Carcinoid cancer: Want to meet others

Posted by Ruth Ann @amyh2439, May 10, 2016

I would like to be involved in carcinoid cancer group as that is what I have.

Interested in more discussions like this? Go to the Neuroendocrine Tumors (NETs) Support Group.

@nana120

I just had my second lanreotide injection this past Tuesday with very little adverse reactions to which I give much credit to the diet information I received from this group. Thank you all very much! Prior to the injection I had a 5-HIAA blood test. My oncologist seemed all right with the results, although he noted a couple of areas that were high. I will have a scan in late August prior to my next appointment & injection to see if anything has changed, so my treatment is early compared to many of you.

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Sounds .like my husband. 7 months in, blood work shows marked improvement. Wonndering what dietary suggestions you got. He is a tough 75 with type 2 diabetes for three decades.

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@docoltun

Sounds .like my husband. 7 months in, blood work shows marked improvement. Wonndering what dietary suggestions you got. He is a tough 75 with type 2 diabetes for three decades.

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Several on this site who were taking lanreotide injections shared their experiences with dietary issues and it varies as to what is tolerated, but I googled until I found a site for what to eat if you have neuroendocrine cancer that was pretty straight forward. With that help I found that eating a pretty bland diet kept the lanreotide from upsetting my GI system.

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@docoltun

Sounds .like my husband. 7 months in, blood work shows marked improvement. Wonndering what dietary suggestions you got. He is a tough 75 with type 2 diabetes for three decades.

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Hello! I have been on lanreotide injections since March 2023. The first day I go on crackers and swiss cheese. Avoiding tomatoes, hard cheese, watermelon, pineapple. I tolerate eggs and half an avocado a day. Eat lots of protein – cottage cheese, sardines, chicken and fish. Nothing fried! Occasionally I have a piece of chocolate as my blood sugar tends to drop ( due to lanreotide!). Good luck! We got this!💜🦓

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