I was never told '09 MRI showed CSV disease

Posted by katl819 @katl819, Nov 25, 2022

Friday, 25 Nov 2022
I am a female, now 62. I asked my neurologist two days ago if I can have an MRI. She said yes, since it's been 13 years since CSV disease was first seen.
I have been thinking, and I do not recall being told any such thing. I am extremely concerned about this.
I suffer from chronic migraines, dizziness, and severe anxiety. My blood pressure has shot up, I cannot relax, seldom sleep and am very depressed. My moods range between crying and sadness, apathy and anger. I haven't any interest in anything.
I cannot walk without the use of a cane. I have recently had nerve conductivity tests and the doctor said I have the nerves of a teenager.
Can anyone please help me?

Interested in more discussions like this? Go to the Stroke & Cerebrovascular Diseases Support Group.

@katie819. I can see why you are so distressed given the symptoms you've described. Are you referring to Churg-Strauss syndrome which is a disorder that is not a stroke but it is blood vessel inflammation? Are your symptoms getting worse and this is why you asked your neurologist for the MRI? When is the MRI scheduled?

We are not medical professionals here on Mayo Clinic Connect but we do provide support and information for our members. Please tell me more so I can help you with your question for help.

REPLY
@naturegirl5

@katie819. I can see why you are so distressed given the symptoms you've described. Are you referring to Churg-Strauss syndrome which is a disorder that is not a stroke but it is blood vessel inflammation? Are your symptoms getting worse and this is why you asked your neurologist for the MRI? When is the MRI scheduled?

We are not medical professionals here on Mayo Clinic Connect but we do provide support and information for our members. Please tell me more so I can help you with your question for help.

Jump to this post

I believe that she is referring to chronic small vessel disease.

REPLY
@naturegirl5

@katie819. I can see why you are so distressed given the symptoms you've described. Are you referring to Churg-Strauss syndrome which is a disorder that is not a stroke but it is blood vessel inflammation? Are your symptoms getting worse and this is why you asked your neurologist for the MRI? When is the MRI scheduled?

We are not medical professionals here on Mayo Clinic Connect but we do provide support and information for our members. Please tell me more so I can help you with your question for help.

Jump to this post

I did not respond earlier because I am not "katie819", I am katl(lower case L)819.
Moving along… my MRI is scheduled for later this month. The condition is: Cerebral Small Vessel Disease.

Another one of my symptoms is something I have a difficult time explaining. When walking, it feels as though my LEFT foot is being pulled back. It does not matter if I lead with my right or left foot. It is an odd sensation; one that adds to my feeling unbalanced and afraid I will fall.

This is a nightmare.

REPLY
@keithl56

I believe that she is referring to chronic small vessel disease.

Jump to this post

Hello.

It's Cerebral Small Vessel Disease.

Thank you for your input.

REPLY
@keithl56

I believe that she is referring to chronic small vessel disease.

Jump to this post

Cerebral Small Vessel Disease….I have it to, it's brain related. THere is a similar disease related to the heart.

REPLY
Please sign in or register to post a reply.