hydrocephalus

Posted by mlzeid @mlzeid, Jun 3, 2017

Is there anything that can be done to prevent a lifetime of revisions? My 30 year old daughter has had 35 revisions and it seems she can barely get through a year without a surgery.

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Go to Buffalo NY UBMD Dr Fahrmbach and Dr R Reynolds

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@Erinmfs

Hi, I’ve been diagnosed with acqueduct stenosis, brain surgeon said my ventricles were not large enough for a shunt. I’m 51 years old. I guess I’m headed toward having normal pressure hydrocephalus, but I’m not there yet.

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Thank you for asking as I’m frustrated . The neurosurgeon I consulted with said my ventricles aren’t large enough for a shunt. The neurologist implies I have to have a clinical presentation of NPH to qualify for surgery, meaning that I have dementia full time . Right now I’m episodic, and I’ve been hospitalized 9 times. It seems that heat and exercise are difficult for me.

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@cynaburst

There is another procedure that treats hydrocephalus called endoscopic third ventriculostomy that does not require a shunt, though it is my understanding that it accomplishes the same thing. Maybe that is a possibility? It seems like a second opinion might be in order? I would go to a neurosurgeon with lots of experience in hydrocephalus. Good luck.
https://en.wikipedia.org/wiki/Endoscopic_third_ventriculostomy

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What symptoms did you have prior to ETV? How did you decide to have the surgery?

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There is a surgery that you should look into and research! They is called Choroid Plexus Cauterization (CPC) and Endoscopic Third Ventriculostomy (ETV). I hope this helps!!

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