How do I get some sleep?

Posted by Suhcuddo @suhcuddo, Nov 23, 2011

For years now I’ve been getting real sleep every few days. Like now I’ve been up since two thirty this morning. I’m full of anger all the time, and for what I don’t know. I have problems w/ pain,(mostly in my neck, and from severe rls), acid reflux to the point of wanting to throw up nightly and depression. It’s gotta come from the lack of sleep. I’ve try’d all kinds of anti-depressants, talking about my problems w/ a theropist only makes things worse. I’m getting desperate. I don’t want to become suicidal but I’m very close to the breaking point. Does anyone have any suggestions?

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@davids1

Hi. Iam very,very sorry to see your comment. I read it several times and I can honestly say…IT SUCKS BUT I,M RIGHT THERE WITH YOU!!!!!!! You gotta wonder what we did to deserve this crap…. Suhcuddo, all I can say at this point is hang in there and solve one problem at a time, You inspire me cause here I am with ONLY severe RLS and I have lost all hope. My nero Dr. threw his hands up since I,ve tried just about every crappy drug for this and only REQUIP. {large doses} somewhat controls the RLS. Your neck pain is maybe manageable????? , and the acid reflux ‘SHOULD BE ABLE TO CONTROL”, but what are you doing for your RLS?. I am not into social media and I,m a newbie at this forum,so please forgive my awkwardness…. Maybe some angel will see this and help us both with these ailments. I,ve been so healthy all my life, it,s so difficult and the Drs. that i have been to actually know less than me about RLS. You are in my thoughts and prayers and I feel that at the very least, you should know that I hear you and I LITTERALLY feel your pain………..David

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Good evening S! It’s good to see your note. I’m on central time down in the deep south but all things cool are on Pac time in my humble opinion. It brings back such wonderful memories of Berkley, Alameda, San Fran., Downey,Oakland,Long Beach and such. Those WERE the days!!!!!!! God just to be able to go back for a little while. Whooa…..my spirit went soaring…sorry. About your 24hr heat wrap….am I oversimplifying by asking about ICYHOT.? Yeah I know, it’s too simple to be any good ,but I gotta take a shot at it. No word on the Big White Wings yet????? Wow you are 6 out of 7.. thats really pretty cool. Have you checked your siblings to see if they have the RLS curse???? Seems like No7 would have said something about it. By the way, what was up with the woman who poped you? Let me guess………cell phonnnneeeee. maybe not or maybe so. I ‘m so sorry that happened to ya. It could be any of us at anytime. Lots of “lawers” love it but I sure do not. Your spring analogy was spot on. You actually made me giggle&smile. Thanks. You probably already know by now but I think it is http://www.rls.org for the foundation. Membership is cheap and they have a wealth of Knowledge and with your computer skills, it may be of some help. They are the Lone Voice in the desert when it comes to the FDA and things such as that. I’m going long again so b-4 I go , I don’t want to forget to ask if you have ID,d the “Trigger” for your RLS. Mine is unfortunately food and relaxation. Nighttime is my worst enemy. Kind of a reverse vampire……. luv,luv luv, the sunlight ang hate the dark cause it brings on the nagging spectre of ,as you put it, RBS. Evening meals can be explosive with misery unless I time it just right with Requip. and RequipXL in combination. You have me curious about Pramipexole. Gonna look it up now. Hope to hear from you…. it’s Sunday, maybe you are resting. I sure hope so. Adios for now.

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@texasbarb

I’ve taken Ambien for sleep and it really works great! As far as the pain…..I have it, too….and cannot find the perfect remedy. I’m on Ultram right now, hopeing that in a week or so, the pain will ease.

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Hey S…….. I keep making the same mistake. I don’t scroll down far enough to see all of your notes. I’m obviously no cyber geek. Gottcha about the Trazadone. It never cpamped me but I lost 50to80% joint flexibility. That coupled with aching teeth, and forgive me but the nitetime urinations were reeeealllly anoying. I was told that they put a diuretric{spelling} in it. That’s so special………..chems. to make u sleep and chems to make u P. Great!!!!!!! Let’s all just wet the bed and be done with it. Pharmas are jerks……..Really, Really Rich jerks. I dont know for sure but the cramps that you mentioned may well be side issues of the drug. Try to trace it back to when u first noticed them. I don’t know about the friend request yet cause I was anxious to reply to u. I did notice sometjhing new in Email so I’ll go check and let u know……. To answer your Question, no.. I have not been on the RLS chat room yet. Don’t even know why,,,,,,, . I’m learning lots from you. though so hats off to Super Suhcuddo. Just kiddn’.. talk to u later

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@texasbarb

I’ve taken Ambien for sleep and it really works great! As far as the pain…..I have it, too….and cannot find the perfect remedy. I’m on Ultram right now, hopeing that in a week or so, the pain will ease.

