What if others say they're afraid you'll have a seizure?

@randallshields56 Correct, Dan, Randy. You'll know who your true friends are. I learned I had only 3 friends, out of about 15 with whom I routinely associated. I now know them as past casual acquaintances.

@randallshields56

Epilepsy has a long history of being stigmatized and misunderstood. And some people I think don’t want to deal with the disease because of the stigma involved instead of the straightforward medical issues. This can be hard for those of us with epilepsy to deal with.

@methel thank you for your post, yes i have watched a few videos and my daughter checks often for new information because or her health issues and possibly one day a grand seizure. they can be scary and her wife has studied long hours to help us both in times of need. spreading the word helps so that others can help when out and about. just like so many things that can go wrong, there is classes or multiple web sites you can visit and getting better every year. best we can do is to give who are worried, places on the web to check or videos or numbers to call. try to put their minds at ease. hope this helped.

@marianne72

I have been really lucky, I guess, because my kids who are local have seen me with a seizure and treat them as “ this is just what mom does”. ( It makes you wonder what other things I do they think are odd. ) I once electrified my church group with a generalized seizure, but the retired RN recognized it and knew how to handle it.
The epilepsy foundation has a video on their website showing you what to do for someone with a seizure. If you know someone who says they are worried about this, tell them to look for that video.

@randallshields56 It is very hard when seizures are started off by TBI's, tumours etc. It is hard to know what sets them off. There is a list a mile long of triggers. I know what you mean about too much in your head, or stress.

@marianne72 last comment tonight. your healing and improving. its taken me more than a year to get this far but im thankful for the journey and if anyone of your family has a question ill gladly respond to an email or chat here in the group. the mind has a remarkable way of healing. mot just brainwaves but the body. just have to believe and fight for what you want. Thank you so much 💓

would like to make a statement kind of off subject. my caregiver has increased her hours so i have her full days, makes it hard to react to notices that catch my eyes and medications, evening ones make me sleepy and not as fresh you might say, so going to try to catch a few in the morning a a few at night along with as many as i can on the weekends. Not sure of my near future yes with the hospital finding the cyst in my brain or what we have to do to fight it , but fight i will just be patient with me and i will respond as soon as able. thank you all so much for the likes and hugs an helpful. it means a lot .

another thing i have learned from the seizures both myself and daughter get is we both have different triggers. hers are usually because of too much going on in the brain and getting overheated. hers didn't start till she had her two kids. mine was from a tumor and too many head traumas .with bringing family on board was tough, but every obstacle i improved on regardless if i considered it a win or not. it was to them. i knew i was being watched 24/7 but they learned with me that i would let them know the minuet i was not feeling right. mad a big difference after a while, only one condition, had to have my phone with me always. what set mine off was too much input to the brain at a time. made me think to hard, i taught them patience and it paid off for all of us. now i think of what i want to say before i say it, makes good practice for speaking to anyone.

@marianne72
biggest issue i had was different types of seizures. my first ones and i did not know what they were, are called ground seizures. learned that just yesterday. since then i have had numerous types. Focal ones are for me the hardest. usually takes me three days of resting in bed to get back to normal. Thank you for your posting. and the like.

Thanks for the discussion. It helps me think of possible scripts I could use in the future. Biggest challenge I face now is family members in the house who live on pins and needles thinking I’ll have a seizure any minute. This, despite assurances and much improved stabilization after starting meds six weeks ago.