If stress causes my seizures, why do they continue when not stressed?

Posted by baa @baa, Sep 30, 2024

My neurologist just wrote in a visit summary my seizures were likely caused by stress. If so, why have the seizures continued when I am not stressed? I do not understand.

Interested in more discussions like this? Go to the Epilepsy & Seizures Support Group.

Profile picture for Chris Gautier, Volunteer Mentor @santosha

Hi @baa
I am praying for you, crossing my fingers that very soon you will be called to the Vanderbilt Epilepsy Monitoring Unit.
Meanwhile, try to enjoy life and the present moment, though I know how hard this could be. When we get anxious about something, it usually does not help. It seems, according to my life experiences, that me more anxious we get about something, it somehow blocks energy, and things do not happen.
No creating expectations in your situation can be quite hard. In difficult times during my epilepsy journey, my yoga teacher gave me a daily exercise, which helped me quite a lot, something I try to keep daily up to today. She said to think about three contentments at the end of the day. At first, I could only celebrate having no seizures during the day, but little by little, I could see other contentments in my day. It is an exercise that helps us see the glass half full instead of half empty and celebrate what we have in the present moment, instead of thinking about what we do not have and wish to happen. Give it a try!
Wishing you all a beautiful day!
Chris (@santosha)

Jump to this post

Chris, I found the book on Amazon used, so more affordable for me. Thank you for the reference!
Have a great day!

REPLY

My pleasure @baa ! I hope this workbook helps you like it did help me.
Regarding expectations, I have just remembered the quote from Clarice Lispector, a respected Brazilian writer. One of my yoga teachers uses this quote with us a lot, to exemplify that creating expectations with regard to attaining a certain level of meditation just avoids attaining such a stage. I believe this principle applies to many things in life.
"When I concentrate, I concentrate without wanting to and without knowing how I can do it, but I can do it independently of myself. Or rather: it happens. But when I want to concentrate myself, then I get distracted and lose myself in the "wanting" and I only start to feel the wanting that is the objective. And concentration is not achieved. The desire has to be hidden or it will kill the vital nerve of what is wanted."
Clarice Lispector
Chris (@santosha)

REPLY
Profile picture for Chris Gautier, Volunteer Mentor @santosha

Hi @baa
A very good morning to you.
Stress is known to be one of the major triggers to seizures. Perhaps you continue to have seizures for different reasons: medications and other seizure triggers. What is again your type of epilepsy? I ask that because there are some types of epilepsy that have a higher rate of being refractory (drugs do not control 100% of the seizures), like Temporal Lobe Epilepsy with Mesial Sclerosis (the one I have).
Have you been sleeping well? Sleep is another very common trigger of seizures. For some people heat can also be a trigger and I know it has been pretty warm over there.
Learning about my triggers has helped me a lot to manage and avoid my seizures. I recommend the book "Taking Control of your Seizures". Here are two links with more information on this book:
https://global.oup.com/academic/product/taking-control-of-your-seizures-9780199335015;
https://www.amazon.com/Taking-Control-Your-Seizures-Treatments/dp/019933501X/ref=sr_1_1
Wishing you a good day!
Chris (@santosha)

Jump to this post

@santosha Does the book "Taking Control of your Seizures" Talk to just "grand Mal" seizures or partial onset as well?

REPLY
Profile picture for noshit45678 @noshit45678

@santosha Does the book "Taking Control of your Seizures" Talk to just "grand Mal" seizures or partial onset as well?

Jump to this post

@noshit45678
Good Morning
My understanding is that this approach is for every type of seizure!
I share here some resources that might interest you:
Stopping Seizures Before They Occur: The Andrews-Reiter Approach and Beyond


Epilepsy Conference Toronto - The Andrews-Reiter Approach
https://epilepsyconference.com/aboutar.html
Andrews-Reiter Website
https://www.andrewsreiter.com/index.html
What kind of seizures do you experience?
Chris
Chris

REPLY
Profile picture for Chris Gautier, Volunteer Mentor @santosha

@noshit45678
Good Morning
My understanding is that this approach is for every type of seizure!
I share here some resources that might interest you:
Stopping Seizures Before They Occur: The Andrews-Reiter Approach and Beyond


Epilepsy Conference Toronto - The Andrews-Reiter Approach
https://epilepsyconference.com/aboutar.html
Andrews-Reiter Website
https://www.andrewsreiter.com/index.html
What kind of seizures do you experience?
Chris
Chris

Jump to this post

@santosha the workbook from Andrews-Reiter looks fascinating. Not affordable for me but going to keep checking for good used ones!

REPLY

@baa
Hi Brenda!
I know it's not a very cheap book, but still, it's very worthwhile. Looking for good used ones is an excellent idea! You will not regret the investment!
Chris

REPLY
Please sign in or register to post a reply.