I am afraid of trying Tymlos and other drugs due to side effects

Posted by mkav2023 @mkav2023, May 7, 2023

How do others handle the fear of side effects, as well as the very real side effects, from Tymlos and other osteoporosis drugs?

I am 68, physically active, and feel fine with no fracture history. When I began developing osteopenia years ago, I was put on Fosomax and large amounts of calcium and D for about five years with no positive results, and sure enough, my osteopenia became osteoporosis.

My doctor now is recommending Tymlos due to my worsening Dexascan scores (worse T-score is -3.3 spine, and other T-scores are in -3.0 range). I have read a great deal (pro and con) about Tymlos and its side effects, and I know that even if Tymlos helps, after two years on Tymlos, then I have to go on another drug. I believe the odds are I will encounter a drug sooner or later with serious side effects that will drastically hurt my quality of life.

Any advice from those of you who have been on Tymlos and other drugs with side effects is greatly appreciated. Thank you!

Interested in more discussions like this? Go to the Osteoporosis & Bone Health Support Group.

mandie4712 | @mandie4712 | 4 days ago

Hi,
Just seen you post. Did you try the injections as I’m about to stat and would like to know how you got on . Thanks

gravity3 | @gravity3 | 4 days ago

I understand your concerns. They are concerns that most of encounter on this bone journey. My greatest concern with my Osteoporosis is avoiding compression fractures. I am 77 and I dont know how old you are but age can make a difference in decision making. There are others here who have taken tymlos. If you have not perused the entire Osteoporosis section, please do. Lots of wisdom here. I noticed you only asked for the folks who are or have taken tymlos and had side effects but not those who have not. Bottom line for me.... I need to remember that every little thing in this short life has side effects. Good luck.