@januaryjane- I have a couple of thoughts. With the recent cramps, bloating and diarrhea you could have SIBO Small intestinal bacterial overgrowth. Many of us with IBS experience this. There is certain meds for this - Xifaxan for example. When I get it bad I feel pretty sick. With the facial redness you could have celiac disease- you may have been tested already. Food allergies can give you very similar symptoms. I think this is serious enough to discuss with your doctor. It has a negative impact on your life. Maybe you could have a tele visit?
Yes, ive talked to drs about sibo, had a breath test, was hydrogen positive. He put me on an antibiotic, not xifan, and it made jt worse. He was not a helpful guy, so i didnt pursue him. I mentioned something to my gastro dr, she didnt seem concerned. So i dunno. Ive been tested for celiac and do not have it.
Hi @januaryjane, sorry to hear you are having multiple flare ups of IBS. Is the red face more of a flushing feeling where you feel like you are getting hot and your face turns red or is it more of a constant splotchiness to the face that just hasn't gone away?
Its a complete redness covering my face, most of the time at that point. Its gone now and stomach is calmer. but i continue to have symptoms of erythromelalgia. Hoping to be seen for this.
I have ibs and slow-transit constipation. Ive been having one flare after another of ibs. My face has been red a alot past few days. Im just wondering if theres a connection. Not sleeping good, have some hot/cold and chills. My dr. gave me an antispasmodic, and my stomach quieted down a few hours. Its back, especially if i eat. Im really not sure what to do. Im not sure if its something to be seen for.I dont have any "serious" symptoms as they would say. I just cant eat...having pain, cramping, bloating,gas, burping, a little diarrhea and also constipation. Its been a month now and its hard to function at my normal.
Thank you Amanda for the article. This could be a possibility, i will ask about it. I never used to be sensitive to dairy, now i have to be careful. Lactose free is what im trying now, almond milk doesnt agree, not supposed to have soy. I just limit what i eat, and sometimes thats anything but water! Ive been feeling much better with my stomach though!!
Gracious sakes alive, I don't care what they call it.. squatty, potty, sp, squat pot or "the thing you can't live without".. it works! My physical therapist told me about it. I swear, that man knows me more than I know myself and he was talking to me one day all about this professional development class he took where he learned all about it. Naturally, I had to have one. Whatever that fella says, you can take to the bank so I figured if he said it, it would work. Course, he talked about it with great class whereas I, being an elementary teacher, brought it down to reality and funny when I realized it involved poop. Well now, it was great until I realized I'd have to go into a store to buy it. I found it at Bed, Bath, and Beyond (though smart folks get it online and save themselves from the embarrassing trip to the store). Me though.. I hadn't thought it through until the moment I had it in my arms marching like a confident person to the cash register. The confidence zip left me and on the fly, I came up with a great story about how I was buying it for the local nursing home. The lady who checked me out had that smirk of a look that says "uh-huh, right you are". Sheepishly I took it home and after experiencing it 1-1, I was so impressed, I bought one for each of my siblings and my nieces. Yup, for their Christmas gifts to boot. Nobody would tell me what they wanted for Christmas, and I was plumb wore out from asking so I decided to be the "I'm gonna save your colon lady" and got every single person one. That was over 5 years ago and to this day, I get Christmas lists from everyone a good month before Christmas. Imagine that! This thing works so well though, I splurged and got the fancy-looking version - you know, the type that says "I know I'm a squatty potty but I want to be too stylish to admit it". Then, when I realized I had to travel, as in leave my house to go to another city for medical appointments, I bought the travel version. With no shame now, I tell every single living soul about this gift from heaven. No longer do I lecture folks on food, nutrition, and exercise, but now I start off with my love version of that miracle called the squatty potty. Yup, they laugh too but I swear, I've had neighbors come to my house asking if I had extra ones they could have. Truth. And low and behold, just take a wild guess what you can find in all of my sibling's bathrooms and my niece's bathrooms too... Be a smart person though and use it in addition to proper exercising and great nutrition. This thing is wonderful but there are limits to its miracle power and you eating naughty and not consistently exercising and yet expecting a miracle from this thing is gonna test the limits of its miracle power. Just sayin.
