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Carcinoid cancer: Want to meet others
Neuroendocrine Tumors (NETs) | Last Active: Aug 23, 2025 | Replies (169)Comment receiving replies
Recently diagnosed with NET of small intestine. I had a bioposy of it ...and its Well-differentiated neuroendocrine tumor, WHO grade 1. I realize this just states its slow to grow. I do not know the stage yet. I was to have surgery but now its pushed back to 3.5 weeks...
Thoughts of people who have been thru this????
Replies to "Recently diagnosed with NET of small intestine. I had a bioposy of it ...and its Well-differentiated..."
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I had surgery for the very same thing n 2022. Dr removed the obstruction & 1 lymph node & I went home after 4 days. Stayed cancer free until 2024. Best advice I can recommend is getting up & walking after surgery, helps you regain your strength. I also had diarrhea but monthly Octreotide injections helped immensely. Good luck to you!