Interested in talking to anyone with a trache who came off a ventilator
I would be interested in talking to anyone who has been on a ventilator, had a trache, was able to come off the vent and how they are doing now. I was on a vent for a month with a trache placed after the first ten days. I now have foot drop and peripheral neuropathy in both feet from being on the vent. I also have nightmares where I feel like I can’t breath like when my trache would become plugged and I wake up coughing and gagging (I was taken off the vent, but had the trache left in place for another month before it was removed). I also have times when I’m yelling “help me, help me” in my sleep like when I was trying to get someone’s attention while I was restrained and SUPPOSED to be completely sedated while on the vent. When I am yelling in my sleep I don’t know it, generally a family member wakes me up and asks me if I’m okay…if they don’t wake me up, I just keep sleeping and have no idea I was doing it. I also had very vivid dreams during the time I was sedated on the vent I wondered if anyone else had dreams that they still recall…my were so vivid I would swear the things really happened!! I have had numerous hospitalizations and surgeries and now hate to be touched and often cancel medical appts because I start to panic before I have to go…..hoping there is someone else on the site who can relate to my experience.