Seizure control: I can't seem to get any help

Posted by seancaden @seancaden, Jan 3, 2018

When I was 14 I was in a car accident. (its now 30 years later) I hit my head on the windshield and didn’t realize for years how serious the accident was. A year or so later i started having starring spells and feelings that I had no idea what they where. I just continued on with life thinking it would just go away. At 18 I had my first grand mal seizure (that I know of). I then started having them frequently. I went to a doctor and they tried several medications. Most of them made me feel worse then having a seizure. Finding the right medicine is key to living a productive life with epilepsy. At one point I was on 3 different meds and I felt like a zombie. Its definitely no way to live. I finally found some medicines that could control my seizures while i’m awake. My seizures are now confined to my sleep. I have 1 or 2 every month and the after effects get harder to deal with as I get older. I don’t feel the same for up to two weeks following a seizure.
Everyone keeps telling me to suck it up but as people with epilepsy know its easier said then done. Its hard to keep a job because i have to call in at least 2 or 3 times a month. Then I’m not myself. Its hard for people to understand. I even have my Dr. tell me that medication is probably the only option. I haven’t had any tests for quite awhile now and i’m not going to settle for a life like this just because nobody cares.

i have grand mall seizures from amalgam mercury poisoning and NO doctor will even admit that mercury is a neuron toxic so I am on my own trying to get the mercury out of my brain and all they do is give you meds that are poisonist to your body also.One med KEPPRA has aluminun and titanium dioxide in it.Aluminun damaged the brain and titanium doixide causes cancer. Has anyone on here gone through this

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@joedavid

i have grand mall seizures from amalgam mercury poisoning and NO doctor will even admit that mercury is a neuron toxic so I am on my own trying to get the mercury out of my brain and all they do is give you meds that are poisonist to your body also.One med KEPPRA has aluminun and titanium dioxide in it.Aluminun damaged the brain and titanium doixide causes cancer. Has anyone on here gone through this

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I’m on Keppra now and would love to hear responses to this.

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@joedavid

i have grand mall seizures from amalgam mercury poisoning and NO doctor will even admit that mercury is a neuron toxic so I am on my own trying to get the mercury out of my brain and all they do is give you meds that are poisonist to your body also.One med KEPPRA has aluminun and titanium dioxide in it.Aluminun damaged the brain and titanium doixide causes cancer. Has anyone on here gone through this

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Hi. I do not have epilepsy or seizures but saw this. I hope you don't mind it I comment. My point is that we have to be careful about writing off some of these medications without looking at all the scientific evidence from authentic medical sites. I don't think it is proven that titanium dioxide causes cancer and with all strong meds you have to weigh the benefits against the risks. I would rather take an effective medication and accept the small risk in order to live well now. I had all my amalgam fillings out because an allergy test showed a reaction to mercury and amalgam. Result: out of pocket and not an iota of improvement,

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@joedavid

i have grand mall seizures from amalgam mercury poisoning and NO doctor will even admit that mercury is a neuron toxic so I am on my own trying to get the mercury out of my brain and all they do is give you meds that are poisonist to your body also.One med KEPPRA has aluminun and titanium dioxide in it.Aluminun damaged the brain and titanium doixide causes cancer. Has anyone on here gone through this

Jump to this post

I started Keppra 2 weeks ago. Starting to feel much better. (less side effects) It's early in the process but I'm staying positive.

Liked by valm

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Hello – I thought you might like to know that one of the members in this discussion about seizure control, @dawn_giacabazi, is featured in today's Mayo Clinic Connect member spotlight: https://connect.mayoclinic.org/page/about-connect/newsfeed/giving-back-meet-dawn_giacabazi/.

Hope you enjoy reading about her story and getting to know her a bit more.

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