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Dear S, I had a thought about your severe neck pain {whiplash}. It stands to reason that there would be inflamation in the area which, to my ignorant viewpoint, would show up as arthritis on tests. would not they look similar????? If you had no neck problems b4 the mva, then it stands to reason that it is mainly inflammed. why can’t the Dr. look into or recommend the steroid injections.{three-in-a- series of cortisone or whatever it is. Please resppond cause this is really bugging me now.

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@davids1

Hi. Iam very,very sorry to see your comment. I read it several times and I can honestly say…IT SUCKS BUT I,M RIGHT THERE WITH YOU!!!!!!! You gotta wonder what we did to deserve this crap…. Suhcuddo, all I can say at this point is hang in there and solve one problem at a time, You inspire me cause here I am with ONLY severe RLS and I have lost all hope. My nero Dr. threw his hands up since I,ve tried just about every crappy drug for this and only REQUIP. {large doses} somewhat controls the RLS. Your neck pain is maybe manageable????? , and the acid reflux ‘SHOULD BE ABLE TO CONTROL”, but what are you doing for your RLS?. I am not into social media and I,m a newbie at this forum,so please forgive my awkwardness…. Maybe some angel will see this and help us both with these ailments. I,ve been so healthy all my life, it,s so difficult and the Drs. that i have been to actually know less than me about RLS. You are in my thoughts and prayers and I feel that at the very least, you should know that I hear you and I LITTERALLY feel your pain………..David

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Howdy do! It was good to hear from ya 🙂 I’ve often wondered why they call it the “deep” south? I’ve never been. The furthest S. I’ve been is Las vegas that was just to visit my sister. When I was a kid I ran away to Calf, but didn’t get very far. I’m further north than that “Twi-Light” territory. If you keep up w/ such things. I like a good vampire movie but could never get into that one. I guess I just have a thing for Frank Langella (sorry), Any ways…I’m allergic to Menthol which is what makes those work. I use a damp clothe in the mic but I have to keep micing it ’cause it cools down so fast. But it works. and it’s cheap! She just said she was distracted and was looking down. So was I, but I was the passenger in a stopped car. She wasn’t. I’m just thankful, it coulda been a lot worse. I luv luv luv the sunshine too! probably ’cause we don’t get any. This past year has been horrible too. Not good for us depressed types, I’ve never really figured out what my triggers are. It just seems to be random, Walking more than usual or stressfull exercise will make it worse, If I get a cold or a flu that aggrevates it as well. I have noticed that the muscle relaxers the docs gave me for my neck help. But I worry about all these pills. Addiction is a big thing in my family. I don’t want to fall in that trap. Caffine and Niccotine are my only vises and I’d like to keep it that way. I’ve seen what the other things can do. I’ll ask my sis, but I don’t anyone else in the family does, My daughter is in her early 30’s so she may be a little young yet. I didn’t start getting symptoms till I was 40. Except for the cramps,I’ve suffered from those all my life. She’s never had that problem so I’m hopein’ she won’t have this. It’s Mon now, I spend Sundays hiding from the football goin’ on in the livin’ room. Wow, Did I go long or what? Sorry, didn’t mean to chat your ear off. It’s just sooo nice to chat w/ someone in the same shoes..ya know? Hope to hear from ya soon “S”

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@davids1

Hi. Iam very,very sorry to see your comment. I read it several times and I can honestly say…IT SUCKS BUT I,M RIGHT THERE WITH YOU!!!!!!! You gotta wonder what we did to deserve this crap…. Suhcuddo, all I can say at this point is hang in there and solve one problem at a time, You inspire me cause here I am with ONLY severe RLS and I have lost all hope. My nero Dr. threw his hands up since I,ve tried just about every crappy drug for this and only REQUIP. {large doses} somewhat controls the RLS. Your neck pain is maybe manageable????? , and the acid reflux ‘SHOULD BE ABLE TO CONTROL”, but what are you doing for your RLS?. I am not into social media and I,m a newbie at this forum,so please forgive my awkwardness…. Maybe some angel will see this and help us both with these ailments. I,ve been so healthy all my life, it,s so difficult and the Drs. that i have been to actually know less than me about RLS. You are in my thoughts and prayers and I feel that at the very least, you should know that I hear you and I LITTERALLY feel your pain………..David

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Hi S, fantastic to hear from ya. so much to share and ask this afternoon after reading your note. you made me smile. i gotta go finish a few things, but promise to come back asap to respond. This is cool!!!!!

