What if others say they're afraid you'll have a seizure?

@methel thank you for your post, yes i have watched a few videos and my daughter checks often for new information because or her health issues and possibly one day a grand seizure. they can be scary and her wife has studied long hours to help us both in times of need. spreading the word helps so that others can help when out and about. just like so many things that can go wrong, there is classes or multiple web sites you can visit and getting better every year. best we can do is to give who are worried, places on the web to check or videos or numbers to call. try to put their minds at ease. hope this helped.

@randallshields56 I appreciate your wisdom and encouragement, Randy. Thank you. It’s an unusual perspective to be grateful for the hard journeys but I believe it’s a right way. We have life today! With healing and hope. ❤️‍🩹 Grateful for your presence!

@marianne72 last comment tonight. your healing and improving. its taken me more than a year to get this far but im thankful for the journey and if anyone of your family has a question ill gladly respond to an email or chat here in the group. the mind has a remarkable way of healing. mot just brainwaves but the body. just have to believe and fight for what you want. Thank you so much 💓

@randallshields56 Correct, Dan, Randy. You'll know who your true friends are. I learned I had only 3 friends, out of about 15 with whom I routinely associated. I now know them as past casual acquaintances.

@marianne72 last comment tonight. your healing and improving. its taken me more than a year to get this far but im thankful for the journey and if anyone of your family has a question ill gladly respond to an email or chat here in the group. the mind has a remarkable way of healing. mot just brainwaves but the body. just have to believe and fight for what you want. Thank you so much 💓

@randallshields56 would add to that if my friend was concerned, id walk them through a couple scenario's. let them know you know how and what to do. who knows maybe say i have a health issue and don't want to scare you off if it rears its ugly head, i know how to handle this. I'm actually going thru something like this now, i told my friend the doctors are not worried and said they are working hard to get me on the right meds to keep my seizure's at bay. it helped calm her down enough we could visit more.

@royanthony that's sad so many but in reality so few. mine right now are mainly family or associated the others are too far away to just get up and go see, kind of reached that stage where life doesn't give you a lot of choices. right now just waiting on results to be read by doctor and go from there. what really is disturbing is i am the last one to know with my daughter taking over my primary care and life. I'm kind of like a shadow if anything were to happen to my daughter I'm not sure what would happen with me . fend for myself best i could I'm sure. my true friends i can count on one hand. that's life

@marianne72

I have been really lucky, I guess, because my kids who are local have seen me with a seizure and treat them as “ this is just what mom does”. ( It makes you wonder what other things I do they think are odd. ) I once electrified my church group with a generalized seizure, but the retired RN recognized it and knew how to handle it.
The epilepsy foundation has a video on their website showing you what to do for someone with a seizure. If you know someone who says they are worried about this, tell them to look for that video.

another thing i have learned from the seizures both myself and daughter get is we both have different triggers. hers are usually because of too much going on in the brain and getting overheated. hers didn't start till she had her two kids. mine was from a tumor and too many head traumas .with bringing family on board was tough, but every obstacle i improved on regardless if i considered it a win or not. it was to them. i knew i was being watched 24/7 but they learned with me that i would let them know the minuet i was not feeling right. mad a big difference after a while, only one condition, had to have my phone with me always. what set mine off was too much input to the brain at a time. made me think to hard, i taught them patience and it paid off for all of us. now i think of what i want to say before i say it, makes good practice for speaking to anyone.