Neuroendocrine Tumors (NETs) Support Group

At the moment, I have only one lung net in my right lung. The last two days I have been having severe discomfort in my...

My brother has recently been diagnosed with NETs of the lung. They are lining the right side pleura, and one on the carinal lymph node....

I’m scheduled for a zoom call with a nurse Jan 8 in preparation for robotic surgery of a 13mm typical neuroendocrine carcinoid. I prefer to...

My understanding was that flushing only happened with those who have GI NETS. However, I have developed something very weird in the last 8 months...

Way back in 2007 I was diagnosed with sarcoidosis in my lungs. At that time they mentioned a nodule of 8 mm in my left...

One, I'm curious about NETs pain. Do they themselves cause pain or only when they are pressing on or blocking other things? I have lung...

@tufan and anyone else who can be helpful please My wife has been diagnosed with NET Lung and liver metastasis (stage 4) early December 2022....

77, female, diagnosed withNET carcinoid tumors in LLlung and left lymph nodes. No other organs lighting up on scans, of which there were many. No...

I have been diagnosed with both NETs-Lung and DIPNECH. Do I need two teams to be involved since I have two different conditions or one...

Has anyone had this LNET treated with Radiation and what was your outcome?