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@davids1

Hi. Iam very,very sorry to see your comment. I read it several times and I can honestly say…IT SUCKS BUT I,M RIGHT THERE WITH YOU!!!!!!! You gotta wonder what we did to deserve this crap…. Suhcuddo, all I can say at this point is hang in there and solve one problem at a time, You inspire me cause here I am with ONLY severe RLS and I have lost all hope. My nero Dr. threw his hands up since I,ve tried just about every crappy drug for this and only REQUIP. {large doses} somewhat controls the RLS. Your neck pain is maybe manageable????? , and the acid reflux ‘SHOULD BE ABLE TO CONTROL”, but what are you doing for your RLS?. I am not into social media and I,m a newbie at this forum,so please forgive my awkwardness…. Maybe some angel will see this and help us both with these ailments. I,ve been so healthy all my life, it,s so difficult and the Drs. that i have been to actually know less than me about RLS. You are in my thoughts and prayers and I feel that at the very least, you should know that I hear you and I LITTERALLY feel your pain………..David

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OK now I,m back. Sorry for the delay. In reading your last note let me address some points…… the deepsouth is Louisiana.<baton rouge area to be more specific. I wish I could have shared some of the sunshine that we had this summer with you & yours cause It was plentyful and very dry this year. I,ll request some for ya with the Powers-that-be. Dosen’t hurt to ask. U were kinda brave to run to calif. as a kid. Wow. I’m impressed. That shows that you are strong- willed and that strength is to be admired. It is probably what keeps u going and thats a GOOD thing. I only mention v-pires cause they alledgedly can’t take the sunshine whereas u an I and others like us relish it……..{who is F. langella…duuuuh?} Good point about Menthol. I guess that knocks out my theory bout ICY-HOT. Only other thing that comes to mind is heatring pads and the trendy yet effective Bean-Bag type that u put in the micro-wave. Ms. S what about my theory on inflammation as opposed to arthritis, and possible relief from the 3 shot series of steroids. Any thoughts or comments???????? Do u think it is worth mentioning to your DR.?????? Yeah I’ll bet she was just lookn down, lookn down at her phone…… good grief!!!!! If u have not figured out what your triggers are here is a big CLUE, from the research dept. per RLS Foundation {I”m trying to not sound like mr know-it-all} the TWO MOST COMMON TRIGGERS are CAFFINE and nicotine. Chocolate will send me sailing with RLS because of the caffine in it. Luv it but limit it drasticly. Only DECAF coffee will do although I personally drink a pot of it each am since I’m up all nite. And since my RLS has worsened in the last 14 months, I can’t imagine what would happen if I digressed to caffineated. Probably……BOOOOM!!!!!!. Will u think about it???? The nicotine is an unknown for me but very suspect since I don’t Z AS MUCH , and I smoke when i’m up. Your feedback on this ,so far is requested. out of concern. As far as exercise and stress, I agree…… it seems to aggrevate it. B4 I forget, RLS morphed into augmentation in 2010 when I treated the common cold with DAYQUIL, NYQUIL AND OTHER COLD TREATMENTS. Please BEWARE!!!. again , I did not know until I referred to the RLS info that I sent off for 25yrs ago. hey I ,m reeeally going long again,,,,,,,,,,so sorry Ms S. Digest this an please comment. and let me know if I peaked any intrest. Always fantastic hearing from u so please keep it rolling. There is so much more to share. Thanks……………David

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@davids1

Hi. Iam very,very sorry to see your comment. I read it several times and I can honestly say…IT SUCKS BUT I,M RIGHT THERE WITH YOU!!!!!!! You gotta wonder what we did to deserve this crap…. Suhcuddo, all I can say at this point is hang in there and solve one problem at a time, You inspire me cause here I am with ONLY severe RLS and I have lost all hope. My nero Dr. threw his hands up since I,ve tried just about every crappy drug for this and only REQUIP. {large doses} somewhat controls the RLS. Your neck pain is maybe manageable????? , and the acid reflux ‘SHOULD BE ABLE TO CONTROL”, but what are you doing for your RLS?. I am not into social media and I,m a newbie at this forum,so please forgive my awkwardness…. Maybe some angel will see this and help us both with these ailments. I,ve been so healthy all my life, it,s so difficult and the Drs. that i have been to actually know less than me about RLS. You are in my thoughts and prayers and I feel that at the very least, you should know that I hear you and I LITTERALLY feel your pain………..David

