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Can someone tel me about tarsal tunnel syndrome. Who, what doctor diagnosed them, and what treatment are available. Thank you.
Tarsal tunnel has to do with damaged nerves in the inner sides of the feet. It can be diagnosed by a foot doctor, and I think by a neurologist. An EMG can test for it. I think there is surgery for it if needed. Treated same as neuropathy with anti seizure drugs. Can be very painful. I have peripheral neuropathy in my feet, and tarsal tunnel was ruled out with an EMG that I had. Don't know anything more about it. Good luck, Lori Renee
Hi @summertime4 here is some more information on Tarsal Tunnel Syndrome: https://rarediseases.org/rare-diseases/tarsal-tunnel-syndrome/
Are you currently experiencing the associated symptoms?
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I am experiencing all the symptoms of Tarsal Tunnel Syndrome and have been for over 8 months. After a nerve conduction test I was diagnosed with peripheral neuropathy. Along with all the symptoms of neuropathy my left foot , toes, ankle and lower leg are swollen with sever pain 24/7 unless I take a pain reducer and then it is just less pain. I have been to 2 vein doctors and have varicose veins and venus insufficiency but was told this was not the cause of the swelling and pain. I was told I had lymphedema. I did not know what lymphedema was, but spent some time in that therapy for the swelling. Didn't work. Had a CAT scan and was told lymph nodes were not damaged and I had not had cancer that would have affected them. Seeing a neurologist because of neuropathy. She tells me she has NO Idea why my foot, toes, ankle, and leg are swollen, discolored and so painful. A neurologist mind you. Echp of heart was normal, orthopedic surgeon asked why I was there. (I was referred by the vein doctor???) I was referred to a rheumatoid doctor and have an appt Aug 6. Referred by neurologist. My primary care "I just don't know". Meantime my quality of life has reached a low. I am in pain and the neuropathy and swelling make me very unsteady on my feet. I did find Tarsal Tunnel Syndrome when I was told to be pro active by my neurologist and I have EVERY symptom described. I sent her a message on my portal saying I found this while being pro active and maybe I will hear back. I cannot and my family cannot believe that no doctor has been more active. I am . I really don't know where I am right now. Pain , more pain, depression and feeling left in the cold is really affecting me emotionally. Sorry for the rant.
I think you should see another neurologist. You almost sound like you could have complex regional pain syndrome. The swelling and discoloration is something that CRPS does, along with the neuropathy pain. Sometimes, CRPS is brought on by injury, or surgery. Have you been injured before your problems started? I am amazed that venus insufficiency is not connected to swelling. Anyway, getting a diagnosis can take a long, long, time. And treatment for nerve problems is very insufficient. Peripheral neuropathy patients who have pain as a symptom have it a lot, because treatments do not work very well. I take CBD drops, salve, and Kratom, which comes from trees or bushes in Asia. It helps with relaxation and pain, just like the CBD drops. I have also had Scrambler therapy that has lessened my pain, but has not taken it away. Good luck to you. Pain is horrid to handle on a regular basis. My heart goes out to you. Lori Renee
lorirenee1 I am thinking the same thing. I am definitely going to another neurologist I like the lady I am seeing but she is not moving anywhere out of her space They all say including her that something is wrong but no one know what and can't seem to even make a referral to someone who might. At first it was the possibility of an autoimmune disease which is the reason for the rhumatolagist, They say well this will cause swelling but not pain or this will cause pain but not swelling. There certainly something that causes pain and swelling. Thank you for your input. I will check on the CRPS.
I reread your messages, and I am thinking that Physical Therapy might be helpful to you also. Or you can look on youtube, and check out exercises for balance. Balance exercises work tremendously, and if you do them regularly, you will be more stable on your feet. By the way; many Neurologists know nothing about CRPS. I would check for it. Best wishes. I know how pain changes your life. It is unbelievable. Lori
Thank you Lori and you are right about the pain. I am also going to get an appt with a podiatrist What the heck Also will ask my pain management doc about the neurologist on board with them. He was where I was going and then my primary care doctor referred me to the current one. Always good to get another view on things or maybe just a picture. I am now having anxiety. It will get better I write 100 times on lined paper. ha ha.
Talk about being a crazy lady….sometimes when the pain in my feet is very bad, I move my feet around like crazy, over and over and over. It changes the sensations, for the better. It tricks the nerves, or something. Or it plays with the brain. So writing 100 times is not crazy. Whatever works, or distracts!!!! Lori Renee
You don't have to feel sorry for ranting. It is very helpful to you. While we all have different levels of neuropathy and pain, we are all here to support, listen and care about you when others seem to not do so. All my very, very best to you to find the answers you are seeking. By the way, I am very pro-active as well. My husband is a retired research scientist and we both agree, science just really isn't a science anymore.
I was diagnosed with TTS back in the summer of 2006. I had the TTS release along with the Morton’s Neuroma in Jan 2007.
I suffered tingling & burning within 6 months post-op. My life changed… dealing with the pain 24/7 it did take control of my life & mood.
Fast forward to January 2016. I had a relative tell me about Black Seed Oil. I gave it a try. I have been doing the turmeric, cinnamon, BLack Seed Oil (BSO), black pepper concoction for 4 years now. I am pain free now. Since 2016 I have been pain free. I feel nothing.
The recipe is all over YouTube.
I personally do a swig of orange juice, or green tea. I sprinkle a tspn of turmeric, dash of cinnamon, sprinkle pepper (lemon juice is optional) & I hold this in my mouth (head tilted). I then take a tspn of BSO & drop it in my mouth. I do this twice per day… first thing that goes into my body in the morning, & the last thing that goes into my body at bed time.
Heaven sent for those that suffer from TTS.
I realize I am replying well past a year after you made your post. You may have things all figured out by now. 🙂 I kind of hope so! However, just in case my experience would be helpful to you I thought I would share it. I was just up at Mayo in November of 2020 to have a spinal consult And a neurological workup. I was diagnosed with large and small fiber neuropathy. Everything was worse on the left then on the right and there seem to be a concentration around the tibial nerve. At this point no one mentioned tarsal tunnel syndrome. They did, however, tell me that some of my symptoms were not typical of peripheral neuropathy and recommended I see a foot and ankle surgeon. I had already seen three different podiatrists with no Solutions. I saw the Foot and Ankle surgeon two weeks ago. He tapped four different places on my leg and sent me through the roof. This is when he told me about tarsal tunnel syndrome. He said the nerves are pinched or something. He said that my EMG supports the tarsal tunnel diagnosis but no one at Mayo mentioned it. Maybe because my nerves work just fine until you tap on them. Nobody talked on those nerves, they only stuck needles and some of them. Not that that is an experience I enjoyed! I am still trying to figure out how to put all of this information together into a treatment plan and I imagine I will bounce between my foot and ankle surgeon and my neurologist for a few more appointments before that is all taken care of. My foot and ankle surgeon mentioned that surgery is a possible solution but I have some minor color changes and swelling in that left foot that leads him to believe I could have some minor CRPS. Doing surgery on a body part that has any form of CRPS is a bad idea if you can avoid it. Let me know if you have an update or have found some solutions. 🙂
Hi Jeanniem, after reading your symptoms and diagnosis I am guessing your surgeon was referring to peroneal nerve decompression surgery? I have read of an account on Facebook of someone with similar symptoms minus the CRPS and comparing it to carpal tunnel surgery and it did not sound very invasive, just a few incisions above her ankle to release the nerve and she is 80% improved. Sorry if this is redundant I just wanted to share her success story. Helen
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