I got the two drugs yesterday (Monday). They loaded me up with anti-nausea meds during, anti-nausea patch on arm and pills for at home (not Zofran, something stronger). Am taking non-drowsy Claratin (sp) as well (why?). Guess they are expecting something I’m not wanting to get! Am isolating except for in-home care, and occasional quick shopping (masking, distancing, sanitizing).
They had me use Claritin to help alleviate issues with nasal lesions and it also for some reason helps to block bone pain. I wonder if your anti nausea was Emend, that stuff is a super hero. It sounds like everything is going good for you, I hope that continues to be the case for you.
They told me Clartin helps raise your white blood cell count and with pain. I was taking it for allergies before so not sure it helped me with either, though the arm deviceh they gave me was to help with white blood cells also.
I got the two drugs yesterday (Monday). They loaded me up with anti-nausea meds during, anti-nausea patch on arm and pills for at home (not Zofran, something stronger). Am taking non-drowsy Claratin (sp) as well (why?). Guess they are expecting something I’m not wanting to get! Am isolating except for in-home care, and occasional quick shopping (masking, distancing, sanitizing).
@marys1956 With the anti-nausea meds in your infusion and the patch as well as pills for home your cancer care team is really on it. I've had a terrible cold (not COVID) that is going around so there are yucky viruses out there. You are wise to isolate as much as you can.
I know you were so frightened before the infusions started. Now that you have had some, are you feeling less nervous? How are you feeling today?
Update, taste buds are starting to change kind of prickly feeling in mouth last 2 days, hair has started to fall out, day 13 washed hair in shower and alot came out, and so will be interesting to see if all falls out. My daughter won't cut it any shorter, just getting thinner by the day and is short anyway. Next Monday, will be next chemo treatment. Have been working, but did doze a lot this last weekend when home. Am so glad though, after about a week would sleep more than 3 for 4 hrs at a time. I do think working makes time go by faster. And, keeps muscle on me. We will see how things go after this next chemo treatment. Will have Monday thru Friday off since Thanksgiving week, so hope feeling good Saturday when go back to work. Then will have another 2 days off.
Update, taste buds are starting to change kind of prickly feeling in mouth last 2 days, hair has started to fall out, day 13 washed hair in shower and alot came out, and so will be interesting to see if all falls out. My daughter won't cut it any shorter, just getting thinner by the day and is short anyway. Next Monday, will be next chemo treatment. Have been working, but did doze a lot this last weekend when home. Am so glad though, after about a week would sleep more than 3 for 4 hrs at a time. I do think working makes time go by faster. And, keeps muscle on me. We will see how things go after this next chemo treatment. Will have Monday thru Friday off since Thanksgiving week, so hope feeling good Saturday when go back to work. Then will have another 2 days off.
@terradean. Thank you for the update. Your post about the side effects you are experiencing seem somewhat bearable for you. You mention that working makes the time go by for you. Are you working the same number of hours or were you able to cut back as needed? Keeping muscle on by staying active as you can is so good. It's a balance, isn't it?
@terradean. Thank you for the update. Your post about the side effects you are experiencing seem somewhat bearable for you. You mention that working makes the time go by for you. Are you working the same number of hours or were you able to cut back as needed? Keeping muscle on by staying active as you can is so good. It's a balance, isn't it?
Took 3 days of vacation right after 1st chemo day, but, have worked 5 days a week, and it actually keeps my brain functioning correctly. It took me awhile to be able to sleep more than 3 or 4 hrs at a time. Wasn't getting tired enough being at home to sleep much, After going back to work was sleeping correctly. It was hard first few days back because brain seemed delayed or slow but am back to functioning correctly. I am doing fine right now. Will see what happens this coming week, I will have chemo on Monday, and with vacation days and thanksgiving will only work following Saturday and then have my normal 2 days off. So, should be well rested and hopefully, feeling the same as last time.
Yesterday was Round 2, Wk 2 of chemo. Got both drugs. The drs changed things up by adding lots of iv meds before the actual chemo meds. And my at-home meds were changed as well. Hopefully my reaction won’t be as miserable as the last double infusion (hit days 3-4, awful!).
We’re hoping to fly to AZ after the 3rd round of chemo is completed as well as a CT scan. I’ve been talking to Mayo in Phoenix and my own dr to transfer records and care there. Fingers crossed I am accepted.
