Trying to recover from a c. diff infection (Clostridium difficile)

Posted by acres @acres, Apr 12, 2016

I am trying to recover from a c.diff infection. This started with taking clindamycin in mid January and 3 days later I became ill with diarrhea and felt sick, loss of appetite etc...Went to the er twice, tested negative for c.diff on my 2nd visit. The Dr. told me to take imodium to rest my colon since I tested negative. That evening I had diarrhea and took the Imodium. Became constipated with pain lower right side. I went to a GI dr. pleading for help, I did another stool test and it came back positive for c.diff. I tried flagyl but could not tolerate the side effects. Tried vancomycin for 10 days. Did not work. Tested positive again, Went to a new gi doctor who prescribed dificid for ten days. I am 31 days post dificid and I have almost constant gut rumbling and urge to go. My 1st bm in the morning is usually semi normal, but after that they are always either pencil thin and or small pieces (2 to 5 times a day). This has been my routine since the vancomycin. I do not get dull blown diarrhea..... My dr. wants me to have a colonoscopy but I an scared that the cleansing will wipe out all my good flora. I currently take 2 florastor pills and 1/2 vsl3 per day. I eat fermented pickles for the probiotics as well..... I have many food intolerances since this whole mess began (fiber, many vegatables, dairy). I also have a strange taste in my mouth most of the time, have very little energy and fight with depression. My primary gave me Xanax .25 but I only take them at night when I cannot sleep...... Went to a nutritionist who put me on a no wheat, soy, dairy, gluten diet. Does not seem to be helping or hurting. I lost 20 pounds and cannot gain any weight (I weigh 120 at 5'7")... I am thinking it might be sibo, or candida but cannot find a dr. to test for these....I am in the right place for help or advice ? The urge to go is awful and limits my once active lifestyle.....
Thank you, Scott

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@mhi

C Diff Spores can be shed in the house. I used bleach to clean my toilet and floors. About a slow recovery I too had a very very slow recovery 10 months later yes I am getting better now but nowhere near my normal. I don’t have the same bowel movements as before c Diff anything I eat now affect my digestive system. Although I eat very healthy diet lots of fiber fruits and vegetables. How are your bowel movements now? Formed? Do you go multiple times/day?

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I’m 34 and has been 3 weeks since I finished vanco. Everything seemed good and this morning my stomach was upset. Not sure if it was the eggs, or if if cdiff is coming back. I couldn’t help it but to break down and just cry by myself. Now I wait and see what my stomach does tomorrow morning. I want this nightmare to be over.

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@cmt25

I’m 34 and has been 3 weeks since I finished vanco. Everything seemed good and this morning my stomach was upset. Not sure if it was the eggs, or if if cdiff is coming back. I couldn’t help it but to break down and just cry by myself. Now I wait and see what my stomach does tomorrow morning. I want this nightmare to be over.

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I totally understand the feeling. Don’t be afraid I went through upset stomach for 9 months and some scares and it turned out nothing. Hang in there and hope you get better. Please keep us posted! Wishing you all the best.

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Post c-diff recovery can be stressful, so let the tears flow when you feel frustrated. Lots of people have long term changes to their colon, like irritable bowel syndrome, but not necessarily a recurrence of c-diff. Just pay attention to what helps you feel better - foods, probiotics, etc.

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@mhi

I totally understand the feeling. Don’t be afraid I went through upset stomach for 9 months and some scares and it turned out nothing. Hang in there and hope you get better. Please keep us posted! Wishing you all the best.

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I ended up going to the bathroom last night and it was little pieces and a lot of mucus. Same with right now. Not watery diahrrea. Is this normal? I tried getting an appointment with the GI in town, but they are booked out until aug 19. I booked it and started crying 😭

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@lengel

Post c-diff recovery can be stressful, so let the tears flow when you feel frustrated. Lots of people have long term changes to their colon, like irritable bowel syndrome, but not necessarily a recurrence of c-diff. Just pay attention to what helps you feel better - foods, probiotics, etc.

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Thank you for responding. I ended up going to the bathroom last night and it was little pieces and a lot of mucus. Same with right now. Not watery diahrrea. Is this normal? I tried getting an appointment with the GI in town, but they are booked out until aug 19. I booked it and started crying 😭

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@cmt25

I’m 34 and has been 3 weeks since I finished vanco. Everything seemed good and this morning my stomach was upset. Not sure if it was the eggs, or if if cdiff is coming back. I couldn’t help it but to break down and just cry by myself. Now I wait and see what my stomach does tomorrow morning. I want this nightmare to be over.