Gracious sakes alive, I don't care what they call it.. squatty, potty, sp, squat pot or "the thing you can't live without".. it works! My physical therapist told me about it. I swear, that man knows me more than I know myself and he was talking to me one day all about this professional development class he took where he learned all about it. Naturally, I had to have one. Whatever that fella says, you can take to the bank so I figured if he said it, it would work. Course, he talked about it with great class whereas I, being an elementary teacher, brought it down to reality and funny when I realized it involved poop. Well now, it was great until I realized I'd have to go into a store to buy it. I found it at Bed, Bath, and Beyond (though smart folks get it online and save themselves from the embarrassing trip to the store). Me though.. I hadn't thought it through until the moment I had it in my arms marching like a confident person to the cash register. The confidence zip left me and on the fly, I came up with a great story about how I was buying it for the local nursing home. The lady who checked me out had that smirk of a look that says "uh-huh, right you are". Sheepishly I took it home and after experiencing it 1-1, I was so impressed, I bought one for each of my siblings and my nieces. Yup, for their Christmas gifts to boot. Nobody would tell me what they wanted for Christmas, and I was plumb wore out from asking so I decided to be the "I'm gonna save your colon lady" and got every single person one. That was over 5 years ago and to this day, I get Christmas lists from everyone a good month before Christmas. Imagine that! This thing works so well though, I splurged and got the fancy-looking version - you know, the type that says "I know I'm a squatty potty but I want to be too stylish to admit it". Then, when I realized I had to travel, as in leave my house to go to another city for medical appointments, I bought the travel version. With no shame now, I tell every single living soul about this gift from heaven. No longer do I lecture folks on food, nutrition, and exercise, but now I start off with my love version of that miracle called the squatty potty. Yup, they laugh too but I swear, I've had neighbors come to my house asking if I had extra ones they could have. Truth. And low and behold, just take a wild guess what you can find in all of my sibling's bathrooms and my niece's bathrooms too... Be a smart person though and use it in addition to proper exercising and great nutrition. This thing is wonderful but there are limits to its miracle power and you eating naughty and not consistently exercising and yet expecting a miracle from this thing is gonna test the limits of its miracle power. Just sayin.
@livefully OMG. I’m dying!!! This is one of the funniest endorsements for a product I’ve ever seen! I read it out loud to my visiting family members and we applauded your writing and creativity and obviously happy colon!
Welcome to Mayo Clinic Connect. I hope we see more of you here. Do you have IBS-C (irritable bowel syndrome with constitution for those not ‘in the know’…or ‘in the go’)?
What brought you to Mayo Clinic Connect? Were you searching for a particular subject?
There are over 70 Groups in our wonderful community. We’re not medical professionals but people just like you who Connect with others. We share our stories, experiences and journeys to provide answers, encouragement or support for each other.
Here’s a link to some good tips for getting starting using the forum. https://connect.mayoclinic.org/get-started-on-connect/
Do you have any questions or concerns? Don’t hesitate to pop back in.
With great enjoyment, Lori
Hello @livefully, I do agree with Lori, @loribmt, about your laugh-out-loud post about the squatty potty. It was really delightful!
I went to a pelvic floor therapist and heard about it from her. I didn't have the courage to go buy it. Maybe I'll do the online order.
Here is a link where you can find other discussion groups on Connect, https://connect.mayoclinic.org/groups. I hope you can find some other discussions to be a participant in.
Thanks again for joining Connect. If you care to share: what brought you to Connect?
@livefully OMG. I’m dying!!! This is one of the funniest endorsements for a product I’ve ever seen! I read it out loud to my visiting family members and we applauded your writing and creativity and obviously happy colon!
Welcome to Mayo Clinic Connect. I hope we see more of you here. Do you have IBS-C (irritable bowel syndrome with constitution for those not ‘in the know’…or ‘in the go’)?
What brought you to Mayo Clinic Connect? Were you searching for a particular subject?
There are over 70 Groups in our wonderful community. We’re not medical professionals but people just like you who Connect with others. We share our stories, experiences and journeys to provide answers, encouragement or support for each other.
