How to Relieve Fatigue?

Posted by lagiaconda @lagiaconda, Jan 11 12:38pm

Has anyone experienced and found relief for an unrelenting fatigue with PD?

I was diagnosed 10 months ago and I don't take medications yet. I will have a second appointment with my neurologist next week.

My primary symptoms are weakness and unrelenting fatigue. I cry with frustration nearly every time I try to do anything besides lie about: loading washer and dryer; removing clothes from washer and dryer; standing to wash dishes; showering; getting dressed; even wrapping a gift.

I would appreciate all suggestions.

Kindly,
lagiaconda

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@21amy

I have had Parkinson’s for 15 years. I did not have trouble with fatigue until about 4 years ago. It started when I switched from Mirapex to Sinimet. Mirapex is a medication that my neurologist does not like and does not have his patients take it. I have heard of other neurologists that do not have their patients with PD take it. I feel exhausted most of the time. Sometimes I can push through it, sometimes I need to lay down and rest. It is very frustrating. I used to play tennis and pickleball. I no longer play #1 I have taken a few bad falls (luckily I did not break anything- I have osteoporosis) and #2 I do not have the energy to play. My family finally understands that there are times I just need to rest. It does help a lot when they get it. I am wondering, if you started Sinimet, if it may help your fatigue. It would be worth asking your provider. Good luck. If you find something that helps with the fatigue please share it with us.

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Exercise is the most important thing you can do for Parkinson's.
There are multiple studies that show the benefit of exercise for PD.
Exercise can help with fatigue in Parkinson's disease by improving energy levels, reducing stress, and enhancing sleep quality. Exercise can also help slow the progression of Parkinson's disease
It's hard to get started but small steps in the beginning ate the way to go.
Give it a try.

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Maybe I need to clarify my response to the issue of fatigue. I no longer play pickleball or tennis, but I do get exercise by walking- outside in the summer and I use a treadmill in winter. I also have an exercise bike that I use mainly in the winter. I just am careful about playing contact sports ( ex: tennis and pickleball). I am aware of my risk of falling and fracturing a bone. I have had non displaced stress fractures of the neck of both femurs and have a rod in each femur. I didn’t realize I had osteoporosis until my first fx. Than I started on Fosomax but did not tolerate it well so I changed to Reclast. I have done well until the winter of 2016. I live in northern Minnesota and had a bad tib/fib fracture but this was not caused by osteoporosis but by ice on a parking lot. I have not fractured anything else but I do not want to risk it. I have taken a few bad falls but luckily just had some bruises. So, I agree that exercise is very important. I just needed to find exercises that are safe for me to do. I also have something called a PFO or Patent Foramen Ovale ( a hole in my heart). I am on a blood thinner for that. So contact sports are not safe for me. Sorry, this got longer than I expected. So I just think that we need to be aware what type of exercise we are recommending to others. Thank you for your encouragement and positive attitude. It is nice to share with someone that is so caring and kind.

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@21amy

Maybe I need to clarify my response to the issue of fatigue. I no longer play pickleball or tennis, but I do get exercise by walking- outside in the summer and I use a treadmill in winter. I also have an exercise bike that I use mainly in the winter. I just am careful about playing contact sports ( ex: tennis and pickleball). I am aware of my risk of falling and fracturing a bone. I have had non displaced stress fractures of the neck of both femurs and have a rod in each femur. I didn’t realize I had osteoporosis until my first fx. Than I started on Fosomax but did not tolerate it well so I changed to Reclast. I have done well until the winter of 2016. I live in northern Minnesota and had a bad tib/fib fracture but this was not caused by osteoporosis but by ice on a parking lot. I have not fractured anything else but I do not want to risk it. I have taken a few bad falls but luckily just had some bruises. So, I agree that exercise is very important. I just needed to find exercises that are safe for me to do. I also have something called a PFO or Patent Foramen Ovale ( a hole in my heart). I am on a blood thinner for that. So contact sports are not safe for me. Sorry, this got longer than I expected. So I just think that we need to be aware what type of exercise we are recommending to others. Thank you for your encouragement and positive attitude. It is nice to share with someone that is so caring and kind.

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My spouse deals with severe fatigue. It creates anxiety for him. Resting twice daily and a night of restful sleep.Unfortunately. medications do contribute to the fatigue in down times. I asked for some exercises that can be done while sitting. He has started with it.. I would like to keep up with anyone for suggestions. Thanks ahead of time.

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@sillyblone

My spouse deals with severe fatigue. It creates anxiety for him. Resting twice daily and a night of restful sleep.Unfortunately. medications do contribute to the fatigue in down times. I asked for some exercises that can be done while sitting. He has started with it.. I would like to keep up with anyone for suggestions. Thanks ahead of time.

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Chair yoga is a good option to remain flexible. Deep breathing as part of this chair yoga is important to maintain lung capacity and even increase your heart rate. Best wishes, Joe

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why have you not started carbi/levodopa?

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@jflamini

Chair yoga is a good option to remain flexible. Deep breathing as part of this chair yoga is important to maintain lung capacity and even increase your heart rate. Best wishes, Joe

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I will try to get my spouse to try. He is very stubborn and usually not interested. Thanks!

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@sillyblone

I will try to get my spouse to try. He is very stubborn and usually not interested. Thanks!

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Let me know if I can assist in any way. Feel free to private message me. I have 15 years experience with PD, was a hospital administrator for 40 years and am active with the Michael J Fox Foundation.

Best wishes, Joe Flamini

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