How You Experience Autism

Posted by Ginger, Volunteer Mentor @gingerw, Jan 8, 2020

I came across this article today, posted on The Mighty. I “get” it, as it is familiar to me. How do you react to her vision of the manifestation in her life?
https://themighty.com/2016/04/what-does-autism-feel-like/
Ginger

@gingerw ….
It has been so busy around here. So many irons in the fire.
When I am around people with whom I am most comfortable, I do not experience that feeling of odd man out.

I feel happy and content.
I feel like the world is my oyster.
I am on cloud nine.
I do not feel weird or different or odd.

I am very sociable with those who "get" me.

With everyone else my hackles are up.
With everyone else my right knee is jumping up and down.
Wirh everyone else I am grinding my teeth.
With everyone else I just want to go home where it is safe.

I am Autistic. How about you?

Love and light,
Mamacita Jane

REPLY

Hello @gingerw

I see that you posted the article from the Mighty about what autism feels like a couple of years ago. As I just read it today, I'm amazed at the complexities of living in an autistic world. Thank you for the insight!

As I've read the comments from @mamacita and @sirgalahad I'm touched by their feelings of hurt and embarrassment. Auties deserve a special word of praise for your accomplishments and your sensitive natures.

I appreciate the view of your world as you see it. It has made me a better person.

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@mamacita

@gingerw ….
It has been so busy around here. So many irons in the fire.
When I am around people with whom I am most comfortable, I do not experience that feeling of odd man out.

I feel happy and content.
I feel like the world is my oyster.
I am on cloud nine.
I do not feel weird or different or odd.

I am very sociable with those who "get" me.

With everyone else my hackles are up.
With everyone else my right knee is jumping up and down.
Wirh everyone else I am grinding my teeth.
With everyone else I just want to go home where it is safe.

I am Autistic. How about you?

Love and light,
Mamacita Jane

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@mamacita Exactly! It is not easy to find those small groups to feel comfortable in. At times people wonder why I isolate like I do. It is easier to be alone than lonely in a crowd, to feel so on edge you cannot function, as you strive to hold yourself together. To be placed into a socially awkward situation, then retreat to your car to close your eyes against it all, recharge your batteries so to speak, and continue your day or night.

May your day today be what you look forward to.
Ginger

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@hopeful33250

Hello @gingerw

I see that you posted the article from the Mighty about what autism feels like a couple of years ago. As I just read it today, I'm amazed at the complexities of living in an autistic world. Thank you for the insight!

As I've read the comments from @mamacita and @sirgalahad I'm touched by their feelings of hurt and embarrassment. Auties deserve a special word of praise for your accomplishments and your sensitive natures.

I appreciate the view of your world as you see it. It has made me a better person.

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@hopeful33250 Teresa, blessings to you for understanding our hurdles. As auties, this quirk to our nature is manifested in so many different ways. Not everyone "gets" that. We can appear to be neurotypical to most of the population, most of the time; sometimes only another autie will recognize the small signs of discomfort. It's not easy to be neurodiverse in this loud, high pressure neurotypical world!
Ginger

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@hopeful33250, I hope this finds you well. I wanted to address this perception that many NT's (Neurotypicals) have regarding those of us on the Spectrum.

Several months ago I saw a new therapist in my search to tame my ADD tendencies. I was open and frank about my place on the Spectrum. She basically nodded and went on to listen to everything else that brought me there.

Later on, after having seen her for months, she finally made a comment that I thought was interesting. She said that she never would have guessed that I was Aspie or anything else on the Spectrum.

I smiled and responded to her statement with my own.

"Well, you see, it is like this. We grow up knowing we are diffetent. We learn that we have to "mask" in order to properly fit in. So we learn all we can to be just like you. So that we can survive in this world. "

But unfortunately all this masking takes its toll on us in the form of disease, disabling conditions, and a false sense of self.

We know now that who we are is who we should be.

Removing the masks takes time and courage. Both qualities we tend to have in abundance.

It's never too late to be yourself.

Thank you for accepting us as we are.
Love and light,
Mamacita Jane

REPLY
@mamacita

@hopeful33250, I hope this finds you well. I wanted to address this perception that many NT's (Neurotypicals) have regarding those of us on the Spectrum.

Several months ago I saw a new therapist in my search to tame my ADD tendencies. I was open and frank about my place on the Spectrum. She basically nodded and went on to listen to everything else that brought me there.

Later on, after having seen her for months, she finally made a comment that I thought was interesting. She said that she never would have guessed that I was Aspie or anything else on the Spectrum.

I smiled and responded to her statement with my own.

"Well, you see, it is like this. We grow up knowing we are diffetent. We learn that we have to "mask" in order to properly fit in. So we learn all we can to be just like you. So that we can survive in this world. "

But unfortunately all this masking takes its toll on us in the form of disease, disabling conditions, and a false sense of self.

We know now that who we are is who we should be.

Removing the masks takes time and courage. Both qualities we tend to have in abundance.

It's never too late to be yourself.

