How long have you lived with COPD?

Posted by puddy68 @puddy68, Sep 30, 2024

Hi there - I'm so sorry, this is my second post in 2 days. I think I mentioned in my previous post that I was FEV1 50%. I think I also mentioned [and if I didn't, it would be pretty obvious] that I suffer from severe anxiety and depression. Have managed to push a psych appointment to tomorrow - this COPD has really thrown me. I'm absolutely convinced I only have a few years left to live, no matter what I read [and I'm now staying away from google]. I realised I needed help when I wasn't believing what I'm reading, and I'm driving my family crazy. I have just one question - would people be willing to share with me how long they have had COPD for? I'm sorry for repeating myself........I'm just reaching out for as much help as I can. God Bless.

Interested in more discussions like this? Go to the COPD: Chronic obstructive pulmonary disease Support Group.

Yes, it is very concerning, and I know how you feel. I was diagnosed with COPD in 2016 and put on oxygen for use at night. My Dr said try every day to exercise to keep my oxygen level high. I am now 83 years old and never smoked. My oxygen level has not changed in 9 years. There is hope!

REPLY

I was thinking I am will go to do the 1200 mg musinex. Had a chest X-ray and will see my pulmonologist soon,

REPLY

I can’t locate Musinex 1200 at Walmart anymore . I heard that it might still be found at Rite aid or Walgreens. The FD removed one of the ingredients . Walmart brand Musinex is now selling as Guaifenesin. I tried it , and not
good for my phlegm needs.
My otc used to cover Musinex.
. Now it won’t cover Guaifenesin. Good Luck, Crystalina

REPLY

If you are at FEV1 50%, I envy you!
I’ve had COPD for over a dozen years & my FEV1 is now at 32%, considered very severe.
Just hang in there!

REPLY

I've had for 4o years and I've been able to keep I under control with meds ad Doctors care. It has changed over the years and is further complicated by Asthma but, with yearly medical visits it is controlled. I'll be 79 in July and am making plans to live at least to 95 maybe 100.

REPLY

I’ve had it for over 30 years diagnosed. It’s only affected me in the last six months but I’m still getting around still can feed myself still can dress myself. I’m getting older. I find meditation helps. Try to get out and walk every day even if it’s just a few steps Watch your diet. Try to eat healthy and try to stay positive and try to be thankful for what you have that seems to help a lot.

REPLY

IT WAS FIRST MENTIONED WHEN I WAS 35. I AM NOW 76, AND ON 8 LTRS OF OXYGEN. GETTING CLOSER, BUT NOT YET. IT IS A VERY SLOW DISEASE.

REPLY
Profile picture for rdrover @rdrover

Hello, My name is Rebecca and I am 52 years old. I have been dealing with COPD for the last 12 years. Between my COPD and my discs in my back deteriorating from degenerate deteriorating disc disease, I can only walk a very short distance and can't stand for very long, hence the reason I am in a electric wheelchair. August 28th 2021, My COPD flared up and my oxygen dropped, by the time my neighbor came over and found me struggling to breath, she called 911. By the time the ambulance got to me and checked my vitals my oxygen was down to 15% I remember them putting me in the ambulance and I remember them pulling away from in front of my apartment but I don't remember hitting the back going around the complex to leave I don't remember the trip to the hospital I don't remember being taken into the hospital I don't remember anything until I was laying on the bed I opened my eyes and I was staring at the light above the bed and I heard my neighbor's voice say I've contacted your mom your son and your daughter and your mom is on her way. That was the last thing I remember next thing I remember was waking up staring at a light above me and hearing my mom's voice say oh my God you're awake and I don't remember anything after that, then again I open my eyes and was looking at a light turned my head and seen both of my sons standing there. Now I'm really confused, I had to ask myself, am I alive or am I dead.... because my oldest son passed away in 2018 from cystic fibrosis. Everything around me sounded like I was in a tunnel and I remember Garrett coming to my bedside holding my hand and tell me how much he loved me how much she was worried and then he was going down to be with the kids so that my daughter-in-law could come up and see me but she said I opened my eyes when she came in and I looked at her and then closed my eyes I don't remember anything next time I opened my eyes to the light in the ceiling turn my head and my mom said oh my God your awake are you going to stay awake this time. I shook my head yes and she asked me do you know what's going on I shook my head no I was having a hard time talking. Mom told me that I had been on life support for 2 and 1/2 Weeks, and if I didn't come too within the next two days they were putting a trach in so thank the Lord I came too before they put a trach in. She also informed me that while I was on life support I had dialysis because my kidneys failed completely. And after fully waking them taking the life support off and starting recovery I could not talk no louder than a very soft whisper but felt like I was yelling. It was like I lost all control of my body from my neck down I couldn't lift my hands my arms I couldn't lift my legs and every day I had to work with physical therapy to get all the strength back in my legs my arms I had to work on feeding myself again getting up to even stand alone walk. The doctors there really thought that I wasn't going to make it and I did so bless the Lord for that one, I wear oxygen at night to bed. Like I said I am in a wheelchair. Honestly I quit smoking cigarettes/nicotine vapes on August 28th that was the last cigarette that morning because that afternoon is when she called 911 and I almost died. I started eating edibles but it just wasn't the same I used THC for pain management in my back because I refuse to take narcotics. But the edibles had to come to a stop because with edibles you eat too much and you're way too high and you're superified and I didn't like that so I started buying the THC pen and I smoke them then I started smoking real weed once in a while because the pens are nothing like real marijuana. I will not go back to smoking nicotine. I suffer with other health issues not just the COPD and the degenerate deteriorating disc disease I also suffer with type 2 diabetes, an umbilical hernia, lymphedema and cellulitis in my legs, Roscea, and I go to a foot doctor because my nails grow into my skin. I have many mental health issues too. to name a few, I have bipolar 2 with suicidal tendencies, bipolar-depression, anxiety, paranoia borderline personality disorder, etc, etc.

Jump to this post

God bless you, Rebecca. You have been through so much and such a young age. After reading your post, you gave me hope for my own illness. You are a warrior and the fact that God did not take you yet is that he has things you still need to do. It is not your time. Stay strong and pray to God for strength and healing. I will say a prayer for you right now. God bless you.

REPLY
Please sign in or register to post a reply.