← Return to Mayo Clinic diagnosis of Gammaglobulin deficiency: Any tips?

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Profile picture for Helen, Volunteer Mentor @naturegirl5

@foundryrat743 Like @minnesota10 I had monthly injections of Evenity at an infusion center. Not an infusion but that's the way Evenity was and is administered. After 12 months of Evenity I had a Reclast infusion again at an infusion center. All of these were completely covered by Medicare because of the infusion center is considered "inpatient". Like you, I have a Traditional Medicare Parts A & B, with supplemental insurance - I have Part G.

Will you provider at Mayo prescribe the med for you? If yes, then your care team at Mayo can answer where you should get your infusions.

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Replies to "@foundryrat743 Like @minnesota10 I had monthly injections of Evenity at an infusion center. Not an infusion..."

@naturegirl5 Thanks! Yes, my immunologist will prescribe the medicine for me, and he gave me the name of the specialty prescription provider, who called me, and they were the ones that suggested that they would have a nurse come out, to my house, show and teach me how to do the effusion set up and delivery for myself! My daughter, who has a Bachelor of Science degree in Nursing, questions that home method for me! I am nearly 80 years old, have had two strokes, and have had Parkinson’s Disease for 10 years, where my hands shake, and I drop things, and I have polyneuropathy on top of all that, so, my daughter does not want me trying to do the effusion therapy myself! Matrix, I believe, is the name of the Specialty Prescription Company! Thanks for your mentoring, and helping to clarify this all for me! You are very much appreciated, for your advocacy!!

@naturegirl5 Thanks for your wise advice! I appreciate your mentorship! I have applied your advice to my situation! After the Mayo Clinic diagnosis, I discussed your proposal to help me, with my immunologist! Thus, he prescribed the correct gamma globulin medicine, for me, and his nurse manager is lining up an I-V fusion facility ( Vivo ), near me, where a pro. nurse will set up, and administer the I-V fusion therapy, for the prescribed dosage, and time period! Also, she will make sure that Medicare, and Secondary Insurance approval of payment for services rendered, is taken care of. So, she said she wants to make it stress free, for me, and that others with my same or similar diagnosis, have been approved by their insurance companies, so she expects I will be approved to! This would be a big burden lifted off my concerns, because it seems like my inflammatory polyneuropathy is creeping further up my legs and arms, and the electric shock like buzz feeling that I get, in my legs, is more pronounced! So, I need help and relief soon! Thanks a million for your advocacy and wise advice! I will be forever indebted to you for your help!