ichthyosis vulgaris

Posted by healthiswealth1 @healthiswealth1, May 5, 2019

Good morning,

I have been suffering with x linked itchthyosis since childhood. As I have done some extensive research on x linked Ichytosis vulgaris, I am aware that gene therapy is emerging in treating these particular rare skin disorders. Skin products unfortunatley have had little resolution
And ufortunatley do not remedy the root cause which of course comes from a defective gene. My question currently is if mayo clinic is conducting any clinical trials trials in regards to genetic therapy on itchytosis or related skin disorders?

Thank you for reading.

Interested in more discussions like this? Go to the Skin Health Support Group.

Ethan McConkey, Moderator | @ethanmcconkey | May 5, 2019

Hi @healthiswealth1 that must be frustrating that skin products have provided little resolution.

Here is a clinical trial Mayo is doing involving studying tele-ichthyosis consultations: https://www.mayo.edu/research/clinical-trials/cls-20305163

If you would like to do some more research into ongoing clinical trials at Mayo you can search into them here: https://www.mayo.edu/research/clinical-trials

How are you currently being treated?

Please sign in or register to post a reply.