Here’s a link to some good tips for getting starting using the forum. https://connect.mayoclinic.org/get-started-on-connect/
Do you have any questions or concerns? Don’t hesitate to pop back in.
With great enjoyment, Lori
@livefully ooops! Thanks auto correct…that was supposed to be constipation not constitution. I guess auto correct was thinking about the 4th of July holiday. LOL.
While I'm dealing with AFib I need to join a conversation on Uncontrollable bowels every morning. It's been going on for months. I seem to lose about 8oz a day. I thought I needed more fiber so added Psyllium Husk. Eating high fiber foods. Added magnesium but that seemed to make it worse. At least it's still light brown in color. I'm happy about the weight loss, but I feel like it's an unhealthy way. Can anyone guide me? Grandmajan
@livefully OMG. I’m dying!!! This is one of the funniest endorsements for a product I’ve ever seen! I read it out loud to my visiting family members and we applauded your writing and creativity and obviously happy colon!
Welcome to Mayo Clinic Connect. I hope we see more of you here. Do you have IBS-C (irritable bowel syndrome with constitution for those not ‘in the know’…or ‘in the go’)?
What brought you to Mayo Clinic Connect? Were you searching for a particular subject?
There are over 70 Groups in our wonderful community. We’re not medical professionals but people just like you who Connect with others. We share our stories, experiences and journeys to provide answers, encouragement or support for each other.
Here’s a link to some good tips for getting starting using the forum. https://connect.mayoclinic.org/get-started-on-connect/
Do you have any questions or concerns? Don’t hesitate to pop back in.
With great enjoyment, Lori
So glad you enjoyed it. I figure laughter is the best medicine and if I can laugh about things, then I'll just keep getting better and better. Gracious, Ive had enough poop trauma and all other sorts of challenges that at some point you just have to laugh about it all.. its too unreal and your like "nobodys gonna believe this" so you at some point just have to laugh. Yeah, IBS is one of my diagnoses.. I got that diagnosis at age 17 which has been eons ago. (yikes!). Over the years, Ive been diagnosed and misdiagnosed with a lot of stuff. It's been a trip! Mayo is my 3rd research hospital and light-years different from anything I've experienced so far. Its been a great experience so far. It feels like my life has been one long process of physical challenges.. Ive experienced lots of bad medical care along the way but also some really great medical folks and care for which Im grateful. In the meantime, Ive also done everything I can think of to support health - you name it, I feel Ive done it. Clay baths, supplements, detox whatever, vegan, vegetarian, Paleo, grass-fed meats, sweat baths, etc etc. When your told over and over that you are "complicated" and "hard to figure out the medical" you tend to try anything you can on the side to help. When you also collect a gazillion diagnoses its like "forget it, I'll figure it out myself" (which is a joke). It was my stepbrother and physical therapist who encouraged me to give the medical field one more go of it and they suggested Mayo. So, my sister and I packed up the car and I called Mayo and was like "here I come ready or not". 🙂 For my upcoming third trip to them, I have a muscle biospy and in the meantime, after seeing 4 other departments there, Im working with the Integrative department. My challenge is gaining and keeping on weight. Mayo did figure out I have EILO (exercise-induced laryngospasm) and working with the speech therapist at Mayo, Ive got that more under control now which has been life-changing. Apparently my left vocal cord is smaller than my right which is quite the fun... The muscle biospy will tell us if there is a neuro component going on and if not, then the issue lies in the gut field. In the meantime, theyve had me start on the elemental diet and from there I'll transition to the SCD diet. Thats to get my SIBO under control. I keep struggling with SIBO which keeps me in a constant state of malnutrition. The bright side out of it is that Ive learned to become a really, really great alternative cook. I can make some mean mouth-watering meals. I will do anything to keep weight on.
I found Mayo Connect through the Mayo website. I tend to get crusty when folks try to tell me the latest "cure" or thing I should do. Im like "um, no way. Unless youve dealt wtih it yourself and are completely legit you just take your crazy ideas and head back the way you came". I figured people who post on Mayo connect are real patients who actually deal with the stuff so that was a plus. And I figured they were legit with it being Mayo and all. That was a huge draw. So here I am, pouring through the different forums and posts and gleaning info.
