1. < Brain & Nervous System

hydrocephalus

Posted by mlzeid @mlzeid, Jun 3, 2017

Is there anything that can be done to prevent a lifetime of revisions? My 30 year old daughter has had 35 revisions and it seems she can barely get through a year without a surgery.

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maxine50 | @maxine50 | Oct 25, 2023
In reply to @johns92118 "I HOPE YOU GET WHAT YOU NEED. I DONT KNOW WHERE YOU WENT TO SEE A..." + (show)
@johns92118

I HOPE YOU GET WHAT YOU NEED. I DONT KNOW WHERE YOU WENT TO SEE A DOCTOR BUT I TRAVELED TO ROCHESTER,MN TO SEE THE HEAD NUEROLOGIST THERE AND THAT STARTED ME ON MY JOURNEY i had the shunt put in a yearage last august and just lately i have been having headaches and my balance is not good again. i also shuffle my feet starting in the late afternoon (it is getting earlier lately) and yes my vision is blurey . i would wish you all the best and recomment the mayo clinic. they helped me greatly.

john ps i also may need another adjustment on my shunt

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I am returning to the Neuro surgeon in Los Angeles. I am hoping I just need an adjustment with the magnet for my shunt and not a totally new shunt. I'm too old for major surgery in my head. But, right now, I am having difficulty walking and having balance. I just walked my dog.....Oh my goodness. Good thing my dog understood that I cannot walk.

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1 reply
maxine50 | @maxine50 | Oct 25, 2023
In reply to @johns92118 "I HOPE YOU GET WHAT YOU NEED. I DONT KNOW WHERE YOU WENT TO SEE A..." + (show)
@johns92118

I HOPE YOU GET WHAT YOU NEED. I DONT KNOW WHERE YOU WENT TO SEE A DOCTOR BUT I TRAVELED TO ROCHESTER,MN TO SEE THE HEAD NUEROLOGIST THERE AND THAT STARTED ME ON MY JOURNEY i had the shunt put in a yearage last august and just lately i have been having headaches and my balance is not good again. i also shuffle my feet starting in the late afternoon (it is getting earlier lately) and yes my vision is blurey . i would wish you all the best and recomment the mayo clinic. they helped me greatly.

john ps i also may need another adjustment on my shunt

Jump to this post

I wish you well. Hopefully, all you need is the magnet adjustment.

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1 reply
johns92118 | @johns92118 | Oct 26, 2023
In reply to @maxine50 "I wish you well. Hopefully, all you need is the magnet adjustment." + (show)
@maxine50

I wish you well. Hopefully, all you need is the magnet adjustment.

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i have never talked with anyone else thar has hydrosepholus, let me know how thigs go with you and i will do the same

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johns92118 | @johns92118 | Dec 29, 2023

i have hydrosephalus and lately my walking is getting horrible i shuffle most of the time, is that a sign of too much fluid in the brain??

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1 reply
maxine50 | @maxine50 | Dec 30, 2023
In reply to @maxine50 "I am returning to the Neuro surgeon in Los Angeles. I am hoping I just need..." + (show)
@maxine50

I am returning to the Neuro surgeon in Los Angeles. I am hoping I just need an adjustment with the magnet for my shunt and not a totally new shunt. I'm too old for major surgery in my head. But, right now, I am having difficulty walking and having balance. I just walked my dog.....Oh my goodness. Good thing my dog understood that I cannot walk.

Jump to this post

Have it for many years and have had the shunt in my head adjusted as soon as I find that I cannot walk properly once again. I just returned from L.A. where I had my shunt adjusted by neurosurgeon. I've had it in my head for over five years now. If it stops working, you will know!!!

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maxine50 | @maxine50 | Dec 30, 2023
In reply to @johns92118 "i have hydrosephalus and lately my walking is getting horrible i shuffle most of the time,..." + (show)
@johns92118

i have hydrosephalus and lately my walking is getting horrible i shuffle most of the time, is that a sign of too much fluid in the brain??

Jump to this post

Yes, it could be. You need to see a doctor asap to get tested for it. You may need a shunt.

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johns92118 | @johns92118 | Dec 31, 2023

i have a shunt, it has been addjusted two times since putting it in, maybe one more time but i am afraid of a brain bleed. that is what the doctor told me i need to be careful of

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johns92118 | @johns92118 | Jan 1 9:19am

i have hydrosephalus and have been adjusted two times in the last year. what is a revision? a lot of people have mentioned it. jusst not sure what it is. thank you whoever answers

john steeber

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