I hate what I've become
I've been on this forum for a few weeks now, so I don't think I need to repeat the entire story of the last 15 years of my life here. Long story short, I'm 66 years old, been retired on SSDI for almost 10 years now, and suffer from chronic pain due to osteoarthritis, and idiopathic poly neuropathy in my feet.
From October of 2011 to November of 2018, I had surgery 12 times. I had 5 knee operations, 3 carpal tunnel surgeries, elbow surgery, 2 spinal fusion procedures in my neck, and skin cancer removal.
Physically, I'm now a shell of what I used to be, I have no physical endurance any more, I can't walk for more than 10 or 15 minutes without help, and I have balance issues as well. I'm not allowed to get on a ladder by my family for any reason now, which is humiliating.
I always worked a very physical job for over 35 years, which obviously has taken it's toll.
When I walked away from my job in July of '15, we had to sell our home and move in with our son and his family for 2 years. Retiring the way I did completely screwed my wife and myself over financially forever, we 'll never own a home again, and she's working to support us while I sit on my ass in the house dealing with the chronic, never ending pain.
I swore that I'd never become a fat old man when I was retired, and that's exactly what I've become.
I've decided that I'm done with the "specialist" doctors, I've had so many of them, and mostly what they've done is cost us money that we don't have. How can I lose weight if I can't even walk any more? I'm done them. I'm not going to bankrupt ourselves or our kids with more surgeries or treatments.
My life is pain, and pain just means that I'm still alive.
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@mrmacabre
I hear you about vacations. My son and I haven’t taken one since 2017. I also understand how it feels to not want to live anymore. Depression can rob your joy and identity. I am so glad to be out of that dark hole I was in for over a year.
My father is from the PNW and an atheist. He and his brothers moved to southern CA/Arizona. His sister from Alaska also moved to AZ. I wish I could say my father’s atheist existence made him happy but he has a family history of major depression, generational abuse/neglect, suicide attempts, foster homes, etc. He was always very frugal and often seemed miserable and angry. He wanted to control everything and everyone.
My mom took me to church growing up which planted the seeds of my faith. You may think the living God, intelligent designer/creator and savior is imaginary. He definitely is not. You just may not know Him. We each need to have an open heart and mind to be able to hear the Holy Spirit to be saved. Not everyone will be saved or have a relationship with God. It is free will and a choice. No one can force God on anyone.
I choose to have faith in God who gives me daily hope. I am at peace despite my disability and abusive/neglectful childhood and have been majorly blessed in my life. My home has been paid off and I started to invest in my 20s when I started my first corporate job. I would never be able to afford everything today on my SSDI alone. I am glad I was in a good place financially before becoming disabled. I never thought I would be disabled and not able to work into my 60s. God has helped me make good financial choices and blessed me with a child after years of infertility while married. I always lived below my means and have no debt. This has helped me be able to send my teen son to private school. God has been good to me and I am very thankful. He deserves all the glory. He has prepared me for where I am right now.
You are still valued and loved by God even if you don’t acknowledge Him. Happy Easter! 🙂
I debated on whether to reply to you. My faith has been a source of great comfort to me, but I can’t recommend it to you. However I think that your posts here are the product of your pain, not the true you. Just like when my husband was dying of Alzheimer’s, many of the hurtful things weren’t him, they were the disease. I believe that your posts aren’t the true you because you have a family which loves you. A wife who is standing by you and children and in-laws who are helping you. Try to practice through the pain, being grateful for the roof over your head and your steadfast family. I know you aren’t asking for advice, but here it comes. Whatever good is in your life, and there is good, don’t miss it.
I don't know where you are in your face but you have to be strong for yourself and your family I know you feel like a feel like a shell right there but you got to keep your strength up I too have been through a lot in the last 4 years but nothing like what you were experiencing so I can't say that I've walk in your shoes and no one else can I even started a new position thought it would be a fresh start but now I don't know I have to keep oh praying everybody to the care of a counselor to help me through all this it's been quite a journey I will keep you in my prayers that you could get through this not just for you but for your family
Reading your post was powerful. I got sick 3 years ago. I used to run every morning, worked two jobs and was finally sober after 35 years of active alcohol and drug use. I am 54 years old and when I got sober, I finally had a different kind of life. Since that time, I lost my father, both jobs, my mother has dementia, my sibling has mental health issues (lives with and takes care of my mom and their relationship is volatile), found my boyfriend of 25 years, dead in our house (that I had to move out of because he was still drinking alcoholically) on the floor a week before Christmas in 2023 and many other things. I was turned down for SSDI and before I got sick, I started working on a Masters of Social Work degree online. I have been living off student loans, finally moved back into the house and still sober. I try to live in the day. All I really have is right now. I do not know what the future holds. I do know that if I ruminate about the past and the future, I spiral and spin out inside my head. That does me no good. I have to bring myself back into the present. For all I know an asteroid could hit the planet and blow us all away in an instant and none of the fear of the future matters. My doctor (shrink) put me on Cymbalta due to my hopeless feelings when I was first waking up in the morning. It has helped and I believe it helps with some of my pain as well. I would suggest asking your primary care doctor or even a shrink (if you see one) about Buprenorphine with Naloxone (Suboxone). It is used to help addicts come off of opiates, and the Naloxone prevents opiate use and both help with cravings. I took it years ago when I was addicted to opiates. I found that I did not crave them and I also know that it helped with pain. Some states will use it for pain. Anyway, that is just a suggestion for pain management.
