I was told to move out of State or expect to be on Oxygen

@hilarys26 @nana75 @@blm1007blm1007 and all who have commented here - let's try to put this in perspective, please.
NTM/ MAC are exceedingly RARE infections. Even the most current statistics put the numbers at perhaps 100,000 to 150,000 infections in the US where our population exceeds 348,000,000. That translates to roughly 4 in 10,000 people. I know it seems a lot more common, but that is because we gather here on Connect and a few other reliable forums.

NTM/MAC is everywhere - in the soil, water, air... That means that no matter where you go, you will be exposed. Yes, soil and water features in some areas mean more people may become infected. But we're not talking about certainty, just SLIGHTLY higher risk.

So HOW exactly are we to manage? Sensible precautions! Filter or boil drinking water. Turn up the water heater to 130F+ to kill NTM. Take short showers. Avoid swamps, fens, wetlands and bogs where NTM proliferate, as well as indoor pools and hottubs. Mask in flying dust conditions in high risk areas like the garden.

I know this is overwhelming at first, but BE should not take over your life. Once you get a reasonable routine and a good care team, stop googling and "doom-scrolling" and go out and live. I probably don't say this often enough, but if you can't get past that overwhelmed feeling, it is time to seek some counseling on how to live with a chronic condition. I did it back in 2021 when dealing with 3 chronic conditions, and it helped immensely.

Dr Jennifer Honda's webinar is golden.
https://www.youtube.com/watch
My ID doc sat me down 7+ years ago and told me, "Bronchiectasis is a disease that you will live with, but you will not die from. Infections crop up from time to time, and we deal with them. Take reasonable precautions and ogo live your life."

Hugs and peace to each of you. I hope you can each reach a place of peace and acceptance.

@hilarys26 @nana75 @@blm1007blm1007 and all who have commented here - let's try to put this in perspective, please.
NTM/ MAC are exceedingly RARE infections. Even the most current statistics put the numbers at perhaps 100,000 to 150,000 infections in the US where our population exceeds 348,000,000. That translates to roughly 4 in 10,000 people. I know it seems a lot more common, but that is because we gather here on Connect and a few other reliable forums.

NTM/MAC is everywhere - in the soil, water, air... That means that no matter where you go, you will be exposed. Yes, soil and water features in some areas mean more people may become infected. But we're not talking about certainty, just SLIGHTLY higher risk.

So HOW exactly are we to manage? Sensible precautions! Filter or boil drinking water. Turn up the water heater to 130F+ to kill NTM. Take short showers. Avoid swamps, fens, wetlands and bogs where NTM proliferate, as well as indoor pools and hottubs. Mask in flying dust conditions in high risk areas like the garden.

I know this is overwhelming at first, but BE should not take over your life. Once you get a reasonable routine and a good care team, stop googling and "doom-scrolling" and go out and live. I probably don't say this often enough, but if you can't get past that overwhelmed feeling, it is time to seek some counseling on how to live with a chronic condition. I did it back in 2021 when dealing with 3 chronic conditions, and it helped immensely.

Dr Jennifer Honda's webinar is golden.
https://www.youtube.com/watch
My ID doc sat me down 7+ years ago and told me, "Bronchiectasis is a disease that you will live with, but you will not die from. Infections crop up from time to time, and we deal with them. Take reasonable precautions and ogo live your life."

Hugs and peace to each of you. I hope you can each reach a place of peace and acceptance.

@hilarys26 @nana75 @@blm1007blm1007 and all who have commented here - let's try to put this in perspective, please.
NTM/ MAC are exceedingly RARE infections. Even the most current statistics put the numbers at perhaps 100,000 to 150,000 infections in the US where our population exceeds 348,000,000. That translates to roughly 4 in 10,000 people. I know it seems a lot more common, but that is because we gather here on Connect and a few other reliable forums.

NTM/MAC is everywhere - in the soil, water, air... That means that no matter where you go, you will be exposed. Yes, soil and water features in some areas mean more people may become infected. But we're not talking about certainty, just SLIGHTLY higher risk.

So HOW exactly are we to manage? Sensible precautions! Filter or boil drinking water. Turn up the water heater to 130F+ to kill NTM. Take short showers. Avoid swamps, fens, wetlands and bogs where NTM proliferate, as well as indoor pools and hottubs. Mask in flying dust conditions in high risk areas like the garden.

I know this is overwhelming at first, but BE should not take over your life. Once you get a reasonable routine and a good care team, stop googling and "doom-scrolling" and go out and live. I probably don't say this often enough, but if you can't get past that overwhelmed feeling, it is time to seek some counseling on how to live with a chronic condition. I did it back in 2021 when dealing with 3 chronic conditions, and it helped immensely.

Dr Jennifer Honda's webinar is golden.
https://www.youtube.com/watch
My ID doc sat me down 7+ years ago and told me, "Bronchiectasis is a disease that you will live with, but you will not die from. Infections crop up from time to time, and we deal with them. Take reasonable precautions and ogo live your life."

Hugs and peace to each of you. I hope you can each reach a place of peace and acceptance.

I am 59 and just diagnosed with MAC. I was diagnosed with BE in 2012. I have lived in SC all my life, and I am concerned about all the information I am reading. Is it the tap water, well water, lakes, or the ocean? Which is worse out of all of these?

Hi. I’m recently diagnosed with Bronchiastsis/ MAC (June 2025)
I’ve been on 24/7 oxygen since hypoxic respiratory failure in June.
I had a Car T Cell transplant in March of 2024, and I feel that the Cancer treatment helped cause my lung issues. My autoimmunity of multiple myeloma, and working in a nursing home, caused me to have multiple chest infections, COVID three times, and pneumonia a couple times, once with bilateral clots in the lungs. I’m sure all of this caused ILD. Anyway, they are prescribing me Jascayd and a Smart Vest to try and help. Has anyone out there been in these two therapies? I want to know good and bad reports! Thank you!

@kaydee26 & @pacathy Maybe one of you can start a new discussion about Jatcayd inthe Lung Conditions group. Since this medication is specifically for IPF (idiopathic pulmonary fibrosis) and ILD (interstitial lung disease) you might find more people taking or getting ready to take it there.