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Illusive Diagnosis, Pain Increasing

Bones, Joints & Muscles | Last Active: Sep 3, 2023 | Replies (39)

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@erikas

@jeanniem Welcome to Mayo Clinic Connect, a place to give and get support. You have been diagnosed with small and large fiber neuropathy that has a skeletal muscular component. You are looking to connect with members for support and information.

Below I have linked a couple discussions you may find helpful and I have tagged helpful members in those discussions.

Members from neuropathy group @kp6350 @helennicola @bkelley5 @lorirenee1 @summertime4
- Tarsal tunnel syndrome https://connect.mayoclinic.org/discussion/tarsal-tunnel-syndrome/

Members from Chronic Pain @faithwalker007 @londonwc1 @nlong53 @smallengineguy @sunnyflower
- Want to talk with others. Have you found relief from CRPS? https://connect.mayoclinic.org/discussion/crps-2/

You will also notice that I added this question to those groups as well.

It doesn't sound to me like you would be viewed as a hypochondriac. May I ask if you received any feedback that has lead you to fear this perception?

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Replies to "@jeanniem Welcome to Mayo Clinic Connect, a place to give and get support. You have been..."

Jeanniem, erika, I am afraid I won’t be of much help here as I’ve been diagnosed with bi-lateral carpal tunnel for which I wear wrist braces at night. I believe both can be associated with neuropathy. I don’t experience any other muscular/ skeletal issues. I do hope you have success in getting to the cause of your pain soon and are able to alleviate it. Not knowing is frustrating. Helen