1. < Brain & Nervous System

I have a syrinx and can't find a doctor that knows much about it?

Posted by kritter19 @kritter19, 11 hours ago

Im desperate for relief in my neck, brainstem area. I am numb in every limb, random Nausea, circulation issues, i am desperate for any direction on how to go about getting an appointment at mayo or anyone who knows a surgeon familiar with syrinx?

Interested in more discussions like this? Go to the Brain & Nervous System Support Group.

Mentor
Sue, Volunteer Mentor | @sueinmn | 9 hours ago

@kritter19
Can you tell us when and how the diagnosis was made?
Here is a link yo the Mayo Clinic information about Syringomyelia:
https://www.mayoclinic.org/diseases-conditions/syringomyelia/diagnosis-treatment/drc-20354775
Here is a link to contact Mayo Clinics to schedule an appointment:
http://mayocl.in/1mtmR63

REPLY
1 reply
kritter19 | @kritter19 | 27 seconds ago
In reply to @sueinmn "@kritter19 Can you tell us when and how the diagnosis was made? Here is a link..." + (show)
@sueinmn

@kritter19
Can you tell us when and how the diagnosis was made?
Here is a link yo the Mayo Clinic information about Syringomyelia:
https://www.mayoclinic.org/diseases-conditions/syringomyelia/diagnosis-treatment/drc-20354775
Here is a link to contact Mayo Clinics to schedule an appointment:
http://mayocl.in/1mtmR63

Jump to this post

2021 on mri. The neurosurgeon dismissed it and neck pain has gotten worse, headaches, Nausea, so much more. It's really long, pain management doctor thinks it could be reason for symptoms getting worse?

REPLY
Please sign in or register to post a reply.