. a good friend would take it however you put it to them.

@methel thank you for your post, yes i have watched a few videos and my daughter checks often for new information because or her health issues and possibly one day a grand seizure. they can be scary and her wife has studied long hours to help us both in times of need. spreading the word helps so that others can help when out and about. just like so many things that can go wrong, there is classes or multiple web sites you can visit and getting better every year. best we can do is to give who are worried, places on the web to check or videos or numbers to call. try to put their minds at ease. hope this helped.

@marianne72

I have been really lucky, I guess, because my kids who are local have seen me with a seizure and treat them as “ this is just what mom does”. ( It makes you wonder what other things I do they think are odd. ) I once electrified my church group with a generalized seizure, but the retired RN recognized it and knew how to handle it.
The epilepsy foundation has a video on their website showing you what to do for someone with a seizure. If you know someone who says they are worried about this, tell them to look for that video.

Thanks for the discussion. It helps me think of possible scripts I could use in the future. Biggest challenge I face now is family members in the house who live on pins and needles thinking I’ll have a seizure any minute. This, despite assurances and much improved stabilization after starting meds six weeks ago.

another thing i have learned from the seizures both myself and daughter get is we both have different triggers. hers are usually because of too much going on in the brain and getting overheated. hers didn't start till she had her two kids. mine was from a tumor and too many head traumas .with bringing family on board was tough, but every obstacle i improved on regardless if i considered it a win or not. it was to them. i knew i was being watched 24/7 but they learned with me that i would let them know the minuet i was not feeling right. mad a big difference after a while, only one condition, had to have my phone with me always. what set mine off was too much input to the brain at a time. made me think to hard, i taught them patience and it paid off for all of us. now i think of what i want to say before i say it, makes good practice for speaking to anyone.

Thanks for the discussion. It helps me think of possible scripts I could use in the future. Biggest challenge I face now is family members in the house who live on pins and needles thinking I’ll have a seizure any minute. This, despite assurances and much improved stabilization after starting meds six weeks ago.