Thank you for accepting us as we are.
Love and light,
Mamacita Jane

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@mamacita In 1988, I was diagnosed with Systemic Lupus. It was a months-long process involving a lot of tests and biopsies to come up to that definitive diagnosis. At that time, and perhaps even now, it was awkward to get a handle on, as there are so many symptoms that vary from person to person. Doesn't that kind of sound like being on the autism spectrum? I recall a nurse telling me, "Gee, you don't look sick" as I checked in at my rheumatologist's office one day back in 1990. That sounds like autism, and the way we may be seen by others, doesn't it? Perhaps I've gotten used to comments like that, perhaps I've gotten good at masking, really good at masking. Being on the spectrum is part of the Civil War that my body and mind carry-on between themselves.
Ginger

REPLY
@gingerw

@mamacita In 1988, I was diagnosed with Systemic Lupus. It was a months-long process involving a lot of tests and biopsies to come up to that definitive diagnosis. At that time, and perhaps even now, it was awkward to get a handle on, as there are so many symptoms that vary from person to person. Doesn't that kind of sound like being on the autism spectrum? I recall a nurse telling me, "Gee, you don't look sick" as I checked in at my rheumatologist's office one day back in 1990. That sounds like autism, and the way we may be seen by others, doesn't it? Perhaps I've gotten used to comments like that, perhaps I've gotten good at masking, really good at masking. Being on the spectrum is part of the Civil War that my body and mind carry-on between themselves.
Ginger

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Absolutely spot on, @gingerw ….Sometimes I feel so at home and comfortable in my own skin I will even forget for awhile who I am.

I will go all day long running one errand after another because I "have to."

And by "have to" it usually means I feel responsible for taking care of someone else. I won't take time out to just put my feet up and rest in between medical appointments for another individual. Never mind that the next day the nerve damage in my feet will not let me even walk three feet with my crying out in pain.

As I write this my sweet hubby is dropping off my totally disabled adult daughter to have a test done at the hospital. He insisted on taking my place today. He says I am too infirm myself to take her to two and three appointments several times a week.

He's right.
But I don't want to admit that.
If I don't take better care of myself I won't be able to help anyone.

She is my child and I feel so deeply for her circumstances. Yet because of my sensitive nature, because I feel such empathy, because I am an Aspie, it is vitally important that I pull off the masks. It is important to remember that I can be easily overwhelmed if I neglect my own well being as I serve another.

All my senses are all over the place. But when I take time to meditate, read, pray, cook, or listen to music, I am feeding my soul. Then I do not struggle to "fit in."

I just live.
I hope this makes some degree of sense.

Love and hugs everyone,
Mamacita Jane

REPLY
@mamacita

Absolutely spot on, @gingerw ….Sometimes I feel so at home and comfortable in my own skin I will even forget for awhile who I am.

I will go all day long running one errand after another because I "have to."

And by "have to" it usually means I feel responsible for taking care of someone else. I won't take time out to just put my feet up and rest in between medical appointments for another individual. Never mind that the next day the nerve damage in my feet will not let me even walk three feet with my crying out in pain.

As I write this my sweet hubby is dropping off my totally disabled adult daughter to have a test done at the hospital. He insisted on taking my place today. He says I am too infirm myself to take her to two and three appointments several times a week.

He's right.
But I don't want to admit that.
If I don't take better care of myself I won't be able to help anyone.

She is my child and I feel so deeply for her circumstances. Yet because of my sensitive nature, because I feel such empathy, because I am an Aspie, it is vitally important that I pull off the masks. It is important to remember that I can be easily overwhelmed if I neglect my own well being as I serve another.

All my senses are all over the place. But when I take time to meditate, read, pray, cook, or listen to music, I am feeding my soul. Then I do not struggle to "fit in."

I just live.
I hope this makes some degree of sense.

Love and hugs everyone,
Mamacita Jane

Jump to this post

@mamacita I should be outside moving some plants around before a series of storms move in. I also need to do laundry; I already did cleaning in the house. But there is still more cleaning to do. Stop to look up side effects of a medication doctor is ordering for my husband's respiratory infection, then call him to confirm he is not on one of the contraindicated medications. Stop and call some banking institutions regarding rates, due to savings coming up for rollove on husband's accounts. Stop and give the cat some more kibble. Trying to do things to keep going and keeping myself too busy. Just stopped for a few minutes to a little bit of artwork. Deep breathing and then go back outside.
Ginger

REPLY
@gingerw

@mamacita I should be outside moving some plants around before a series of storms move in. I also need to do laundry; I already did cleaning in the house. But there is still more cleaning to do. Stop to look up side effects of a medication doctor is ordering for my husband's respiratory infection, then call him to confirm he is not on one of the contraindicated medications. Stop and call some banking institutions regarding rates, due to savings coming up for rollove on husband's accounts. Stop and give the cat some more kibble. Trying to do things to keep going and keeping myself too busy. Just stopped for a few minutes to a little bit of artwork. Deep breathing and then go back outside.
Ginger

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@gingerw , your day sounds remarkably similar to many of mine.

Sisters from another mother.
Take care of your plants! And you, when the storms roll in.
We are expected to have more rain tonight and more flooding.
We are high enough where all we get are puddles. Some around here are not so fortunate.
Take care and we'll talk more soon…
Love and light,
Mamacita Jane

REPLY
@mamacita

@gingerw , your day sounds remarkably similar to many of mine.

Sisters from another mother.
Take care of your plants! And you, when the storms roll in.
We are expected to have more rain tonight and more flooding.
We are high enough where all we get are puddles. Some around here are not so fortunate.
Take care and we'll talk more soon…
Love and light,
Mamacita Jane

Jump to this post

@mamacita Spring may be just around the corner, but I was told you never know around here. We just had a cold front come through, and rain is expected in a bit. Yesterday it was gloriously sunny, this morning it was 27 degrees. The two hours I spent outside, moving a little pine tree into a bigger pot/raking leaves/clipping blackberry vines was enjoyable, and visually rewarding. The fresh air calmed me down. We are just above the flood plain for the creek, but have no worries.
Ginger

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hugs you all we are going into autumn

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@sirgalahad

hugs you all we are going into autumn

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@sirgalahad , @colleenyoung , we have flowers blooming here, even though it will be below freezing tonight. We have had so much rain the schools all are opening two and three hours later. Flood warnings everywhere.

Our yard is a mess. But so far so good. Nothing approaching our house. I'm just over all the rain. Come summer I will wish for it!

Lubs to you,
Mamacita Jane

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