How do you plan your day and conserve energy? Are you a Spoonie?

Posted by Becky, Volunteer Mentor @becsbuddy, Feb 2 7:34pm

Are you like me, and run out of energy after doing only a few things? You shower and are then worn out and have to rest? Or maybe you walk the dog and it’s just too much! And you find yourself turning down invitation to lunch (pre-COVID-19) because of no energy. I do. I hate having to say no to friends, going home early, or taking shorter walks. I feel like I lost so much and myself!
Then I heard about The Spoon Theory, developed by Christine Miserandino. It’s a way of describing, planning, and conserving energy units that you use during the day. On her web page, Christine how she explained her illness (lupus, an autoimmune disease) and energy levels to a friend. You are able to explain to others the details of your life as someone with an invisible disease or chronic illness.
For example, I start my day with a list of things I need to do (shower, make the bed, do some laundry) and then I add my list of things I want to do
(go for a nice walk, sew, bake something). When I put the lists together, I realize that I won’t have enough spoons (units of energy) to get through the day. So, I’ve learned , using The Spoon Theory, to divide up the have to’s and the want to’s and add in some rest periods. I probably won’t get everything done—there’s always tomorrow—but I also won’t get exhausted, achey, and cranky half way through the day! The Spoon Theory has made so much sense to me!
Have you thought up a way to use and conserve your energy throughout the day? 

https://butyoudontlooksick.com/articles/written-by-christine/the-spoon-theory/https://www.brainsupportnetwork.org/explaining-fatigue-the-spoon-theory/

@johnbishop Great link! Some days I feel like someone left me a gift of [extra] spoons during the night. Other days, like someone stole in during the night and ripped all the spoons away!
Ginger

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@gingerw

@johnbishop Great link! Some days I feel like someone left me a gift of [extra] spoons during the night. Other days, like someone stole in during the night and ripped all the spoons away!
Ginger

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Thank you @johnbishop ! Great article! Are you a Spoonie?

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@becsbuddy

Thank you @johnbishop ! Great article! Are you a Spoonie?

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@becsbuddy – I think I'm a Spoonie wannabe 😊 I do pace myself during the day as I know I have only so much energy inside me but I do have my days when I use it up way to fast. A lot of my problems stem from trying to do to many things at the same time and what normally happens is nothing gets done. I'm going to have to read the article a few more times and hopefully retain some of the good info.

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@johnbishop

@becsbuddy – I think I'm a Spoonie wannabe 😊 I do pace myself during the day as I know I have only so much energy inside me but I do have my days when I use it up way to fast. A lot of my problems stem from trying to do to many things at the same time and what normally happens is nothing gets done. I'm going to have to read the article a few more times and hopefully retain some of the good info.

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S,cuse me, but what's a spoonie? I must have missed that post.

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Thanks so much for the link on spoonies, John. After I posted my query, I searched our site and found the article on spoonies. I read the entire article, including all the links.
Guess what? I'm a spoonie!! One thing missing on the Guilt section was guilt at your doctor's appointment, as you go through your long list of things that are wrong with you that week/month. This is my latest issue. I feel I'm wearing my doc out. Most of the issues don't have a Fix. She recently told me I'm very gracious about acknowledging that she can't fix it, but I still feel guilt and even shame over this. Anyone else using too many spoons ruminating over this?

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@becsbuddy

Well, I certainly see how spoons can help explain units of energy and getting through the day, but I have yet to figure out how many units(spoons) go with different activities. And then sudden, unforeseen events show up! I’ll see if there is a chart on the internet that will help. Need something! Becky

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I haven't so much as assigned spoons to activities, but I know heading back on a trail when first fatigued is the best. If I have a busy day coming up, I keep fewer activities the day before and after. For housecleaning, a couple hours, two hours rest and then, maybe, another two hours. Just avoid overdoing, break tasks into smaller units and you will endure.

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Hello Spoonies! Well, I used up all my spoons too early today, and the day wasn’t even half over! I walked the dog and we did Meals on Wheels. Then I decided that I could go to the grocery all by myself. I even planned to let the employees bag the groceries for me (by leaving my own bags at home). Well, the store was short staffed and I had to bag my own groceries! I almost called my husband to come and rescue me. I didn’t but when I got home, he told me to take a nap while he put away the groceries and made dinner. Think I learned my lesson!
Have you ever had a day where you used up your spoons?

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@becsbuddy

Hello Spoonies! Well, I used up all my spoons too early today, and the day wasn’t even half over! I walked the dog and we did Meals on Wheels. Then I decided that I could go to the grocery all by myself. I even planned to let the employees bag the groceries for me (by leaving my own bags at home). Well, the store was short staffed and I had to bag my own groceries! I almost called my husband to come and rescue me. I didn’t but when I got home, he told me to take a nap while he put away the groceries and made dinner. Think I learned my lesson!
Have you ever had a day where you used up your spoons?

