Hypothyroidism Diagnosis: Not sure what to do at this point

@khauert Hi how are you? I’m going through the same thing right now but my Dr checked my Vitamin D levels and I was severely low so apparently that’s what was causing the joint pain it isn’t related to the adenoma or prolactinoma did you ever get this sorted out ? And find a solution and if you did what kind of solution ? I hope you don’t mind me asking I’m just going through the exact situation

Did you test your thyroid levels under the same conditions i.e. same time of day? I have read recommendations thyroid labs are best drawn first thing in the morning before your thyroid medication & any breakfast.

I recently participated in the American Thyroid Association Patient Education Forum. I specifically asked (in a break out group) why FT3 (Free T3) was not tested. I recall the doctors saying something to the effect it was difficult to register a accurate FT3 blood level. That the body has FT3 located in multiple sites. A good doctor will work with a symptomatic patient to understand why.

My limited general understanding is that when one has a “Hashi flare” thyroid hormones may be spilled into the blood stream & consequently spike the blood level afterwards. Many thyroid patients test for any gluten issues & make other dietary changes to try & reduce these flare ups.

You are very smart to start so young troubleshooting your thyroid signs & symptoms. A Pharmacist by the name of Dr. Izabella Wentz was afflicted by Hashimoto’s at a young age too & she has chronicled her early struggles in books as well as online. She has turned her thyroid journey into a life long career passion seeking to help others struggling with this diagnose.

If you haven’t read her story you might cull helpful pointers you can discuss with your doctor from viewing online how she mastered her thyroid setback. She has published much & continues to be a source of inspiration to those trying to sort all this out!

@khauert Hi how are you? I’m going through the same thing right now but my Dr checked my Vitamin D levels and I was severely low so apparently that’s what was causing the joint pain it isn’t related to the adenoma or prolactinoma did you ever get this sorted out ? And find a solution and if you did what kind of solution ? I hope you don’t mind me asking I’m just going through the exact situation

@amara98 ,@khauert
Are you going to an endocrine doctor or just a PCP . I found that my PCP did not know enough about prescribing or interpretations of symptoms. I'm much happier going to a specialist.

I had the unique experience of crossing over from hypothyroidism to hyperthyroidism. Yikes it was crazy. I had hot flashes, hair loss, mood changes, leg cramps, etc .... The PCP was useless. The specialist was right on top of it.... I had moved to a lower level of hypothyroidism and was over medicating. The dr check levels every three months until it stabilizes with appropriate level of medication. Then he tests it every 6 months to see that I'm maintaining

Hello @amara98 and welcome to Mayo Clinic Connect. As I see that you posted to a member who has not been actively posting on Connect for several years, I wanted to respond to your post.

As you say that you are going through the exact situation, I'm wondering if you have been diagnosed with an adenoma. If so, what treatment, if any, are you having for this issue?

@jeshaw6801 hi, wow but how are you feeling now ?

I’m going to an endocrinologist we re did blood tests and she will recommend treatment waiting on that

@hopeful33250 hi, yes iv been diagnosed with an adenoma , my endocrinologist re ordered blood tests to see possible cause of high prolactin etc so from that result she will be able to advertise treatment

I has my Doctor to kill my Thyroid, they gave me a capsule, that’s Radioactive Iodine, it safe, it takes about 6 months, to die, I was experiencing the same symptoms, as you, it was very bad, I am doing so much better now hope you get better soon, God bless you.