Chris Trout, Volunteer Mentor
@artscaping
@artscaping
Posts: 1636
Joined: Jul 11, 2017
Icy feet and ankles with Small Fiber Neuropathy....anyone?
Hello neuropathy friends. I am looking for information that talks about ice in your feet and ankles from Small Fiber Polyneuropathy. Recently, my feet feel like they have been hanging over the edge of a chair in a bucket of ice. No pain, unless you think freezing feet is painful. Just mysterious. I have had hot and painful but not cold and freezing. Toes still have the tingles and bottoms of feet are numb. Just can't get rid of the cold, cold, cold.
May you have peace and ease today.
Chris
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John, Volunteer Mentor
@johnbishop
@johnbishop
Posts: 7486
Joined: Mar 22, 2016
Chris @artscaping, I've wondered if it might be that the small fiber neuropathy makes it hard to differentiate between cold or hot. I have had times when my feet were telling they were freezing even though I could touch my feet with my hands and they didn't feel cold…weird. I did find an article that mentions it.
Cold Feet That Aren’t Cold to the Touch May Indicate Neurologic Problem: https://newsnetwork.mayoclinic.org/discussion/cold-feet-that-arent-cold-to-the-touch-may-indicate-neurologic-problem/
steeldove
@steeldove
@steeldove
Posts: 259
Joined: Jul 31, 2017
Chris @artscaping, I've wondered if it might be that the small fiber neuropathy makes it hard to differentiate between cold or hot. I have had times when my feet were telling they were freezing even though I could touch my feet with my hands and they didn't feel cold…weird. I did find an article that mentions it.
Cold Feet That Aren’t Cold to the Touch May Indicate Neurologic Problem: https://newsnetwork.mayoclinic.org/discussion/cold-feet-that-arent-cold-to-the-touch-may-indicate-neurologic-problem/
Same here, John. My feet "think" that they're freezing, but they're not cold to touch. Weird!
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rwinney
@rwinney
@rwinney
Posts: 1628
Joined: Apr 28, 2019
Hi Chris @artscaping . I join the cold feet club! Often a normal cold but then there is the burning cold. I have no numbness and can sense temperature differences but, go through frozen feet Syndrome (as I call it). Winter is brutal…sherpa lined slippers/boots (bigger size) over loose fuzzy socks. But, when my feet hurt and have pressure and cant be confined I use my microwave heat pack to bring them back. My heat pack is the best, cheapest investment. That and self massage to get those nerves functioning. Have you tried warming massage oils or creams? It happens to me in the summer as well and my feet still turn purple (but not as often as last year). 👍🏻 Hope this helps your little piggies. Be well- Rachel
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rwinney
@rwinney
@rwinney
Posts: 1628
Joined: Apr 28, 2019
Hi Chris @artscaping . I join the cold feet club! Often a normal cold but then there is the burning cold. I have no numbness and can sense temperature differences but, go through frozen feet Syndrome (as I call it). Winter is brutal…sherpa lined slippers/boots (bigger size) over loose fuzzy socks. But, when my feet hurt and have pressure and cant be confined I use my microwave heat pack to bring them back. My heat pack is the best, cheapest investment. That and self massage to get those nerves functioning. Have you tried warming massage oils or creams? It happens to me in the summer as well and my feet still turn purple (but not as often as last year). 👍🏻 Hope this helps your little piggies. Be well- Rachel
Do you have myofacial release on your feet? I do and I'm wondering it that also may help you??
Chris Trout, Volunteer Mentor
@artscaping
@artscaping
Posts: 1636
Joined: Jul 11, 2017
rwinney
@rwinney
@rwinney
Posts: 1628
Joined: Apr 28, 2019
Hi Rachel, thanks for the question. Yes I have MFR on my feet so I can drive. I will talk to my therapist and see what she can do. Never thought of MFR. You are so on it.
Chris
👍🏻
maryflorida
@maryflorida
@maryflorida
Posts: 106
Joined: May 10, 2020
I am so glad this topic came up! Only the last two weeks have I had the freezing feet. One time I took two vicodins for the pain (usually only one) also Benadryl, also heating pad, electric blanket and husband gently massaging. It took two hours for me to quit hurting so I could sleep. My doctor has not finished testing me so she is unsure if it is sfn, but a doctor ten years ago said it is. But the cold cold feet is new and I am glad to know that might indicate a real diagnosis finally. Thanks!
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oldkarl
@oldkarl
@oldkarl
Posts: 689
Joined: May 25, 2016
I am so glad this topic came up! Only the last two weeks have I had the freezing feet. One time I took two vicodins for the pain (usually only one) also Benadryl, also heating pad, electric blanket and husband gently massaging. It took two hours for me to quit hurting so I could sleep. My doctor has not finished testing me so she is unsure if it is sfn, but a doctor ten years ago said it is. But the cold cold feet is new and I am glad to know that might indicate a real diagnosis finally. Thanks!
@maryflorida, My feet are cold all night. But thanks to a warm cat, acetaminophen PM, Prazosin and Tramadol, and my ResMed BiPap,I sleep pretty well most nights.
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maryflorida
@maryflorida
@maryflorida
Posts: 106
Joined: May 10, 2020
I have the same cold feet people here are talking about. Sometimes they actually are freezing cold but I think they are cold pretty much all the time – like a burning cold. In the winter the rest of my body like the room fairly cold so my feet get so cold I can't get to sleep unless I warm them up with a heating pad that I wrap around my feet. I have to be careful though not to burn my feet!
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maryflorida
@maryflorida
@maryflorida
Posts: 106
Joined: May 10, 2020
rwinney
@rwinney
@rwinney
Posts: 1628
Joined: Apr 28, 2019
Are hands in the same catagory as fet? Sometimes my hans feel as though theirm temp is around 10 degres C
Yes, no discrimination against hands. 🙂
avmcbellar
@avmcbellar
@avmcbellar
Posts: 435
Joined: Jan 18, 2019
I have the same cold feet people here are talking about. Sometimes they actually are freezing cold but I think they are cold pretty much all the time – like a burning cold. In the winter the rest of my body like the room fairly cold so my feet get so cold I can't get to sleep unless I warm them up with a heating pad that I wrap around my feet. I have to be careful though not to burn my feet!
Hi @offthegrid I too experience cold and hot with both my hand and feet. My neuropathy is not bilateral only the left side is affected. It is important to find out the cause of the condition, if possible, to help stop the progression. My cause was the surgery to repair my ruptured AVM. So my condition is NOT ongoing for the neuropathy to worsen. Sorry to hear you are experiencing those awful symptoms. Perhaps a circulation problem is hindering the nerves with the proper nutrition for them to keep living. My blood supply was cut off thus killing my nerve cells. The reaction is for the remaining nerves to become excited causing the hot and/or cold feeling. I too have to cover or uncover my leg and arm. Doing exercises improves the circulation and may help with your neuropathy. I feel exercise has helped me but it is a slow process. @johnbishop and others do exercises as well for regenerating nerve cells. Each case is different so be patient in learning how to help yourself. Glad you are asking the questions. We will gladly help in any we can. Wish you the best!
@steeldove
@artscaping The first symptom of SFN I experienced back in June 2016 was cold feet, and that's continued as a constant.
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