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@becsbuddy Gosh, you're playing my tune! When I head out, I make sure there is lots of water and a healthy snack or two with me. I have gotten over the embarrassment of having to kick back and take a nap in the car before continuing. Bless their hearts, a couple of times police have stopped to see if I was okay, but fully understand I am not feeling well, and getting enough energy to drive home!

Tomorrow I have to be at a procedure at 7am, an hour away from here. While I have a list of things I want to do while in that town, nothing is a requirement, the only gotta-be-there is the procedure. I have found that to be safe on the roads, having enough spoons in my cache is critical!

Are you feeling better today!
Ginger

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@gingerw

@becsbuddy Gosh, you're playing my tune! When I head out, I make sure there is lots of water and a healthy snack or two with me. I have gotten over the embarrassment of having to kick back and take a nap in the car before continuing. Bless their hearts, a couple of times police have stopped to see if I was okay, but fully understand I am not feeling well, and getting enough energy to drive home!

Tomorrow I have to be at a procedure at 7am, an hour away from here. While I have a list of things I want to do while in that town, nothing is a requirement, the only gotta-be-there is the procedure. I have found that to be safe on the roads, having enough spoons in my cache is critical!

Are you feeling better today!
Ginger

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Yes, I’m so much better and learned my lesson! Now I’m off to the dentist. Mike will take me since it’s snowing ☹️

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@gingerw

@becsbuddy Gosh, you're playing my tune! When I head out, I make sure there is lots of water and a healthy snack or two with me. I have gotten over the embarrassment of having to kick back and take a nap in the car before continuing. Bless their hearts, a couple of times police have stopped to see if I was okay, but fully understand I am not feeling well, and getting enough energy to drive home!

Tomorrow I have to be at a procedure at 7am, an hour away from here. While I have a list of things I want to do while in that town, nothing is a requirement, the only gotta-be-there is the procedure. I have found that to be safe on the roads, having enough spoons in my cache is critical!

Are you feeling better today!
Ginger

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With Myasthenia Gravis, I’m a spooner, I’ve heard of this before. As I use my eyesight during the day, I use up my energy. By evening, my eyes want to be shut.

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@Erinmfs

With Myasthenia Gravis, I’m a spooner, I’ve heard of this before. As I use my eyesight during the day, I use up my energy. By evening, my eyes want to be shut.

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@becsbuddy, @johnbishop, @Erinmfs, @gingerw, @artist01,@marye2, @hopeful33250 Well, my goodness, folks! This is wonderful…..what a wonderfully simple, reasonable system for handling all this junk we deal with every day and night. This woman has obviously experienced these issues and is a survivor. I love it!

Every time I think of counting my spoons, I 'hear' the Sound of Music, 'Just a spoon-full of sugar…'…that may be the impetus for the theory, but whatever, it's in my head! Not so bad….I like the song and love the concept, so…..spoon counting it is.

Interesting, I often find hooking my bra is a spoon, getting dressed is one or sometimes two spoons, but by the time I walk out the front door to go to the doc, I've used most of my spoons for the day and barely make it to the car to sit down! So, can we add more spoons????? Nope, I know. Negotiating again – But, I, too take a bottle or two of water, diet coke, Kind protein bar or two with me every time out. Good thing.

Side bar: finally got my new bed delivered yesterday! I've rescheduled 4-5 times as yucky stuff arose, but did it, Got it! Getting ready took 27 spoons…. my housekeeper came by for emergency help Monday to help get the bedroom ready. I still was up until 2 doing laundry….it's gotten harder to handle the in and out, lifting wet sheets and towels, folding and getting them upstairs and put up. So, I enjoyed meditative, good piano music while folding sheets. I used my cognitive thinking, relaxed and took my time, used things learned this last 2 years w/Mayo.

Rested in between folding each sheet. Drank iced tea and then a cup of mint green tea as I got things done. Took my time and made it pleasurable! But, I used up several tablespoons. My back was screaming at me, so I sat in the comfy recliner for 10-15 minutes, ate a Kind protein bar, breathed well and got upstairs with the folded linens. That was remarkable. Took an extra extra – strength tylenol and a half extra dropper of 1:1 MMJ, melatonin and to bed, old bed,

Quite a couple days, I'd say. Interesting, because I was able to accomplish tasks at hand, got it done, but with the rests, energy breaks, liquids, meditation, positive thoughts only…..putting into action what we've all been working on for so long. It worked well. Slept like a dream on my new bed last night! This was a huge deal for me. Got a good one, online!!!!!, Macy's clearance/close-out year-end sale. NEVER saw it, custom firm w/pillow top. I added a topper cover w/extra padding. It's great! Whew!

My back, feet, legs and hands were screaming. But, I used our pain tools, plus some Voltaren cream before bed and lidocaine patch to go to doc yesterday. These insights, tools work. I'm adding the spoons, and already doing better!
Blessings to all you warriors, life-livers and forward thinkers. Use our spoons thoughtfully! elizabeth

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