Want to discuss prolapse bladder or any kind of prolapse

Posted by Tanglefoot @tanglefoot, Aug 2, 2015

I am looking to discuss prolapse bladder or any kind of prolapse that other ladies have experienced as well. I would also like to comment on incontinence as well. There is a lot to talk about when it comes to prolapse bladder etc and it seems to be a silent epidemic among women. If there are others out there like me, lets talk about it and I have some solutions. I am surviving prolapse bladder without surgery and I have been living with it for over ten years. I wear a support garment that is light and easy weight and fits right under my existing underwear. Don’t know what you are doing or wearing, but I would like to hear from you. Thanks.
Tanglefoot

***NOTE FROM THE COMMUNITY DIRECTOR***

February, 2017.

Thanks to a Connect member, it was brought to our attention that @tanglefoot may have a vested interest in promoting the support garment “hideaway” mentioned in this discussion. Further investigation revealed that @tanglefoot is the designer and inventor of this product, and that she routinely posts on discussion forums using pseudonyms. Posting solicitations or advertisements of any kind violates Mayo Clinic Connect’s Terms of Use. We have decided to leave @tanglefoot‘s past messages as to not interrupt the flow of conversation, but she will no longer be able to post to the community.

Colleen Young

Community Director, Mayo Clinic Connect

Remember to try to capture the re-education experience with your Kegel exercise. The reason for Biofeedback is to give you the feeling of what to do. It requires determined home work. Good luck.

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@sara111

I had anterior and posterior repair surgery for bladder and rectum prolapse almost 8 weeks ago. The anterior repair (bladder cystocele) failed 5 weeks post op and the bulge is right back because I went to a surgeon that didn't repair the entire length of the posterior wall. He was a regular gynecologist/obgyn. I am wanting a 2nd surgery to repair the prolapsed bladder. How many months will I have to wait to have another repair?? I don't want to wait because it is bothering me so bad already. I want to have it done as soon as possible.

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Hi, @sara111 Welcome to Connect.
I also have a rectocele but it was not enough of a problem to require repair but I have had PT for bladder and anal incontinence, recommended by a urogynecologist. Physical therapy helps many people but not everyone. It did help me. Although the PT did help, it didn't help as much as I wanted it to, so I have also had Botox treatments with her for urinary incontinence.
If you feel you need a second surgery you really need to speak to a doctor about how long you need to wait. I realize that urogynecology is a relatively new field and it can be difficult to find one, but if possible I recommend that be who you see. I live in NH and there was only one here that would be convenient for me and she was booking very many months out, so I went to one at Mass General in MA.
Only a doctor can really answer your question about how long you need to wait. Since there are still not many urogynecologists I recommend calling now to get an appointment, you may have to wait a long time.
I hope you are able to find someone and that you will get the results you want. I would really appreciate knowing the outcome of it.
JK

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@sara111

I had anterior and posterior repair surgery for bladder and rectum prolapse almost 8 weeks ago. The anterior repair (bladder cystocele) failed 5 weeks post op and the bulge is right back because I went to a surgeon that didn't repair the entire length of the posterior wall. He was a regular gynecologist/obgyn. I am wanting a 2nd surgery to repair the prolapsed bladder. How many months will I have to wait to have another repair?? I don't want to wait because it is bothering me so bad already. I want to have it done as soon as possible.

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Major mistake for me was having my first repair surgery by an ob/gyn like you. I think I only waited about 6 months for redo. My ob/gyn should have stuck with delivering babies. I didn't even question his experience and background with surgery. I went to a Women's clini and a helpful doctor recommended this surgeon. He was 2 1/2 hours away. He is a specialist who only does bladder repair. Probably thousands. The latest techniques. He put in mesh and also elevated urethra so it was straight not saggy so the entire bladder empties. Now 5 years later still no issues. I did fear mesh rejection as I have multiple contact allergies although not to what I was told the mesh fiber was. I have had not rejection.
My advice is, if you haven't already, do your homework now. You may have to wait to see your specialist for a consultation, but perhaps you can schedule appointment now. My surgeon was so busy it took 6 weeks to scheduled for consultation.

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@sara111 and @gardeningjunkie
My experience with prolapse surgery was very good. We have at least 3 urogynecologists in Austin, TX where I live. I went to two of them and they both told me the same thing. One of them was very pushy but the other one was extremely nice and made me feel comfortable so I went with him. He told me that what my regular gynecologist was planning to do would not hold and that I needed to go with the mesh because my tissue was in a condition that made it very difficult to just stitch it without anything to support it. He said if I did that I would end up doing it again within a couple of years. I also had the urethra fixed so as to avoid incontinence later on. It has been a couple of years and no problems. I was afraid of the mesh but this guy was so great and he showed me the material and put my mind at ease. He was so great at explaining the procedure and it was done with the DaVinci Robot. He does many of these procedures every week just like gardeningjunkie said and he does only the latest techniques. He even let me stay in the hospital an extra day because I live by myself. I cannot really say enough good things about my experience. I should have done it several years earlier rather than living with the prolapse for so long.