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Hello,........my name is Jacque. I am about 4 months into recovery. It took over 8 weeks to get my strength back. I have been athletic all my life and exercise 6 days a week. I couldn't believe what C-diff did to me. I have gained my energy back, mostly. In the beginning of recovery I had bulging in my intestines that I never had before. It frightened me. I've always had a relatively flat stomach and when I ate, or even when I didn't, I would experience this and I didn't seem to have the muscles to "pull it in". I was thinking that I might be resigned to wearing flowing tops from now on. 🙁 The good news is that has gotten much better, and as I mentioned I am about 4 months into recovery. But I have not been able to have BM's on my own. I also have a "tortuous intestine", which means I have more intestine than I should for a person my size and that creates a very slow transit time which has caused me difficulties with constipation all my life. I developed a system of care that helped but it wasn't perfect. So now, life recovering from C-diff involves 100 fl. oz. of water a day, a couple cups of coffee and 1 diet soda thrown in the 100 fl. oz, 8mg of psyllium powder sprinkled on my oatmeal everyday, Metamucil crackers every other day, Miralax daily, and the first two months of my recovery i took a pro-biotic. I found that after I stopped the pro-biotic the bulging lessened. My gastro Dr. said I needed the pro-biotic after C-diff because the C-diff wipes everything out of you. But two months was enough. I take 3 Bisacodyl to stimulate my bowels every third day. Two work but not completely. Compared to what I felt like in February and March of this year, I'm feeling so much better. Be patient with yourself and keep the faith. Just yesterday I asked my gastro Dr. if it was such a good idea to keep taking the Bisacodyl and she tole me to continue with my regimen because it takes a long time to heal and recover. I have read on this site of people who are 10 months into recovery and still having issues. I understand your tears,.............I've had some also. It did get better and I hope that it does for you too. Be gentle with yourself and rest when you need to. I had trouble accepting that because I'm not a sedentary person. But in the beginning of recovery, I had no choice. I had no energy or strength. Then it slowly got better but I needed to take it in stages. And now I'm back to my normal exercise routine and can get through the day without a nap, although occasionally I make time for one. Sleep in important. I wish you all the best and I'm happy to "talk" with you anytime. Jacque Janik

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@cmt25

Thank you for responding. I ended up going to the bathroom last night and it was little pieces and a lot of mucus. Same with right now. Not watery diahrrea. Is this normal? I tried getting an appointment with the GI in town, but they are booked out until aug 19. I booked it and started crying 😭

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I think “normal” is hard to define after c-diff. If you can pay attention to how your diet and a probiotic like Align affect your stools, you can help the GI doctor make a treatment plan. From the reading I’ve done, the balance of the many different bacteria in the gut, beneficial and harmful, is wiped out by antibiotics and it takes time to restore a healthy combination.

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@lengel

I think “normal” is hard to define after c-diff. If you can pay attention to how your diet and a probiotic like Align affect your stools, you can help the GI doctor make a treatment plan. From the reading I’ve done, the balance of the many different bacteria in the gut, beneficial and harmful, is wiped out by antibiotics and it takes time to restore a healthy combination.

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Thank you. I made an apt with the GI in town; but they couldn’t get me in until aug 19. I take florastor twice a day and I added a colon/immune system rescue one once a day. So hopefully it will help. I called my pcp and they said the mucus can just be inflammation but they won’t test for cdiff until watery diarrhea is back.

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@cmt25

Thank you. I made an apt with the GI in town; but they couldn’t get me in until aug 19. I take florastor twice a day and I added a colon/immune system rescue one once a day. So hopefully it will help. I called my pcp and they said the mucus can just be inflammation but they won’t test for cdiff until watery diarrhea is back.

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I think you are making good decisions. Even when the c-diff is gone, it can take a long time for the gut to stabilize. Many years later, my husband’s gut still reacts to differences in diet or challenges to his immune system because of the changes c-diff caused to his colon. Overall though, he has learned to manage it and live normally. Hang in there!

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@cmt25

Thank you. I made an apt with the GI in town; but they couldn’t get me in until aug 19. I take florastor twice a day and I added a colon/immune system rescue one once a day. So hopefully it will help. I called my pcp and they said the mucus can just be inflammation but they won’t test for cdiff until watery diarrhea is back.

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I had wondered about that mucous also. I had it and it has disappeared for the most part and I'm 4 months into recovery. After I took the Vanco they tested me again to make sure the C-diff was gone, which it was. I was hoping they did a follow-up test on you also. That, to me, would seem very important. Even though the C-diff is gone, it is a slow recovery. I'm exhausted from taking Bisacodyl every three days just so I can eliminate waste. I have always had a slow transit time due to a longer intestine and the gastro doctor wants me to continue using the Bisacodyl for now. If you are able to "go" on your own, that is wonderful. In my experience, that mucous you are seeing will disappear eventually. So patience, take care of yourself as best you can, rest when you need to, (this was a difficult one for me but so important because you are healing and I'm sure you're energy levels are not the same as before C-diff), and trust you will get better. I hope you get/had a follow-up test for C-diff. And after that, just remember this is a slow recovery. I wish someone had told me that.

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