IBS, CFS, or autoimmune
I wanted to reach out regarding a snopysis of my symptoms in the hopes of figuring out where to go next. I am a 39 year old female that used to run 10-15 miles per week. My symptoms include stabbing pain under my left rib cage that will move across my abdomen to just above my belly button. The pain is there everyday. Sometimes it’s manageable and other times its excruciating. Also, I regularly have nausea, dizziness, diahhrea or constipation, ear pain, headaches in the back/middle part of my head, brain fog, foggy vision, chills/feel cold without a fever, low blood pressure, and muscle fatigue and spasms. I also have extreme fatigue yet also have periods of time where my body just won’t shut down leading to periods of sleepless nights. This has been going on for the better part of 2 1/2 years. I have had tons of bloodwork performed, brain scan, MRCP of abdomen, food allergy and sensitivity testing, colonoscopy, endoscopy, thyroid testing. Everything has come back normal except my lipase level is non-existent and my secretory IgA level is low and autoimmune gastritis. Also from 2 years ago until now…I’ve developed severe allergies to environmental items and also some food allergies (yeast, peanuts, tree nuts). I’ve also worked with a nutritionist and figured out that the only relief I get is if I eat just plain boiled potatoes and baked chicken. I’ve been eating that for the better part of 5 months but know long term it’s not healthy/sustainable. My GI doc has settled on IBS. I’m not totally convinced because of all of the “other symptoms” and the fact that ALL food seems to aggravate whatever this is. Yes, even white and brown rice, quinoa, oatmeal, gluten, milk, soy, bananas, sweet potatoes. All food period. I’ve been referred to our university healthcare system but can’t get an appointment (yes…even with doc referral) because of COV-19. Also, as a background I had really bad food poisoning about 3 years ago and had my appendix and gall bladder removed. I’ve lost 20 pounds since Oct 2019 and am flirting with being underweight. The only medicines I take are VSL #3 (probiotic) because I can’t tolerate even yogurt, lots of multivitamins, and a pancreatic digestive enzyme supplement. I even can’t take Tylenol or ibuprofen for the headaches because it flares the diahhrea. I can’t shake the feeling that something more is going on given the development of allergies, etc. It just feels like a complete breakdown of my immune, digestive, nervous systems etc.