I have S.F.N. and Sojgrens pain moving bowels

Posted by penn @penn, 2 days ago

By my rectum is painful when trying to move my bowels, involves S 1
L-2 L-3 My Pain Management DR. Wants to give me an Epidural around that area.I been through so much I'm scared It will give me more pain ?

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Talk to your doctor.
I had an appointment sometime ago for pelvic floor disorder. I think that is what it was called.
Ask your doctor.
I wish you the best.

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minnesota, Thank for your reply!!! I wish you the best also!!
I decided to try Acupuncture, it can help the spine, S.F.N.. But, I can leave my home anymore, PAIN!! I'm at the lowest point in my life, My husband has no life. I can't go ANYWHERE! NOT EVEN DRS!!! very difficult moving bowels causes so pain, can take it anymore!
What is pelvic floor disorder? Wishing you the best of your day.

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@penn

minnesota, Thank for your reply!!! I wish you the best also!!
I decided to try Acupuncture, it can help the spine, S.F.N.. But, I can leave my home anymore, PAIN!! I'm at the lowest point in my life, My husband has no life. I can't go ANYWHERE! NOT EVEN DRS!!! very difficult moving bowels causes so pain, can take it anymore!
What is pelvic floor disorder? Wishing you the best of your day.

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@penn I feel for you I have had the tailbone pain/ bowels not moving since my surgery April 2023 . I have to carry a cushion to set on ANY where I go or I don’t sit. I had read about pelvic therapy then my Urologist mentioned it( sadly not a lot take male patients) we found one that did and it helped She gave me some exercise to do which I couldn’t with a failed back surgery. She worked internal each visit after one visit I couldn’t believe the difference ( my bowels were out of alignment and her working internal realigned them) then my bowels would move great for a few days until I was out of align . She had me go to a certain website to buy some dialators which I couldn’t hardly use because I couldn’t lay on my sides or back long enough to do them) she also made an ice pack out of a doubled condom with 1/4 part rubbing alcohol and 3/4 part water it works wonderful for the anal pain it stays squishy but cold. I had to go to about 15 visits once a week I needed more but since I couldn’t do anything because of the nerves she stopped my therapy which as soon as this pain stimulator heals my doctors revering me back again. I at first thought no way but now if it helps who cares . Good luck ! I can send some photos of the stretches if you can’t go

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I had cervical spine surgery June 2020 and after very long surgery my bowels never woke up. A year later I was scheduled for total colectomy because no med and no treatment worked. Fast forward to today. I take 20 Senakot at bedtime, suppository every am followed by an enema.
I also did pelvic floor PT done by a wonderful Indian woman. Her goal due to me never passing anything wider than a pencil was to keep my rectum from feeling like it was closing. She helped a lot and it was all internal. I followed that with visceral message at another facility which is very deep organ massage. Everything was temporary. Today all gastrointestinal docs are fine with my regimen. Yup, they honestly do. Sort of amazing. Not one prescription drug worked and I’m waiting for next to hit the market. Last one was IBSrella.
I have terrible degenerative s1 up to l5 disease with bulging and 3 months ago I fractured my sacrum after being jumped on by 2 dogs, it was an accident.
What baffles me is no gastrointestinal since tons of tests in 2920 and 2021 found a few problems like gastroparesis and no motility in large intestine and slow small intestine. Why don’t they do tests again in 2025. Why not look to see what it going on and what changes may be going on. I also have a tortuous colon and it’s a foot longer than the norm. They just allow my regimen and I still can go 2 weeks without going. The entire thing is just baffling. I moved from Boston area to Georgia and still no tests.

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