Husband diagnosed with MCI, meeting criteria for probable CAA.

I have no one I can talk to and I'm hoping to find others with similar situations. I first noticed my husband's symptoms in about 2008, not only in memory issues, but in cognition. His thinking just slowed down. He couldn't keep up with conversations. He developed a disequilibrium and the need for a cane as his gait and balance changed. He consulted various MDs and we modified every variable we could think of: his meds, his oxygenation, (started CPAP,) his pacemaker, etc, etc. He notably developed the habit of writing everything down, though he forgets which notebook, and so on. (He has also had four episodes of transient global amnesia in the last twenty years without evidence of any sequelae.) At the end of June he saw a neurologist who compared his MRIs from 2019 and 2021 showing increasing punctate foci in lobar regions, and that he meets the criteria for MCI due to probable cerebral amyloid angiopathy (CAA). I have been adjusting all my days to the fact that he's not going to get better, and I am unprepared for all the new symptoms he presents. In the last few weeks he has begun singing and humming in a high pitched voice for hours at a time, just making noises, and he flops his right arm around with no apparent knowledge that he's doing it. Now he is starting to hallucinate, seeing things that are not there. He can't have another MRI until March because of personnel issues at the medical center related to his pacemaker, so it just feels like we are free-floating, waiting for the next symptoms. I wish I could help him more and I wish I could help my own stress as well.