Problems After TBI: Fibromyalgia or Something Else
In 2016 after a traumatic brain injury I started having pains throughout my body. I never got checked up on except the three staples in my head. Sept. of 2017 I started having seizures and they found a pituitary cyst in my brain and said it wasnt the cause of my seizures but because it was pushing on my eye it needed to be removed. I did that but continued to have seizures but not as many. Than put me on desmopressin for diabetes insipidus because they disturbed my pituitary (which means my body doesn’t hold water) and topomax for seizures. In 2019 I continued to experience pain numbness tingling stabbing headaches at the surgery site so the neurologist put me on a special diet. Didnt work. There were so many symptoms too many to list but they included extreme fatigue gut pain constipation and diarrhea body aches numbness and tingling stabbing pains through my body weight loss acne hair loss nausea extreme contraction like cramps in my girly parts sore painful limbs pain in my fingers and toes psoriatic like rash in hair nearly orange urine skin dry mouth. Hopefully you get the picture. They than said I may have fibromyalgia but didnt want to classify that yet but diagnosed IBS. Every symptom is getting worse and today it felt like someone stabbed me near the surgery site. It hurt so bad my eyes started hurting and watering. I’m barely 30. I have a son and a loving husband I can manage stress well but my health is going down the drain.