1. < Autoimmune Diseases

I have S.F.N. and Sojgrens pain moving bowels

Posted by penn @penn, Jan 24 1:38pm

By my rectum is painful when trying to move my bowels, involves S 1
L-2 L-3 My Pain Management DR. Wants to give me an Epidural around that area.I been through so much I'm scared It will give me more pain ?

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penn | @penn | Feb 1 4:02pm
In reply to @adp3926 "Hi I have lupus and sojgrens the Dr wants me to do infusion the medication names..." + (show)
@adp3926

Hi I have lupus and sojgrens the Dr wants me to do infusion the medication names is rituximab is that a good ideal ?

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HI!!!
I DON' HAVE LUPUS, I DON'T KNOW WHAT TO SAY? LOOK IT UP IT WILL GIVE YOU AN IDEA. WHAT IS RITUXIMAB? WHAT CONDITION ID IT GOOD FOR?

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penn | @penn | Feb 1 4:09pm
In reply to @sbtheplumber1 "@mothermary1 you might mention this to your doctor I already had posted above you! Pelvic therapy..." + (show)
@sbtheplumber1

@mothermary1 you might mention this to your doctor I already had posted above you! Pelvic therapy helped but I’ve not had regular bowel movements for years my bowels might be soft and then 5 minutes later be firm . I had a permanent stimulator put in 2 weeks ago and since my bowels have been solid everyday. If I went to the bathroom then stood up to shave or brush my teeth and leaned a little over the sink I had to go again immediately. So from my opinion there’s a nerve pinching interfering with your bowels . Wish you the best of luck pain free

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HELLO! It is so painful if I don't move my bowels, I can't leave the house, I can't sit without pain, I can't have my hair and nails for months! I look hell! My Pain Management Dr. suggested an Epidural. I'm scared that it will make my pain much worse???????????? I can't take living like this! I am a very social person and I'm locked in jail!!! Having company??? can't sit!!! PAIN!!!!!!!!!!!!!!
I TRY TO DO A LOT IN MY HOME! MY HUSBAND DOESN'T CARE HOW MY HOME LOOKS, I DO.

REPLY
1 reply
sbtheplumber1 | @sbtheplumber1 | Feb 1 5:49pm
In reply to @penn "HELLO! It is so painful if I don't move my bowels, I can't leave the house,..." + (show)
@penn

HELLO! It is so painful if I don't move my bowels, I can't leave the house, I can't sit without pain, I can't have my hair and nails for months! I look hell! My Pain Management Dr. suggested an Epidural. I'm scared that it will make my pain much worse???????????? I can't take living like this! I am a very social person and I'm locked in jail!!! Having company??? can't sit!!! PAIN!!!!!!!!!!!!!!
I TRY TO DO A LOT IN MY HOME! MY HUSBAND DOESN'T CARE HOW MY HOME LOOKS, I DO.

Jump to this post

@penn i feel for you it was so nice with the stimulator my bowels were moving normal again and then I bent to far and moved the leads now I’m waiting to meet another surgeon to put a stimulator with paddles I sure hope it helps my bowels as well. I also had luck with a prebiotic Ollie Pop I know Walmart sells it by the salads I can drink a can for supper and it will move my bowels the next morning. Do you sit on a cushion ? I carry one everywhere I go to sit on I don’t care how stupid I look carrying it into restaurants. With my cushion having the tailbone cutout I have a homemade ice pack made out of a doubles condom that really helps you might consider it 1/4 rubbing alcohol to 3/4 water ratio it’ll stay slushy but super cold . Good luck !

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