Mayo Clinic diagnosis of Gammaglobulin deficiency: Any tips?

I had infusions done at the cancer center for extremely low iron and medicare and my aarp supplemental insurance paid it. I had no cost. Not sure about yours. You could call them though...

I started infusion therapy (IVIG) for myasthenia gravis, an autoimmune disease, in January. It’s once a month over two days and takes about three hours each day. Medicare and my secondary insurance covered the cost of approximately $17,000.
The infusion involves placing a line into a vein and monitoring the flow rate. I don’t see how this can be done by a patient alone. I know that I certainly couldn’t do what the infusion center nurse does.

Medicare covers infusions at an infusion center, clinic, or,hospital; I can NOT imagine doing this at home. I received IV antibiotics for 10 days at an infusion center. Medicare covered the cost. Ask to meet with a patient advocate. This person can be helpful.

@janeinnc Thanks for your prompt reply! I appreciate your advice, and help! My daughter, who is an RN, thought that I should have the effusion done at an effusion center too! With my polyneuropathy and Parkinson’s Disease, my hand dexterity is not what it used to be, so I didn’t think I could do it myself at home. I was in a quandary about that and what Medicare would pay! You solved my problem. I will talk with a patient advocate! Again, thanks a million! I’m so glad that Mayo provides this forum!

I am finishing a 12 month infusion therapy at Mayo the drug is Evenity. It is a new drug extremely who
But before I started it the clinic checked with my Mayo insurance and Medicare to make sure it was covered And it was. They should check it for You, But if not, I would call him as well. Your secondary.

@foundryrat743 Like @minnesota10 I had monthly injections of Evenity at an infusion center. Not an infusion but that's the way Evenity was and is administered. After 12 months of Evenity I had a Reclast infusion again at an infusion center. All of these were completely covered by Medicare because of the infusion center is considered "inpatient". Like you, I have a Traditional Medicare Parts A & B, with supplemental insurance - I have Part G.

Will you provider at Mayo prescribe the med for you? If yes, then your care team at Mayo can answer where you should get your infusions.

@fbt217 Thank you for your kind and informative reply! I deeply appreciate you taking the time to answer my enquiry! At one time, my neurologist thought that I may have had myasthenia gravis, too, with the symptoms I had. A sample of my blood was analyzed at the Mayo Clinic lab, and it was determined that I didn’t have MG - instead, they came up with this diagnosis, that I mentioned in my last message! Good luck to you, and thanks again for your experienced advice!

@minnesota10 Thanks for your excellent advice! I will follow up, with my insurance providers!

@naturegirl5 Thanks! Yes, my immunologist will prescribe the medicine for me, and he gave me the name of the specialty prescription provider, who called me, and they were the ones that suggested that they would have a nurse come out, to my house, show and teach me how to do the effusion set up and delivery for myself! My daughter, who has a Bachelor of Science degree in Nursing, questions that home method for me! I am nearly 80 years old, have had two strokes, and have had Parkinson’s Disease for 10 years, where my hands shake, and I drop things, and I have polyneuropathy on top of all that, so, my daughter does not want me trying to do the effusion therapy myself! Matrix, I believe, is the name of the Specialty Prescription Company! Thanks for your mentoring, and helping to clarify this all for me! You are very much appreciated, for your advocacy!!

@foundryrat743 Thank you for answering my questions and the added information. And thank for your kind comments. This is a most helpful site and our members, mentors, and all who come here are so appreciated.