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Good for you!

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@gardeningjunkie

Major mistake for me was having my first repair surgery by an ob/gyn like you. I think I only waited about 6 months for redo. My ob/gyn should have stuck with delivering babies. I didn't even question his experience and background with surgery. I went to a Women's clini and a helpful doctor recommended this surgeon. He was 2 1/2 hours away. He is a specialist who only does bladder repair. Probably thousands. The latest techniques. He put in mesh and also elevated urethra so it was straight not saggy so the entire bladder empties. Now 5 years later still no issues. I did fear mesh rejection as I have multiple contact allergies although not to what I was told the mesh fiber was. I have had not rejection.
My advice is, if you haven't already, do your homework now. You may have to wait to see your specialist for a consultation, but perhaps you can schedule appointment now. My surgeon was so busy it took 6 weeks to scheduled for consultation.

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@gardeningjunkie and @baxtersmom
It's really interesting to me to read about your experiences. It makes me wonder if perhaps urethra is also "saggy" since I never seem to have much volume.
@gardeningjunkie Was your surgeon also a urogynecologist? It sounds like traveling that far was definitely worth the effort.
JK

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My doctor was a Board Certified Female Pelvic Medicine and Reconstructive Surgeon, worked only on women.

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@gardeningjunkie

My doctor was a Board Certified Female Pelvic Medicine and Reconstructive Surgeon, worked only on women.

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@gardeningjunkie Urogynecologist is synonymous with Board Certified Female Pelvic Medicine and Reconstructive Surgeon. I think they have basically changed the terminology from urogynecologist to that.
My gynecologist recommended a urogynecologist for me but I asked my daughter's sister-in-law who is a urogynecologist and she said she often gets cases that were not handled as well as a urogynecologist would and she has to correct them. I did not go to her because I felt funny going to someone I know socially, plus the hospital she is at is less convenient for me. I do sort of regret going to the one I went to. I think I chose her because she had the earliest available appointment, which is probably not a good sign.
JK

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@contentandwell

@gardeningjunkie Urogynecologist is synonymous with Board Certified Female Pelvic Medicine and Reconstructive Surgeon. I think they have basically changed the terminology from urogynecologist to that.
My gynecologist recommended a urogynecologist for me but I asked my daughter's sister-in-law who is a urogynecologist and she said she often gets cases that were not handled as well as a urogynecologist would and she has to correct them. I did not go to her because I felt funny going to someone I know socially, plus the hospital she is at is less convenient for me. I do sort of regret going to the one I went to. I think I chose her because she had the earliest available appointment, which is probably not a good sign.
JK

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Thanks for the explanation.

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@gardeningjunkie

Thanks for the explanation.

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@gardeningjunkie I meant that my gynecologist recommended a urologist to me. I’m glad that I chose to go to a doctor whose speciality was more aligned with my problem.
JK

Liked by gardeningjunkie

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I have had 3 vaginal prelapse surgeries, late 2013 which was really sudden and quite visible when I looked but had not fallen out of my vagina, a reoccurrence in 2015 after I had a bad cold or flu when I coughed non-stop it seemed for 2 weeks and I swear I felt my vaginal give way when I was watching TV – that surgery lasted only a few months, the last surgery was in 2016 and that MD said that his surgeries NEVER fail. Ha! Prior to that surgery, I had to have a colonoscopy and defecography test (had never heard of that test) He conveniently didn't tell me about that one and it was humiliating – well, that surgery failed in 3 months. It is about to turn to 2021, I am back to the rectocele and cystocele, not protruding and not really bothering me much aside from knowing that it can progress further. I have a totally different urogynecologist than any of those 3, I see "in there" a bit of a different color on part of the prolapse and so will see her Jan 7. I'm glad to have been going to a urogynecologist routinely for monitoring. It is disheartening for sure. I am now 68. As for my history, I had a hysterectomy at 34, have taken hormone replacement since then and I have been sexually active. I keep my weight down and was always really active until the pandemic and have been eating a plant based diet mainly for a very long time. The last 3 months I have given up most sugar but not as successful as I'd like to be but so much better than I was since I don't eat candy bars every night. I don't hold out any hope at all. The nurse practitioner I saw at the urogynecologist office who sees me for my annual visits said that maybe I would benefit from a pessary but I wasn't ready for that step yet, emotionally anyway. She suggested Kegals and she said they work. I have read they do and I have read they don't. For a while I was having terrible bladder urgency and just barely getting to the bathroom in time but now that has improved and not such a problem. My tendency is toward constipation for many reasons so I make sure to stay as regular as possible. My insides live inside me and I know my insides better than anyone so I try to really listen to myself and trust what I hear – then take myself to where the help is.

