Idiopathic neuropathy and dizziness.
I have been diagnosed with idiopathic neuropathy. Came on suddenly 8 months ago. The last 8 months have been many doctors appts to find no cause. I also just do not feel well. Dizzy like.
Head feels heavy and just not right! Not one doctor can answer that. I really feel like there is something going on in my body but no one can figure it out! It’s seems like neurologist came up with the idiopathic name since it can’t be figured out. I am only 53 and have otherwise been very healthy and active, Life has sure changed. Anyone else feel dizzy? Feel generally bad?
Seven months ago I began to feel sweaty and clammy all over my entire body, all the time. Sometimes at night when I am very still I do not feel sweaty and clammy, but it returns as soon as I begin to move around. I have had a stress heart attack and suffered a TBI in a car accident four years ago, along with fractures of neck and back and ribs. I have been dizzy ever since with sometimes experiencing a vasovagil lightheadedness with nausea.
A neurologist recommended an autonomic reflex screen, but a provider here in the Phoenix area refuses to treat people with my Humana Medicare coverage. I would like to get a Mayo apt. Either in AZ or MN where we live six months of the year. How can I go about that? By the way, your post as been the only one in all these months that led to an understanding of what might be going on with me, since nobody else can figure it out after many labs and appointments.
Hello @lakelifelady, If you would like to seek help from Mayo Clinic, contact one of the appointment offices. The contact information for Minnesota, Arizona and Florida can be found here http://mayocl.in/1mtmR63. Also,you can find out more about billing and insurance at Mayo Clinic here:
http://mayocl.in/2kk2hF8
Have you been to Mayo Clinic before?
Thank you John Bishop. Yes, I was an Endocrinology patient a while back at Rochester. I will pursue your links.
@ealanddtc – since you mentioned being a caregiver, I wanted to encourage you to check out the Connect Caregivers group when you have a moment https://connect.mayoclinic.org/group/caregivers/. It may have some topics of interest to you.
When will your friend's spinal tap take place, and when do you hope to have results?
Did the Scrambler machine help at all? I was thinking of trying it. You sound so diligent in trying so many things. It is exhausting, and an absolute quest. My best to you in your search. Lori Renee
It did not help me, but pain is not my issue. It does seem to help most people, but there are not many places doing it.
Now I am totally confused. Why did you do the Scrambler if pain was not your issue? I thought that was the reason people did it. What did not work for you and the Scrambler machine? I do have access to the machine, and was thinking of using it for very painful foot neuropathy. Any info would be very much appreciated. Lori Renee
I read articles about it, some of which suggested it might help with other symptoms, so I contacted Dr. Thomas Smith at Johns-Hopkins. He thought it was worth a shot, so he referred me to Dr. Stephen D’Amato, who has offices in Providence and Bonita Springs, FL. I went to Florida. Dr. Smith said if it didn’t help by day four it was not going to. It didn’t.
Everything I read said it does help with pain, so if you have access give it a shot!
So I went to local chiropractor that took xrays of my back. When I came back to get the results he said that my spine was out of alignment and needed adjusted. (I have already had an MRI with an orthopedic dr. Which was fine.) Along with take home red light therapy and a rebuilder therapy knee strap. Three months of therapy for $6433. And of course insurance doesn’t cover this. The doctor sounds so convincing that he can help. Has anyone had any luck with treatment of this kind? Pain is an awful thing and I want to try anything for it to go away! But I don’t want to throw my money and time away.
Thanks so much for getting back to me! I am going to do a bit more research, and I am pretty sure I will be doing it. Sorry it did not work for you. At least you tried! Lori R.
If an orthpedic told you, after an MRI, that it looked fine, do NOT go to a chiropractor who tells you your spine is out of alignment. If you needed therapy wouldn't the doctor have told you that?
I tried red light. It did nothing for me.
With severe neuropathy of feet, ankle and leg, the only dizziness I have is only disbalance from numb feet/toes.