How has your recovery from your organ transplant been?
How are feeling one year or longer from organ transplant? I feel fantastic since my transplant back on March 26th of this year. I will tell you this its been at times like a runaway train. I would like hear feed back from other transplant patients.
Interested in more discussions like this? Go to the Transplants Support Group.
Hi, @peter55 and Welcome to Mayo Clinic Connect! Congratulations on your 'almost' one year liver transplant!!
Do you know that this is a perfect time for you to post this exciting topic? We are in the midst of the Holiday Celebrations and preparing to begin a New Year - and - It is a wonderful time for each of us (recipients, loved ones, donors, donor families...) to reflect on our 1st year transplant experiences.
Peter, my transplant surgery was 15 years ago. I will be happy to share later, but how about you and/or some newer recipients getting us started. Here are some ideas - What organ did you receive? Where did you receive it? What are some memorable experiences or a favorite experience that you wouid like to share? What are you able to do now, that you couldn't do prior to the transplant? What do you wish you would have known before your transplant that might be helpful to someone who is beginning their own transplant journey?
Who wants to0 go first?
Hi Peter, I am coming up four years since getting a lung transplant and it is a challenge at the beginning. I had to use a wheelchair and walking frame for the first 8 months. I found it was important to keep pushing yourself as hard as that is. I am still not back to what I was before being diagnosed with Interstitial Lung Disease, but I am independent and able to do most things. You have to advocate for yourself when dealing with the transplant specialists and push them to help with any issues that arise.
Since the transplant I have been able to travel to the Philippines, Thailand, Japan internationally with my family. I have travelled to Queensland, Sydney and Canberra in my home country. I have had the opportunity to watch my younger kids go through Primary School into High School. I have had to accept that there are limitations to what I am capable of and deal with the dangers associated with immunosuppressants and for example gardening which can cause aspergillus infections that may be fatal in my case (I just wear a N95 mask when gardening).
It is a hard slug, but it is worth it in the long run. Be vigilant and strong and keep active. I really hope you recover quickly and are able to find happiness, every day is a bonus.