In shock after MAC diagnosis

Posted by sylvermoon8 @sylvermoon8, Sat, Aug 17 1:12pm

I was being followed for a lung problem for 2 years and finally was to have my last CT in June. But it showed pneumonia. I had had a bad cough a month before, they thought I had pneumonia but chest X-rays indicated no, so I wasn’t treated. So after the CT I had 7 days of an antibiotic. 6 weeks later my next CT showed it had gotten a bit worse and now they mentioned something called MAI. That was last Monday. Tuesday I am getting a bronchoscope and biopsy. I am scared. Especially now that I have read so much about this. I don’t have symptoms except maybe if I talk fast I feel like I had to stop and breath. I don’t know what I am in for. Gosh I am scared just about getting the bronchoscope. My doctor said I could have gotten this from gardening, I did a lot…have been doing it for years. This year we had a new mulch supplier…… I could use a pep talk, if anyone has that for this!!

@ling123

@rmason I'm glad to hear that you are leading an active and interesting life despite being tested positive for MAC. From what I have learned, people can be positive for MAC but can still live a normal life and not have symptoms without being treated with antibiotics. MAC are such ubiquitous bacteria that it is very hard to live in an environment where they don't exist. The bad news is that for those who have other health issues that cause their immune system to run down, MAC infection will make their conditions worse. If you are otherwise healthy, like myself, the important thing to do is to be vigilant and work with your doctors to make sure that your lungs stay in good shape and there are no other medical problems that may affect your immune system and your general health. Hope everything goes well with you and the monarchs are thrilling under your loving care.

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Hi, everyone. I have a question. I have nodular MAC disease and my only symptoms are shortness of
breath and fatigue. I walk two miles every morning and am 86. That said, I have bad allergies. And I
get nasal congestion, debilitating fatigue…even chills and aches. I am wondering if an allergy attack
can trigger MAC symptoms? Thank you and best to you all. Elizabeth

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@bibes

Hi, everyone. I have a question. I have nodular MAC disease and my only symptoms are shortness of
breath and fatigue. I walk two miles every morning and am 86. That said, I have bad allergies. And I
get nasal congestion, debilitating fatigue…even chills and aches. I am wondering if an allergy attack
can trigger MAC symptoms? Thank you and best to you all. Elizabeth

Jump to this post

My guess Elizabeth is that it’s not so much that it triggers MAC symptoms, but that your immune system is under attack with allergies and that in and of itself gives MAC an edge. MAC is an opportunist infection and will use any “opportunity” to make itself known. I am 70 fighting this and think you you must be one strong lady at 86! God bless you real well. (Irene5)

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