What are most common side effects when starting HU (Hydroxyurea)?
What are the side effects most experienced when starting the HU? I'm still trying to decide if I'm going to start it on 1/26/24. My hematologist said we would go over the side effects then but I want to know what most have experienced since they would only report what "could" happen & not what DOES happen. Ex. It's a chemo pill- they usually cause hair loss. Does this apply with the dosages that we would need? After reading other posts, it's sounds like maybe 500 mg is the magic number for the HU dosage.
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Will continue as is and hope for the best.
lea123 -- what you've been through is shocking, but thank you for sharing your horrible experience. I am sorry the procedure did you so much harm.
"Shocking" is the perfect word for an MPN diagnosis.
And nobody wants to take a chemo medicine every day.
Unfortunately, our bone marrow doesn't care how shocked or reluctant we are. It just keeps churning out too many blood cells, pushing itself towards depletion.
Before HU began to rein in my ET, I woke up with a blinding headache that lasted all day. I was exhausted all the time. I had to pause just walking up a flight of stairs.
For me, HU has really been helpful. From hating those capsules, I'm now grateful for them.
This is not to ignore the problem the dye in the capsules may pose.
Please ask your oncologist for her or his suggestion. HU is in wide use, for sickle cell anemia and some types of mouth cancers as well as for MPNs. With so many people using it, I have to hope it can be dispensed in a form other than the pink and green capsules.
Would you please share what you learn, so others with the dye allergy can benefit?
To me, the pharmacist's "advice" to open up the capsules and mix the HU into applesauce borders on malpractice! NO, NO, NO.
I am so sorry for your diagnosis, gigi05.