I was never told '09 MRI showed CSV disease

Good Luck

I did them, yes they were frightening, I think they are quite hard on the body as I was sick after for a couple days. Waiting for my results still and a cardiologist appointment. I am in Canada so th I s is a waiting game here. Hoping there is an answer.

Sally, I'm happy to hear you had the test. However, I am so very sorry it was so difficult. Try to be strong. I know it's not easy.

Thank you for the encouraging words. I'm alone so it is even harder I think than when you have a partner. I'm frightened to hear the results again there is only me. I never th I might my health would go so badly as I was always so a five , still trying..Weds. I have my results..

katl819: In November you mentioned migraines. My husband's vascular/stroke neurologist didn't tell us that the medical center has a headache specialist/neurologist! I had to learn online that there is such a thing and where to find them. You mentioned severe anxiety. Again, the stroke dr. didn't tell us about the medical center's multidisciplinary pain management program. I learned about the concept and where to find a program online. This addresses the whole picture of one's symptoms. I'm learning online that a holistic approach to maximize our brain's neuro plasticity is good for the physical and emotional symptoms. If you are too ill to find the help you need (as many are), I'm thinking your health system's social worker dept. can help. I've learned, repeatedly, the hard way NOT to trust that doctors will do everything possible to obtain any possible relief for us. We must be assertive/the "squeaky wheel" and persistent. If the doctor still sits on their hands, change doctors. Also pursue non-medical and alternative/complementary treatments. There is no to little risk of side effects and studies to prove their effectiveness. For example, the National Institute of Health, the World Health Organization and the (Cleveland or Mayo?) Clinic endorse acupuncture for headaches. Hypnotherapy is scientifically proven effective. When I told the headache specialty neurologist that we were considering infrared light treatment (bought our own to use at home and save money) and PEMF (pulsed electro magnetic fields, which can also be used at a facility or bought), she said, "Those work, if you have the money. Try the Cefaly device (like a TENS unit, but for migraine)." This conversation happened after twelve months of multiple, failed toxic oral and painful injected drug treatments. If I hadn't brought up the subject of non-medical options, she wouldn't have either because they aren't things she's able to prescribe. I feel for all who can't do their own research (like my husband) and who have no one to do it for them.