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I have a neurological illness that has puzzled doctors.

Posted by carniplant @carniplant, Jun 22 7:58pm

I have a neurological illness that has puzzled doctors (here in Austin, TX.) because they can't identify what's wrong with me. Will The Mayo Clinic give me treatment for my neurological illness??

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wisco50 | @wisco50 | Aug 24 5:11pm
In reply to @stevegrinstead "Have you checked with Dr. Kumar, Dr. Marsh , and others at Mayo Clinic Minnesota about..." + (show)
@stevegrinstead

Have you checked with Dr. Kumar, Dr. Marsh , and others at Mayo Clinic Minnesota about SS? They are very knowledgeable about SS. They helped me. Please google Mayo Clinic/SteveGrinstead, good people give good results. I hope and pray that you don’t have SS, it is awful. But you need to know immediately. SS is PROGRESSIVE in the wrong direction.

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What is SS?

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7881188 | @7881188 | Aug 24 5:25pm
In reply to @pinkmoon61 "If you don't mind me asking what are your symptoms? It took 3 months for my..." + (show)
@pinkmoon61

If you don't mind me asking what are your symptoms?
It took 3 months for my doctors to figure out what was wrong with me and it turns out that I have a thing called akathisia

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What are your symptoms? I have a problem hard to describe!

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1 reply
harley22 | @harley22 | Aug 25 12:09am
In reply to @wisco50 "Is there a Mayo Clinic where you are moving to? If anyone can figure it all..." + (show)
@wisco50

Is there a Mayo Clinic where you are moving to? If anyone can figure it all out they should be able to?
Sounds miserable and wishing you the best of luck.

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Yes there is a Mayo Clinic near where I’m moving but they told me they’re not accepting any new neurological patients
Wouldn’t give me an appt

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pinkmoon61 | @pinkmoon61 | Aug 25 1:25am
In reply to @7881188 "What are your symptoms? I have a problem hard to describe!" + (show)
@7881188

What are your symptoms? I have a problem hard to describe!

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My symptoms were very high anxiety 100 times worse than ever unable to sit still the overwhelming urgency to move I would be pacing all night long all day long not being able to sit down my leg will be bouncing up and down if I sat on the couch I couldn't lay down never was comfortable feel like I was going crazy overwhelming fear of confusion not being able to sleep due to the urgent need to having to move

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jenatsky | @jenatsky | Aug 26 7:44am
In reply to @carniplant "Thank you for replying to my question, I'll just keep trying to get treatment at The..." + (show)
@carniplant

Thank you for replying to my question, I'll just keep trying to get treatment at The Mayo Clinic and hopefully I'll be a patient there soon. I know that if any place can cure my neurological illness, it will be The Mayo Clinic. Also, I hope that soon you'll be successful in getting an admission to The Mayo Clinic.
Thanks again for your reply.

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@carniplant maybe you should seek help with your symptoms and not so much an answer for what it is you have. Do not expect docs or Mayo to have all the answers for you. The human body is still a mystery overall.

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sb4ca | @sb4ca | Aug 26 9:29pm
In reply to @AlwaysHopeful "When you arrive in Arizona, stop at Mayo and get assigned a Primary Care Provider. For..." + (show)
@AlwaysHopeful

When you arrive in Arizona, stop at Mayo and get assigned a Primary Care Provider. For older peoople, it definitely helps if you have a Medicare Advantage Plan to beef up your standard medicare.There may even be a specific clinic for people who live locally. In Rochester, it's the Baldwin Clinic. Get to know your Primary Care Provider = he/she is the gaekeeper for referrals to specialists. Baldwin even has its own staff of specialists in the same building. If you knock on the door asking for a neurologist right away, you will get nowhere. Learn and respect the referral system used by Mayo.

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Medicare advantage is the one you want to turn down. Try supplemental, I think it's G. I have AARP/United Healthcare PPO insurance.

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