1. < Polymyalgia Rheumatica (PMR)

I keep relapsing when I try to get off prednisone

Posted by yeb @yeb, Jun 22 1:06pm

I was diagnosed with PMR in 2015. I keep trying to get off prednisone but every time I get to 4mg I relapse and have to go back to 15 or 20 and start over. Very discouraging. I want my life back. I have tried weekly methotrexate with the prednisone but it does not seem to help. Any suggestions would be greatly appreciated!

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carolinlv | @carolinlv | Jul 11 11:39am
In reply to @pmrsuzie "I have been taking Zetia for awhile. I thought I was having problems with atorvastatin and..." + (show)
@pmrsuzie

I have been taking Zetia for awhile. I thought I was having problems with atorvastatin and then pravastatin. I had fingers that would contract and lock, thumb and index finger mostly. When I stopped taking the statin, this problem stopped. Reading about statin side effects made me think the statin was the culprit. Have not had this happen since. I recently started blaming my upper leg aching on the zetia so I have temporarily stopped taking it. I did talk to my pcp about it. The upper leg aching has stopped.
Anyway, here's a short video about statin induced myopathy:
https://m.youtube.com/watch?v=2PEdByp5LyA

Jump to this post

Thanks for the video! Very helpful and more information that I get from any of my three doctors☹️

REPLY
DadCue | @dadcue | Jul 11 12:42pm
In reply to @pmrsuzie "I have been taking Zetia for awhile. I thought I was having problems with atorvastatin and..." + (show)
@pmrsuzie

I have been taking Zetia for awhile. I thought I was having problems with atorvastatin and then pravastatin. I had fingers that would contract and lock, thumb and index finger mostly. When I stopped taking the statin, this problem stopped. Reading about statin side effects made me think the statin was the culprit. Have not had this happen since. I recently started blaming my upper leg aching on the zetia so I have temporarily stopped taking it. I did talk to my pcp about it. The upper leg aching has stopped.
Anyway, here's a short video about statin induced myopathy:
https://m.youtube.com/watch?v=2PEdByp5LyA

Jump to this post

I liked the video, This doctor raised more questions about statin induced myopathy than he answered.

I told my rheumatologist that I didn't think atorvastatin was causing any problems. Yes ... my CK level was elevated but is that conclusive evidence? When my last lipid panel and CK level were checked after 2 months of Zetia, everything looked good to me. I'm going to suggest they stop checking those labs and the problem is solved.

I don't care if I take Zetia or not. However, I must confess that I liked it when I wasn't taking anything for my cholesterol level. Since I tapered off prednisone, five medication dominoes have fallen. I go into my doctor's visits wondering what medication we will stop next. I forgot---my ophthalmologist told me to stop cosopt eye drops for my intraocular pressures. That makes six medications that have been discontinued

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