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Yea, ya gotta stay away from the benidrils that stuff will put me into a “Spring loaded” mode. As for the cafine I just forgot about it I’ve gone from 3 pots reg. to 3 cups 1/2 calf. So I’m workin’ on that. And I’m down to 5-6 cigs a day, more on bad nights though. I’ve switched to lights and do 1/2 at a time. Sounds weird, but it’s workin’ for me. I’m going to call my neorologist today, He’s the one that has me on the gabapetin and pram, I looked them up and the side effects include depression and mood changes. Well, I’m also takeing The methocarbamol for muscle spasms and neck pain. Just guess what their side effects are. Yep, the same. So I think it’s time for a med review. My sweet tooth has really gone A-wall on me. I’m goin’ through a salt and protien phase right now. I luv my pepperoni and cheese sticks. ‘Specailly the pepper jack :)YUM! I don’t know why, even my moachas don’t sound good these days (those have allways been decaf). Caffine has never really bothered me. the way I found out I was addicted was when I cut back on it and got the head aches. I amagine that any stimulant will triggure it. So I been tryin’ to stay away from them. And like I said I’m workin’ on the 1/2 calf and smokes. It’s turning out just like my Dad used to say…”Everything I like is either illeagal, immoral, or fattening.” Oh getting old can suck sometimes. I’d like to answer you sooner on this but I’m a noisy typist. And since retirement he sleeps til’ 10:00.
O.k you asked. Frank Langella played Dracula in the 1979 version w/ Laurence Olivier and Donold Pleasents. It’s more of of a romance movie than a horror flick. Great movie though. If your into the story though, beware, they have Lucy and Mina turned around in this one. Well, I guess you just got a taste of what I do at night. (when I’m not playing my videa games.) Well, I gotta get on the phone, so hopefully hear from ya soon (U R right, This is way cool!!!)

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@davids1

Hi. Iam very,very sorry to see your comment. I read it several times and I can honestly say…IT SUCKS BUT I,M RIGHT THERE WITH YOU!!!!!!! You gotta wonder what we did to deserve this crap…. Suhcuddo, all I can say at this point is hang in there and solve one problem at a time, You inspire me cause here I am with ONLY severe RLS and I have lost all hope. My nero Dr. threw his hands up since I,ve tried just about every crappy drug for this and only REQUIP. {large doses} somewhat controls the RLS. Your neck pain is maybe manageable????? , and the acid reflux ‘SHOULD BE ABLE TO CONTROL”, but what are you doing for your RLS?. I am not into social media and I,m a newbie at this forum,so please forgive my awkwardness…. Maybe some angel will see this and help us both with these ailments. I,ve been so healthy all my life, it,s so difficult and the Drs. that i have been to actually know less than me about RLS. You are in my thoughts and prayers and I feel that at the very least, you should know that I hear you and I LITTERALLY feel your pain………..David

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HIIIIIIIIIII!!! Greetings from the south again, I got your last note and parts of it cracked me up. So glad you knew about the caffine and benidrils. nowq that’s out of the way..I,m so glad that you are going to do a med review. That’s a very big deal. I’ll wager that the stuff that is supposed to help you is actually killing you. I,m in the middle of 3 projecrts so I,m going short now ‘but Iwill have more later today…Thanks S…..

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@texasbarb

I’ve taken Ambien for sleep and it really works great! As far as the pain…..I have it, too….and cannot find the perfect remedy. I’m on Ultram right now, hopeing that in a week or so, the pain will ease.

