I have melanoma of the eye

@leigha67
How is your vision now and did the fluid buildup go away? Are there any side affects from the shots?

@leigha67
How is your vision now and did the fluid buildup go away? Are there any side affects from the shots?

Hi there. I had pbt (proton beam radiation) therapy in December.
They first did a quick surgery to place tantalum rings around my eye. It was not bad, as surgeries go, with minimal pain. They gave me narcotics but I just took tylenol. My eye was bandaged for only a day.
A few days after that, I had the proton beam radiation for 5 days running.
The biggest side effect I noticed was being tired earlier than usual in the evenings.
The radiation only goes in your eye for about 15 seconds a day.
But it's an increasing dose, typically, and I just didn't expect to tire so easily.
I changed my diet, got more exercise, and I'm back to normal now.
I do experience extreme dry eyes and I use a ton of gel drops and regular drops. I've lost some vision, and fluid built up under the tumor, so I've been getting Avastin shots in my eye to lower that and they are working.

I had the same treatment and after 6 months doing well no big side affects only try eye what I can deal with. My vision was the same as before the treatment on the outside clear and other half plury . Did my treatment at my doctors in TN who specializes in melanoma in eye. Still worried about what's coming with time but I think this was the write decision for me

@pamela76, welcome. Glad to hear the tumor continues to shrink. After the initial deterioration to your vision, has it stabilized now?

I have Ocular Melanoma, cancer of the eye, I'm a patient of Mayo Clinic for 5yrs now. I first went to the Rochester, Minnesota Mayo and my 1st treatment was done there. I had a rather large tumor on the back of my eye. After many tests the best course of action was to place a type of metal cup, sewn onto my eye, filled with radiation seeds, my eyelid was sewn shut and bandaged. I wore it for almost 2wks then eyelid was opened up and cup removed off eye. It was a bit uncomfortable and I couldn't be around other people during that time due to being radioactive. It killed the tumor thankfully but I have lost some vision in that eye and it's a bit discolored and droopy. I've been going every 3 months for tests as spots formed in my lungs and liver. They've kept a good eye on those spots and luckily they haven't gotten much larger or metastasized. Year 5 I got the year off finally instead of going every 3 months. I have significant glaucoma now formed on my eye and sight is minimal so I'm going in to have the glaucoma that formed on my eye lazered off. That scares me as one slip and any chance of vision is over! I wish you luck my fellow patient. I recommend the Mayo in Minnesota over the Mayo in Jacksonville, Fla. They just seem more thorough but I'm grateful to still have my eye in its socket and cancer hasn't spread any worse than the beginning. I do have another small tumor behind my eye and some hemorrhaging but I have to remove built up glaucoma from treatment as tests are inconclusive as they can't see through the thickness of buildup on last tests. Good luck and blessings to you🙏

I had radiation for my uveal melanoma. Dr. L. Dalvin at Mayo Clinic-Rochester did the procedure. She is the best! The tumor continues to shrink. My vision in the affected eye deteriorated somewhat but it was to be expected.
I am in Florida now and see Dr. Basil Williams of Bascom Palmer. He is also excellent.
I feel blessed to have such dedicated professionals.