Yesterday was Round 2, Wk 2 of chemo. Got both drugs. The drs changed things up by adding lots of iv meds before the actual chemo meds. And my at-home meds were changed as well. Hopefully my reaction won’t be as miserable as the last double infusion (hit days 3-4, awful!).
We’re hoping to fly to AZ after the 3rd round of chemo is completed as well as a CT scan. I’ve been talking to Mayo in Phoenix and my own dr to transfer records and care there. Fingers crossed I am accepted.
Fingers crossed for an easy transfer of cancer care, Mary.
I hope the addition IV meds to help with chemo side effects work for you. They can make a real difference. I'll be thinking of you on day 3 and 4 and look forward to hearing that this round is less eventful. 🙂
Yesterday was Round 2, Wk 2 of chemo. Got both drugs. The drs changed things up by adding lots of iv meds before the actual chemo meds. And my at-home meds were changed as well. Hopefully my reaction won’t be as miserable as the last double infusion (hit days 3-4, awful!).
We’re hoping to fly to AZ after the 3rd round of chemo is completed as well as a CT scan. I’ve been talking to Mayo in Phoenix and my own dr to transfer records and care there. Fingers crossed I am accepted.
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They had me use Claritin to help alleviate issues with nasal lesions and it also for some reason helps to block bone pain. I wonder if your anti nausea was Emend, that stuff is a super hero. It sounds like everything is going good for you, I hope that continues to be the case for you.
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2 ReactionsThey told me Clartin helps raise your white blood cell count and with pain. I was taking it for allergies before so not sure it helped me with either, though the arm deviceh they gave me was to help with white blood cells also.
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1 Reaction@marys1956 With the anti-nausea meds in your infusion and the patch as well as pills for home your cancer care team is really on it. I've had a terrible cold (not COVID) that is going around so there are yucky viruses out there. You are wise to isolate as much as you can.
I know you were so frightened before the infusions started. Now that you have had some, are you feeling less nervous? How are you feeling today?
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2 ReactionsNo chemo this week!! Am feeling more like myself, energy levels good. Next week Round 2 infusion 1 starts.
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2 ReactionsUpdate, taste buds are starting to change kind of prickly feeling in mouth last 2 days, hair has started to fall out, day 13 washed hair in shower and alot came out, and so will be interesting to see if all falls out. My daughter won't cut it any shorter, just getting thinner by the day and is short anyway. Next Monday, will be next chemo treatment. Have been working, but did doze a lot this last weekend when home. Am so glad though, after about a week would sleep more than 3 for 4 hrs at a time. I do think working makes time go by faster. And, keeps muscle on me. We will see how things go after this next chemo treatment. Will have Monday thru Friday off since Thanksgiving week, so hope feeling good Saturday when go back to work. Then will have another 2 days off.
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3 Reactions@terradean. Thank you for the update. Your post about the side effects you are experiencing seem somewhat bearable for you. You mention that working makes the time go by for you. Are you working the same number of hours or were you able to cut back as needed? Keeping muscle on by staying active as you can is so good. It's a balance, isn't it?
Took 3 days of vacation right after 1st chemo day, but, have worked 5 days a week, and it actually keeps my brain functioning correctly. It took me awhile to be able to sleep more than 3 or 4 hrs at a time. Wasn't getting tired enough being at home to sleep much, After going back to work was sleeping correctly. It was hard first few days back because brain seemed delayed or slow but am back to functioning correctly. I am doing fine right now. Will see what happens this coming week, I will have chemo on Monday, and with vacation days and thanksgiving will only work following Saturday and then have my normal 2 days off. So, should be well rested and hopefully, feeling the same as last time.
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3 ReactionsYesterday was Round 2, Wk 2 of chemo. Got both drugs. The drs changed things up by adding lots of iv meds before the actual chemo meds. And my at-home meds were changed as well. Hopefully my reaction won’t be as miserable as the last double infusion (hit days 3-4, awful!).
We’re hoping to fly to AZ after the 3rd round of chemo is completed as well as a CT scan. I’ve been talking to Mayo in Phoenix and my own dr to transfer records and care there. Fingers crossed I am accepted.
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6 ReactionsFingers crossed for an easy transfer of cancer care, Mary.
I hope the addition IV meds to help with chemo side effects work for you. They can make a real difference. I'll be thinking of you on day 3 and 4 and look forward to hearing that this round is less eventful. 🙂
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1 ReactionHoping you get accepted and for your recovery on the way.
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