In the meantime, I enjoy writing. If I can write something from my experiences that makes me laugh and others laugh, then I figure the holy heck of whatever that experience was had some silver lining to it...
Cheers to you and thanks for the welcome. 🙂
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Yes, ive talked to drs about sibo, had a breath test, was hydrogen positive. He put me on an antibiotic, not xifan, and it made jt worse. He was not a helpful guy, so i didnt pursue him. I mentioned something to my gastro dr, she didnt seem concerned. So i dunno. Ive been tested for celiac and do not have it.
Its a complete redness covering my face, most of the time at that point. Its gone now and stomach is calmer. but i continue to have symptoms of erythromelalgia. Hoping to be seen for this.
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1 Reaction@januaryjane Has your physician looked into Carbohydrate Malabsorption? Here is a study that I came across. It is lengthy, but has some interesting information. https://www.ncbi.nlm.nih.gov/pmc/articles/PMC4171253/
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1 ReactionThank you Amanda for the article. This could be a possibility, i will ask about it. I never used to be sensitive to dairy, now i have to be careful. Lactose free is what im trying now, almond milk doesnt agree, not supposed to have soy. I just limit what i eat, and sometimes thats anything but water! Ive been feeling much better with my stomach though!!
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Helpful -
Hug
1 ReactionGracious sakes alive, I don't care what they call it.. squatty, potty, sp, squat pot or "the thing you can't live without".. it works! My physical therapist told me about it. I swear, that man knows me more than I know myself and he was talking to me one day all about this professional development class he took where he learned all about it. Naturally, I had to have one. Whatever that fella says, you can take to the bank so I figured if he said it, it would work. Course, he talked about it with great class whereas I, being an elementary teacher, brought it down to reality and funny when I realized it involved poop. Well now, it was great until I realized I'd have to go into a store to buy it. I found it at Bed, Bath, and Beyond (though smart folks get it online and save themselves from the embarrassing trip to the store). Me though.. I hadn't thought it through until the moment I had it in my arms marching like a confident person to the cash register. The confidence zip left me and on the fly, I came up with a great story about how I was buying it for the local nursing home. The lady who checked me out had that smirk of a look that says "uh-huh, right you are". Sheepishly I took it home and after experiencing it 1-1, I was so impressed, I bought one for each of my siblings and my nieces. Yup, for their Christmas gifts to boot. Nobody would tell me what they wanted for Christmas, and I was plumb wore out from asking so I decided to be the "I'm gonna save your colon lady" and got every single person one. That was over 5 years ago and to this day, I get Christmas lists from everyone a good month before Christmas. Imagine that! This thing works so well though, I splurged and got the fancy-looking version - you know, the type that says "I know I'm a squatty potty but I want to be too stylish to admit it". Then, when I realized I had to travel, as in leave my house to go to another city for medical appointments, I bought the travel version. With no shame now, I tell every single living soul about this gift from heaven. No longer do I lecture folks on food, nutrition, and exercise, but now I start off with my love version of that miracle called the squatty potty. Yup, they laugh too but I swear, I've had neighbors come to my house asking if I had extra ones they could have. Truth. And low and behold, just take a wild guess what you can find in all of my sibling's bathrooms and my niece's bathrooms too... Be a smart person though and use it in addition to proper exercising and great nutrition. This thing is wonderful but there are limits to its miracle power and you eating naughty and not consistently exercising and yet expecting a miracle from this thing is gonna test the limits of its miracle power. Just sayin.
-
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Helpful -
Hug
4 Reactions@livefully OMG. I’m dying!!! This is one of the funniest endorsements for a product I’ve ever seen! I read it out loud to my visiting family members and we applauded your writing and creativity and obviously happy colon!
Welcome to Mayo Clinic Connect. I hope we see more of you here. Do you have IBS-C (irritable bowel syndrome with constitution for those not ‘in the know’…or ‘in the go’)?
What brought you to Mayo Clinic Connect? Were you searching for a particular subject?