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donnacarp- Have you had the "new mesh" used to support your prolapse? Have you had a bladder sling put in to straighten out your urethra? I had both surgeries around age 65 and now at age 72 I am still doing great and very active. The mesh will give the stitches reattaching the prolapsed tissues and the sling will allow the entire bladder to empty thus your urge to urinate is back to a normal level.
Go back and read this blog, at least the last 6 months to understand the success many of us had had. In the last six months I believe we have posted names of our surgeons. My prolapse was more dramatic then yours, my uterus was protruding an inch out of my vaginal opening. I also had some bladder and colon prolapse. The hysterectomy removed the uterus, and the surgeon (in my ignorance my gynecologist said he could do it and performed the surgery) simply tied up the bladder and colon with stitches. My colon held but the bladder tissues weren't strong enough to hold the bladder in place. He should have recogized the weakness and even after surgery kept telling me it was fine. Although not proturding, I could feel my bladder just at the opening and it felt uncomfortable when I walked. I had all the bathrooms scouted out at all my shopping locations as I might need to pee several times during my errands. My gyno didn't have the extra training require for the mesh and sling and I was never even told about it. It took me a year of him telling me I was fine and a new gynocolgist to explain this me. She recommended a surgeon who had helped many of her patients with special needs. You must find a specialist who does female repair surgeries only. I'm not talking a urologist or gynecologist who does basic hysterectomies. In past blogs others talk about this. Many, like me had to travel to get to this type of specialist.

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@gardeningjunkie

donnacarp- Have you had the "new mesh" used to support your prolapse? Have you had a bladder sling put in to straighten out your urethra? I had both surgeries around age 65 and now at age 72 I am still doing great and very active. The mesh will give the stitches reattaching the prolapsed tissues and the sling will allow the entire bladder to empty thus your urge to urinate is back to a normal level.
Go back and read this blog, at least the last 6 months to understand the success many of us had had. In the last six months I believe we have posted names of our surgeons. My prolapse was more dramatic then yours, my uterus was protruding an inch out of my vaginal opening. I also had some bladder and colon prolapse. The hysterectomy removed the uterus, and the surgeon (in my ignorance my gynecologist said he could do it and performed the surgery) simply tied up the bladder and colon with stitches. My colon held but the bladder tissues weren't strong enough to hold the bladder in place. He should have recogized the weakness and even after surgery kept telling me it was fine. Although not proturding, I could feel my bladder just at the opening and it felt uncomfortable when I walked. I had all the bathrooms scouted out at all my shopping locations as I might need to pee several times during my errands. My gyno didn't have the extra training require for the mesh and sling and I was never even told about it. It took me a year of him telling me I was fine and a new gynocolgist to explain this me. She recommended a surgeon who had helped many of her patients with special needs. You must find a specialist who does female repair surgeries only. I'm not talking a urologist or gynecologist who does basic hysterectomies. In past blogs others talk about this. Many, like me had to travel to get to this type of specialist.

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thank you so much. Before I start reading back, please tell me what part of the country you live in. The first doc who did this was my gynecologist doing the rectocele part and a urologist did the bladder / he used sling which I think held a while, the second was a well known urologist who did many or the web touted he did, the third was a urogynecologist. I would go to the moon if necessary. I know of a specialist or so says the website, in Oklahoma City but it is hard to know for sure unless someone knows by experience. Again, thank you for this information.

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replying to @gardenjunkie, you have been so incredibly helpful. I looked up the credentials of the urogynecologist that I see here in NYC. She is board certified in female pelvic medicine and reconstructive surgery. Unfortunately she did not do my last surgery but I have kept an annual appointment with her or her nurse practitioner so that I can be seen in her practice and followed. I have an appointment on 01/07/21. I am thankful to have gotten an appointment so soon. I hope to learn much more about what is going on with my body now. I am a born Nervous Nelly, not a pessimist really but I do follow through right away when something isn't right.

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I understand your apprehension, my blood pressure always goes up just walling into a medical facility. I'm excited for you to get to a surgeon with the right training. As I mentioned, I made a big mistake going to a "baby doctor" after my prolapse. I am sure he was fine as an OB, but my needs were more complicated. I'm glad I have offered you some hope. I used to blog searching for answers on my eczema site or this site. Yet because of my searches and advice and testimonials from others I am free of eczema today and I am all tied up with zero side effects down below. I didn't want to live with organs protruding from my vagina or needing to pee 3 times a night! So far my female issues are in the past and I am so grateful and want others to be get help and relief also.

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