I recently had a Transcatheter Mitral Valve Replacement (TMVR )

Posted by camaroyo @camaroyo, Feb 29, 2024

Has anyone else had this procedure? They use an Aortic valve and place it in the Mitral valve position. I’m curious to hear anyone else’s experience. Thanks

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Profile picture for twilde @twilde

I'm supposed to have mine worked on, and I'm not sure I want it done out here in Oregon at OHSU. My wife doesn't trust them, having lost one of her business clients on the operating table getting heart surgery. My dad actually used to be friends with one of the Mayo brothers and always had great respect for the institution.

I tend to wait too long for many things and my regurgitation now is considered severe as is my heart enlargement to compensate. That has made the tricuspid regurgitation moderate even though it appears the valve isn't damaged. I was in a bad car accident 15 years or so ago and ended up unconscious after my chest plowed into the steering column. Unfortunately, no one thought to check my heart, even though I told them my pulse was all over the place when I was regaining consciousness, and then I saw stars for months after and I spent months being short of breath.

I'm just wondering if people think it is worth taking the cross-country trek to get this worked on back in Minnesota. It's where I grew up, but I haven't been there in many years. I know the Mayo Clinic's reputation is top-rate, and my wife, for some odd reason, would prefer to see me more alive than dead..

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@twilde
I had minimally invasive Mitral replacement at OHVI Springfield Oregon. They seem to be first rate. Great reviews and ratings. I’m happy. Mayo is first rate but far away.

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Profile picture for billmason @billmason

@twilde
I had minimally invasive Mitral replacement at OHVI Springfield Oregon. They seem to be first rate. Great reviews and ratings. I’m happy. Mayo is first rate but far away.

Jump to this post

@billmason My wife is the one pushing for surgery elsewhere and I try to remind her that Minnesota isn't someplace you just hop into the car and head over for a checkup. I don't think she realizes the number of doctor visits involved. She suggested checking on the Mayo Clinic in Arizona, but then she likes hot weather. I'm a Minnesotan. I loved the winters and hated the summers.

The surgeon I am going to see at OHSU does the highest number of mitral surgeries in the state, so I'm just going to see how comfortable I feel using him. I have a ton of questions regardless of who does it. The main one being, how soon can I get back to building stuff? I had major surgery reconstructing my wrist after falling off of scaffolding and breaking my back and destroying my wrist. They said six weeks minimum. The bones were fully healed and I was cleared for full work in three. I heal very quickly.

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Profile picture for twilde @twilde

@billmason My wife is the one pushing for surgery elsewhere and I try to remind her that Minnesota isn't someplace you just hop into the car and head over for a checkup. I don't think she realizes the number of doctor visits involved. She suggested checking on the Mayo Clinic in Arizona, but then she likes hot weather. I'm a Minnesotan. I loved the winters and hated the summers.

The surgeon I am going to see at OHSU does the highest number of mitral surgeries in the state, so I'm just going to see how comfortable I feel using him. I have a ton of questions regardless of who does it. The main one being, how soon can I get back to building stuff? I had major surgery reconstructing my wrist after falling off of scaffolding and breaking my back and destroying my wrist. They said six weeks minimum. The bones were fully healed and I was cleared for full work in three. I heal very quickly.

Jump to this post

@twilde
My minimally invasive mitral replacement required 4 visits at the hospital before surgery. Three days in recovery with 3 caregivers in 2 motel rooms.
A month later I went into A-fib ( not uncommon) & returned via ambulance for 4 days. My wife wasn’t up to the drive, cab to home was $180.
I Had two in person visits at two weeks and two more at 6 weeks.
I also build things and have invented some new products. The estimate of when I could return to “work” was pretty accurate.
10 new and changed prescriptions drove my dulled Mind crazy. Then weekly changes.
That’s my experience 80 miles from home.
Finally: it WAS worth it!

REPLY
Profile picture for billmason @billmason

@twilde
My minimally invasive mitral replacement required 4 visits at the hospital before surgery. Three days in recovery with 3 caregivers in 2 motel rooms.
A month later I went into A-fib ( not uncommon) & returned via ambulance for 4 days. My wife wasn’t up to the drive, cab to home was $180.
I Had two in person visits at two weeks and two more at 6 weeks.
I also build things and have invented some new products. The estimate of when I could return to “work” was pretty accurate.
10 new and changed prescriptions drove my dulled Mind crazy. Then weekly changes.
That’s my experience 80 miles from home.
Finally: it WAS worth it!

Jump to this post

@billmason Hmmm, being in the middle of building a house and being pretty asymptomatic other that a weird heartbeat from time to time that doesn't sound all that pleasant. I couldn't even wait for my back surgery one day because I had sheetrock going in the next day so I walked out of the emergency room at 2 am - I'm not the best patient in the world. I never did get that surgery.

I'm going to have to give this some further thought.

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Profile picture for twilde @twilde

I'm supposed to have mine worked on, and I'm not sure I want it done out here in Oregon at OHSU. My wife doesn't trust them, having lost one of her business clients on the operating table getting heart surgery. My dad actually used to be friends with one of the Mayo brothers and always had great respect for the institution.

I tend to wait too long for many things and my regurgitation now is considered severe as is my heart enlargement to compensate. That has made the tricuspid regurgitation moderate even though it appears the valve isn't damaged. I was in a bad car accident 15 years or so ago and ended up unconscious after my chest plowed into the steering column. Unfortunately, no one thought to check my heart, even though I told them my pulse was all over the place when I was regaining consciousness, and then I saw stars for months after and I spent months being short of breath.

I'm just wondering if people think it is worth taking the cross-country trek to get this worked on back in Minnesota. It's where I grew up, but I haven't been there in many years. I know the Mayo Clinic's reputation is top-rate, and my wife, for some odd reason, would prefer to see me more alive than dead..

Jump to this post

@twilde A family friend had the same procedure done at Providence St. Vincent hospital in Beaverton. He had good result but all depends on the interventionalist.

All the best to you.

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After the esophageal CT scan and the angiogram, and another where they went down through my neck, I likely am stuck with open heart and a triple bypass at the same time. Kind of bummed out by that. I'm not cut out for three months of recovery. Even after the angiogram they say two to three days of taking it easy, but I was back up doing stuff the next morning. I sure wouldn't take me as a patient if I were a doctor. But I do heal about twice as fast as a normal person, so that is a nice benefit.

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How do I see comments, I have been referred for an ablation.

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