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I pulled your boo boo, and didn’t scroll, I have no clue why they think it’s arthritis, As my doc put it, I have entered that elite age group. As for the shots…well…I haven’t asked. I’m scared of needles. and as for the cramps,I’ve actually suffered from them all my life. They got really bad after my final growth spurt. I went from 4’9″ to 5′ in about 2-3 month period. That’s an inch a month. The most painful summer of my life. (I was 16) but I am thankful for the extra 3″. I might ask tomorrow, that’s when I see my doc. I really have to thank you. You’ve opened up my eye’s to a lot of things I wouldn’t have put together. Like the side effects. I woulda just kept goin’ on thinkin’ I was just crazy. I see him at 11, It’s like thirty miles of traffic so it’ll be around 3 or four before I get back here. But I will let you know what he says. Especailly if it has to do w/ the RLS meds I’m on . I’m doin’ some stuff w/ my new toy here(I got a printer/scanner ). so I’ll check back later 🙂

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@davids1

Hi. Iam very,very sorry to see your comment. I read it several times and I can honestly say…IT SUCKS BUT I,M RIGHT THERE WITH YOU!!!!!!! You gotta wonder what we did to deserve this crap…. Suhcuddo, all I can say at this point is hang in there and solve one problem at a time, You inspire me cause here I am with ONLY severe RLS and I have lost all hope. My nero Dr. threw his hands up since I,ve tried just about every crappy drug for this and only REQUIP. {large doses} somewhat controls the RLS. Your neck pain is maybe manageable????? , and the acid reflux ‘SHOULD BE ABLE TO CONTROL”, but what are you doing for your RLS?. I am not into social media and I,m a newbie at this forum,so please forgive my awkwardness…. Maybe some angel will see this and help us both with these ailments. I,ve been so healthy all my life, it,s so difficult and the Drs. that i have been to actually know less than me about RLS. You are in my thoughts and prayers and I feel that at the very least, you should know that I hear you and I LITTERALLY feel your pain………..David

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Scroll down your comment from yesterday. O.K?

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@texasbarb

I’ve taken Ambien for sleep and it really works great! As far as the pain…..I have it, too….and cannot find the perfect remedy. I’m on Ultram right now, hopeing that in a week or so, the pain will ease.

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Wow Kiddo, youmade my day. your last note was very moving to me. I have to thank u also. You really are helping me too. It is very satisfying to be able to share from all this suffering and experiences that us folks are going through. The spouses see it and they can be so wonderful, but for someone who has the same miserable sensations in their body is able to relate so uniquely. My wife has witnessed me twitch, spaz, contort, twist and turn, That is so damn embarassing to male or female, She has watched me weep like a little kid when I would never have considered it even possible . Went to war at 18 yrs old and never felt like crying, ;but give me 3 or 4 bad episodes of RL freaknS, and I turn to Goo!!! Like you Lady S, I really don,t know where this will all end, but I keep saying “it could be worse”, It could be worse”, I have found the medical community down here totally uncaring, ignorant, apathetic,unprofessional and generally speaking……. in medicine for status ant the$$$$$$$. I realize there is only so much that they can do, but down here, it is like I,m teaching them and then I become lab-rat #1. my Nero dude did know about the foundation but has never taken the time to say much about it. {and he is suppose to be the best locally for RLfreaknS. Last visit, He threw his hands up and said the same thing that the sleep cliknic dude said. “david I’m out of bullets. see me in 4 months” Tell me S, what the hell is that. MAN!!! I,ll never get over that one. GOOD LORD SOOOOO SORRY!!! Evough of this. Oh, b4 I forget, RLS is thought to originate at the base of the spine. Sure enough, when it is hittn hard., that feels about right. just a reminder …. write down all the issues that u want addressed when u see the DR tommorrow. It is so helpful to do so. I did not know that growth spurts did that. Maybe that was dress rehearsal for what was to come. Maybe it made u tougher than u give yourself credit for…….Maybe…. just maybe lil suhcuddo is tough as nails just battered and bruised.a little. Don,t fear a needle that can make your pain and headaches go away. Best way to handle it is to psyche-up, get real angry and say DO IT. it is over in a flash. with a qualified shooter, u won,t feel much at all. they numb it as they go. I smiled when u said your Mr. slept till 10 since retirement. He probably earned that. I wish we all couild do that. Retirement is ‘iffy at times isn’t it. It seems to be really harder on the wives. Good lord Im ramblin here. very sorry but you are a good ear. Hopefully, tomorrow will be a good day for u and the Dr, will have an epiphany about some of your concerns. I will pray hard for that tonite when I, idleing around. Hope you get some sleep…..{comfortably] until later lil buddy. …………………………………………………………………………………………………………………………………………………………………………………………………………………………………………………………………………….

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@texasbarb

I’ve taken Ambien for sleep and it really works great! As far as the pain…..I have it, too….and cannot find the perfect remedy. I’m on Ultram right now, hopeing that in a week or so, the pain will ease.

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up again at 12:30am geeezze!!!!

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