I was recently diagnosed with Bronchiectasis.

Posted by mmteach @mmteach, May 10, 2016

I was recently diagnosed with Bronchiectasis. No symptoms yet just starting different tests- another CAT scan, pulminary function test, and possible bronchoscopy. Any advice/suggestions would be greaty appreciated. Thank you!

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@montsi

Do you use an albuterol inhaler or nebulize a solution of albuterol to open your lungs?

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In my case, the answer is "it depends". On a normal day, I use the inhaler before. On a bad day (tight chest, feeling under The weather, bad allergies…) I neb with levalbuterol first, then the saline. If I have a cold or bronchitis I neb first with duoneb (budosenide plus albuterol) then saline.
What does everyone else do?
Sue

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@montsi

Do you use an albuterol inhaler or nebulize a solution of albuterol to open your lungs?

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In reply to @kaykuz I nebulize with albuterol first to open lungs and then the 7%solution. I don’t really mind sitting around with the “thumper” on…hehe….it tires me out sometimes, but it’s ok.

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Teach, In the absence of symptoms, how did your lungs happen to show up in the “diagnostic crosshairs?” Don

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@sueinmn

In my case, the answer is "it depends". On a normal day, I use the inhaler before. On a bad day (tight chest, feeling under The weather, bad allergies…) I neb with levalbuterol first, then the saline. If I have a cold or bronchitis I neb first with duoneb (budosenide plus albuterol) then saline.
What does everyone else do?
Sue

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Sue, why do you neb with doneb 1st if you have a cold or bronchitis, I am trying to learn all I can.

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@raney

Sue, why do you neb with doneb 1st if you have a cold or bronchitis, I am trying to learn all I can.

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Duoneb has irpatropium bromide and albuterol, both bronchodilators – each works a bit differently, so they are dispensed together. This makes sure the lungs are as open as possible to accept a saline neb that then gets the mucus flowing more freely. The neb is far more effective than an inhaler, at least for me.
Sue

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@sueinmn

Duoneb has irpatropium bromide and albuterol, both bronchodilators – each works a bit differently, so they are dispensed together. This makes sure the lungs are as open as possible to accept a saline neb that then gets the mucus flowing more freely. The neb is far more effective than an inhaler, at least for me.
Sue

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I am doing levalbuterol and then 7% NaCL then budesonide. So was wondering why you did that 1st.
Also teh budesonide caused thrush. I have been treating for over a month now and still have thrush! 1st was clotrimazole Lozenge for 3 weeks and now nystatin oral suspension. I am also rinsing and gargling with salt water and apple cider vinegar . Copious amounts of mucus and sputum from lungs and chronic sinusitis. I have tried 3 different prescription nasal sprays. Each made breathing more difficult. I am doing saline nasal rinses, but have to do it every day and sometimes 2 X day.

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Been recently diagnosed with bronchiecstasis and don't really know a lot about it except what I listened to from the pulmonary specialist. I have had sarcoidosis for a long time but it does not seem to bother me too much. I cough a lot with the yellowish and green stuff appearing, and I have used a nebulizer for the first time and it seemed to be okay. Any info or tips on helping me learn more about it.

Alecia

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@alecia52

Been recently diagnosed with bronchiecstasis and don't really know a lot about it except what I listened to from the pulmonary specialist. I have had sarcoidosis for a long time but it does not seem to bother me too much. I cough a lot with the yellowish and green stuff appearing, and I have used a nebulizer for the first time and it seemed to be okay. Any info or tips on helping me learn more about it.

Alecia

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Hi Alecia and welcome,
You'll notice that I moved your question about bronchiectasis to this existing discussion:
– I was recently diagnosed with Bronchiectasis https://connect.mayoclinic.org/discussion/i-was-recently-diagnosed-with-bronchiectasis-no-symptoms-yet-just-starting-different/

I did this so you can easily connect with people who can answer your questions about your new diagnosis, members like @raney @sueinmn @thumperguy @migizii @poppins @pal131 @toni1132 @gej53 @jr2366 @nannette and many more.

You might also be interested in these related discussions:
– Bronchiectasis: New Diagnosis https://connect.mayoclinic.org/discussion/bronchiectasis-new-diagnosis/
– Bronchiectasis: Is nebulizing helpful? https://connect.mayoclinic.org/discussion/bronchiectasis/

How is the nebulizing working for you?

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@colleenyoung

Hi Alecia and welcome,
You'll notice that I moved your question about bronchiectasis to this existing discussion:
– I was recently diagnosed with Bronchiectasis https://connect.mayoclinic.org/discussion/i-was-recently-diagnosed-with-bronchiectasis-no-symptoms-yet-just-starting-different/

I did this so you can easily connect with people who can answer your questions about your new diagnosis, members like @raney @sueinmn @thumperguy @migizii @poppins @pal131 @toni1132 @gej53 @jr2366 @nannette and many more.

You might also be interested in these related discussions:
– Bronchiectasis: New Diagnosis https://connect.mayoclinic.org/discussion/bronchiectasis-new-diagnosis/
– Bronchiectasis: Is nebulizing helpful? https://connect.mayoclinic.org/discussion/bronchiectasis/

How is the nebulizing working for you?

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The nebulizer is very helpful and I use it once daily. Thanks for asking.

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@alecia52

Been recently diagnosed with bronchiecstasis and don't really know a lot about it except what I listened to from the pulmonary specialist. I have had sarcoidosis for a long time but it does not seem to bother me too much. I cough a lot with the yellowish and green stuff appearing, and I have used a nebulizer for the first time and it seemed to be okay. Any info or tips on helping me learn more about it.

Alecia

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Hi Alecia – There are so many aspects to bronchiectasis that it is hard to know where to begin when you get diagnosed.
Colleen's list of links is very helpful. Here is some info from the American Lung Association too: https://www.lung.org/lung-health-diseases/lung-disease-lookup/bronchiectasis/questions-to-ask-your-doctor

Maybe after you read some of them, you will have some specific questions for us. There are many members here with bronchiectasis, and just as many different experiences with it. I'm always willing to answer questions to help make your journey easier.

What medication is in your nebulizer?
Sue

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@sueinmn

Hi Alecia – There are so many aspects to bronchiectasis that it is hard to know where to begin when you get diagnosed.
Colleen's list of links is very helpful. Here is some info from the American Lung Association too: https://www.lung.org/lung-health-diseases/lung-disease-lookup/bronchiectasis/questions-to-ask-your-doctor

Maybe after you read some of them, you will have some specific questions for us. There are many members here with bronchiectasis, and just as many different experiences with it. I'm always willing to answer questions to help make your journey easier.

What medication is in your nebulizer?
Sue

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I am presently using albuterol liquid.

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I was taken off albuterol and put on an inhaler Anora. It contains no steroids. Steroids are not good for you. It has caused me weight gain and Tracheobronchomalacia (collapsed airways). I’m sure your aware there is no cure for Bronchiectasis. You really need a good infectious disease doctor to have you on a antibiotic to maintain your illness. This is so you don’t have flare ups. I was treated in the beginning of my disease wrong and now I am paying for for. Please get a good doctor who specializes in a topical disease research him well. Good luck.

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