Another thing that helps me is to know that at this moment, I am not homeless, have food, clothes, people that care about me, a car, heat, air and remember that things can always be worse. I can not worry about my student loans and the money I owe. In AA, the slogan, "One day at a time," has saved me many times. That is all I have, truly. Hang in there and thank you for the post.
I guess all that means is that god likes you more than he likes me, or every other person who believes like you do, but somehow made poor financial choices.
Or maybe you were just luckier than the rest of us?
I'm already taking prescription meds for pain, including lorazepam and gabapentin. I also take prescription strength Alleve when I'm having a really bad day with my arthritis.
Sometimes I wonder what I did wrong to screw up our possible retirement future as badly as I've done. I worked my ass off to support my family, I always had at least 1 job. In my entire working career, I never collected a penny of unemployment in 35 years. Before we relocated from southern California to Washington state in 1994, I had a full time job and 2 part time jobs just to make ends meet.
When I "retired" in 2015, I was working 4 ten hour shifts, but in reality I was gone for almost 14 hours every work day. I got up at 4:30 am, left the house before 5:00, and didn't get home before 6:00 pm most of the time. I worked this kind of schedule for almost 17 years before my body started breaking down.
I know that you've had to battle with addiction, which just makes things even harder, and like you said, "one day at a time". I've never considered myself to be "normal" by whatever standard most people consider that to be. Besides being the only Atheist in my family, I'm also the only metal head, along with being a fan of horror films and literature. But I've also never consumed alcohol, smoked, or used any illegal drugs of any kind. According to our son, I'm a walking conundrum, based on the way I present myself in public. You'd think, at least I think this way, that my wife and I would be able to have a stable, normal retirement in out last years, but nope, I screwed that up.
I have no idea what our future is going to look like.
Navy Seals in training go through an excruciating regimen. Any time a seal can't take anymore, he goes to the courtyard and rings a big bell. What I've learned is never ring the bell.
When we are up to comfort care only and DNR, someone will ring it for us
I don't know if we get more chances to live right, reach enlightenment, and not have to keep doing it over and over, until we get it right.
Watch. DEFENDING YOUR LIFE. and GROUNDHOG DAY, please!
I never felt "normal" either. I was sent to a Southern Baptist (crazy fundamental, girls wear dresses and boys had to have their hair cut above their ears, drinkers went to hell...you get the point) and when I hit 12 years old and started at a public school, I went to the wild side, total rebellion, anger at the world, drinking and smoking. My first metal concert was Iron Maiden at barely 14 years old. Do not remember much except puking and lying in the floor of the bathroom at the venue. I was the black sheep in my family, ended up in a psych ward and then inpatient treatment at 14. Hated my parents for it but it eventually ended up saving my life 35 years later. I have been in treatment 4 times throughout my life. For the first time I was the healthiest I have ever been, running, working two jobs and it was good. Then I got sick, unable to work, SSDI turned me down. I have been living off student loans and I will be in terrible debt when I graduate Summer of 2026. At 54 years old, I can let myself freak the hell out about if I will be able to physically work (hoping for a remote opportunity). I have no children and I worry about being alone as well. When I start to freak the hell out about all that, I have to make myself remember that I "now" is it. My concept of a Higher Power is the Universe itself. All a Higher Power has to be is something greater than I am. I am not the center of the Universe. The Universe is a power greater than me. I want to tell you not to blame yourself. You are doing the best you can right now. I understand regret. I wasted 30+ years of my life drunk and using drugs. My memory is crap, but I am doing what I can, today, because I also do not know what my future looks like. I do know, however, that if I stay sober I have a chance. If I don't I will end up dead. I may die in my sleep tonight, I do not know but I am ok right now. Hang in there.
Thanks, I appreciate your concern. I've been to a few Iron Maiden shows, but the last one was in 1992 on their Fear of the Dark tour. That was a long time ago.
Do not kick yourself about being upset! This is a lot of loss to deal with. Your way of life, the way you live has changed so this has aspects of losing a sense or self and sense or worth.
Anyone would feel the same way you do in this situation.
Angry, sad, defeated.
I lost a lot of that too when my body started failing me and I was only in my 20s.
I lost my job, friends, my sense of self. What was I if I couldn't do the things I'd done before? I had to find my worth in myself eventually, not a job, not relying on a limiting body.
And that's really hard, it's a process. I hope you find someone to talk with about this, it could help.
Most of all don't take it out on yourself, give yourself some grace. It will be adapting and figuring out what does make you feel you have worth and being grateful for the things you do still have in your life that are positive.
I'm sorry you're going through this.