I have melanoma of the eye

Posted by elc90 @elc90, May 26 4:49pm

Cant decide what treatment proton or radiation my doctor wants to do a radiation cab it scares me . Did anybody have the proton treatment done what are the side affects have to make my decision this week

Interested in more discussions like this? Go to the Melanoma & Skin Cancer Support Group.

Profile picture for dmvan7 @dmvan7

Searching for treatment for eye melanoma

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Welcome, @dmvan7. I moved your question about eye melanoma to this discussion to connect you with @elc90 and @leigha67:
- I have melanoma of the eye https://connect.mayoclinic.org/discussion/i-have-melanoma-of-the-eye/

@dmvan7, this sounds like it is a new diagnosis for you. Here is information from Mayo Clinic about treatment options:
- Eye Melanoma: Diagnosis & Treatment https://www.mayoclinic.org/diseases-conditions/eye-melanoma/diagnosis-treatment/drc-20372376

What treatment options are being discussed with your team? How are you doing?

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Profile picture for dmvan7 @dmvan7

Searching for treatment for eye melanoma

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@dmvan7 Welcome to Mayo Clinic Connect.

If you go to the "support groups" tab, and then click on "eye conditions" that will take you to that group.
Enter "melanoma" in the "search discussion" field, and you will see there are discussions you can read through.
https://connect.mayoclinic.org/search/discussions/?search=melanoma%20eye
Hoping this helps you.
Ginger

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Searching for treatment for eye melanoma

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Hi there. I had pbt (proton beam radiation) therapy in December.
They first did a quick surgery to place tantalum rings around my eye. It was not bad, as surgeries go, with minimal pain. They gave me narcotics but I just took tylenol. My eye was bandaged for only a day.
A few days after that, I had the proton beam radiation for 5 days running.
The biggest side effect I noticed was being tired earlier than usual in the evenings.
The radiation only goes in your eye for about 15 seconds a day.
But it's an increasing dose, typically, and I just didn't expect to tire so easily.
I changed my diet, got more exercise, and I'm back to normal now.
I do experience extreme dry eyes and I use a ton of gel drops and regular drops. I've lost some vision, and fluid built up under the tumor, so I've been getting Avastin shots in my eye to lower that and they are working.

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