Problems After TBI: Fibromyalgia or Something Else

Hi why so many young people suffering from disease and illnesses now a days?! So feel for you and your precious family, my heart goes out to you guys, your really going through ruff time, especially after traumatic brain injury, my son went through this, he changed lifestyle and know it's difficult especially as your so young, with young child and family , he is sports naturist now he finds saunas help him and plenty of good healthy foods especially ginger root and turmeric fish oil, maybe star fish oil could help and garlic oil, also known lavender and other aromatherapy oils help heal , dandelion it's great to support health issues especially for helping water works , being sugar free too can help, ( free from as in refined sugars helps .) Please let me know how you get on....( what was your traumatic brain injury -head ?!) Kind regards swift ,
hug from England

@144000 Welcome to Mayo Connect. We are a diverse group of people who offer support and share our experiences with others. We are not medical doctors, but patients/family members/caregivers who want to share and help. You certainly have had quite the time of it! Have you been able to keep notes that you can show a medical professional? Such a list might include the symptoms, time of day, how long they last, etc. Do you have access to a teaching hospital or to a Mayo Clinic campus [Jacksonville, FL/Phoenix, AZ/Rochester, MN] that you can be referred to for a workup? It seems that all of these things going on with you need the care of some specialists! I hope that you can get some rest and will be able to come back here and let us know what is happening.
Ginger

Hi, @144000 - I'd like to add my welcome to Mayo Clinic Connect and also invite into this discussion @lakelifelady @dawnpereda @gardeningjunkie @jakedduck1 @mamacita for their input into your situation with the TBI, potential fibromyalgia, rash and seizures.

I was in a catastrophic car accident in 2015 and among many other injuries, I suffered a TBI and have not been the same since. Every day is a new struggle with persistent dizziness, fatigue, a lurch to the left sometimes whenI walk and it feels like I have Bobblehead. Bright lights, noise and crowds having divergent conversations give my brain an overload and it feels like my head swells to two times it's size, tinnitus starts and I have trouble focusing my eyes. Sometimes I see a jagged halo where I must rest and drink caffeine. A silent migraine it is called. Recently I began to feel drenched in sweat but my skin is dry. There are other symptoms but too many to go into here. I attempt to maintain as normal a life as possible but mental and physical fatigue always is a consideration.

@144000 welcome to Mayo Clinic Connect. We all have experiences with various diseases and conditions to varying degrees although we are not medical practioners . We have been where you are in many ways and because we got some answers we want you to as well

I was young when I began to show signs of Fibromyalgia. I have IBS .as well. They frequently occur together.

I also had a severe head injury in the early 2000's. My right side was numb for three days. I don't think I have been the same since.

I would encourage you to go to Mayo Clinic with your multiple symptoms.

If you cannot make it to one of our centers I hope that you will pursue this with a University Medical Center. They typically have the expertise to deal with multiple diagnoses.

Please let us know how you are getting along. Until you get some answers be encouraged. With many minds working together you never know when just one word connects with someone who finds a link and that link resonates and you share with your doctor and voila!

We recently had a situation where this kind of thing actually helped save someone's life. Our own @sirgalahad was extremely important when a local man ( our personal family friend) had complications and conditions that made doctors throw their hands up in despair.

They had gone everywhere to doctors. Test after test and still no answers. He ended up in ICU. After many discussions on here and private messages our friends were closing in on some answers.

Today he is getting the necessary treatment for a very rare condition. The doctors here in our town simply do not see enough of unusual or rare conditions to have that thought process of "Well could it posdibly be one of those things we studied about in medical college for all of about fifteen minutes?"

This is not to say we wear superhero capes around here. We don't. Hey I'm doing good to plow through my email in a timely manner.

But I will say this. This is a good community to be part of. We help each other.

We are better together.
Mamacita Jane

Thank you so much. I wasnt looking for a diagnosis.. I think I was just looking for answers wondering if my doctor diagnosed me properly and the many different doctors I went to I'm just frustrated because no ones knows lol

@1445

@144000 Wrong name last post Hi I,LL add my welcome so glad you posted there are lots of good information here. I'm not sure what Dr,s you saw but one would be a good rheumatologist who has a good reputation in the field. You do have a lot going on so hope you take some advice we have left you with

@144000 I'm very much into holistic naturel items for healing Our body can heal itself if given the right food A good healthy diet,no junk food ,no white stuff ,flour,potatoes,rice,sugar. Naturel water without chemicals in it Epsom salts for soaking in tub Hot showers for pain and brings blood to surface no fried foods there's other things people may contribute Praying for you 🙏

Thank you everyone. I'm going to take this information and keep searching for answers. I stopped going to the doctors office cause I was tired of being poked and observed all the time
I will go back with a different mindset