There are over 70 Groups in our wonderful community. We’re not medical professionals but people just like you who Connect with others. We share our stories, experiences and journeys to provide answers, encouragement or support for each other.
Here’s a link to some good tips for getting starting using the forum. https://connect.mayoclinic.org/get-started-on-connect/
Do you have any questions or concerns? Don’t hesitate to pop back in.
With great enjoyment, Lori
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3 ReactionsHello @livefully, I do agree with Lori, @loribmt, about your laugh-out-loud post about the squatty potty. It was really delightful!
I went to a pelvic floor therapist and heard about it from her. I didn't have the courage to go buy it. Maybe I'll do the online order.
Here is a link where you can find other discussion groups on Connect, https://connect.mayoclinic.org/groups. I hope you can find some other discussions to be a participant in.
Thanks again for joining Connect. If you care to share: what brought you to Connect?
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1 Reaction@livefully ooops! Thanks auto correct…that was supposed to be constipation not constitution. I guess auto correct was thinking about the 4th of July holiday. LOL.
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1 Reaction@grandmajan if it was Magnesium Citrate you were taking, yes it can have a laxative effect. Try another kind of magnesium - taken at bedtime.
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1 ReactionHi Lori,
So glad you enjoyed it. I figure laughter is the best medicine and if I can laugh about things, then I'll just keep getting better and better. Gracious, Ive had enough poop trauma and all other sorts of challenges that at some point you just have to laugh about it all.. its too unreal and your like "nobodys gonna believe this" so you at some point just have to laugh. Yeah, IBS is one of my diagnoses.. I got that diagnosis at age 17 which has been eons ago. (yikes!). Over the years, Ive been diagnosed and misdiagnosed with a lot of stuff. It's been a trip! Mayo is my 3rd research hospital and light-years different from anything I've experienced so far. Its been a great experience so far. It feels like my life has been one long process of physical challenges.. Ive experienced lots of bad medical care along the way but also some really great medical folks and care for which Im grateful. In the meantime, Ive also done everything I can think of to support health - you name it, I feel Ive done it. Clay baths, supplements, detox whatever, vegan, vegetarian, Paleo, grass-fed meats, sweat baths, etc etc. When your told over and over that you are "complicated" and "hard to figure out the medical" you tend to try anything you can on the side to help. When you also collect a gazillion diagnoses its like "forget it, I'll figure it out myself" (which is a joke). It was my stepbrother and physical therapist who encouraged me to give the medical field one more go of it and they suggested Mayo. So, my sister and I packed up the car and I called Mayo and was like "here I come ready or not". 🙂 For my upcoming third trip to them, I have a muscle biospy and in the meantime, after seeing 4 other departments there, Im working with the Integrative department. My challenge is gaining and keeping on weight. Mayo did figure out I have EILO (exercise-induced laryngospasm) and working with the speech therapist at Mayo, Ive got that more under control now which has been life-changing. Apparently my left vocal cord is smaller than my right which is quite the fun... The muscle biospy will tell us if there is a neuro component going on and if not, then the issue lies in the gut field. In the meantime, theyve had me start on the elemental diet and from there I'll transition to the SCD diet. Thats to get my SIBO under control. I keep struggling with SIBO which keeps me in a constant state of malnutrition. The bright side out of it is that Ive learned to become a really, really great alternative cook. I can make some mean mouth-watering meals. I will do anything to keep weight on.
I found Mayo Connect through the Mayo website. I tend to get crusty when folks try to tell me the latest "cure" or thing I should do. Im like "um, no way. Unless youve dealt wtih it yourself and are completely legit you just take your crazy ideas and head back the way you came". I figured people who post on Mayo connect are real patients who actually deal with the stuff so that was a plus. And I figured they were legit with it being Mayo and all. That was a huge draw. So here I am, pouring through the different forums and posts and gleaning info.
In the meantime, I enjoy writing. If I can write something from my experiences that makes me laugh and others laugh, then I figure the holy heck of whatever that experience was had some silver lining to it...
Cheers to you and thanks for the welcome. 🙂
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4 Reactions